National MS Society Calls on Leaders to Lower Prices and Improve Access to MS Medications

Patricia Silva, PhD avatar

by Patricia Silva, PhD |

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MS medications and costs

The National Multiple Sclerosis SocietyĀ has launched an initiative, calledĀ Make MS Medications Accessible, calling for change inĀ the pricing of multiple sclerosis (MS) medications in the U.S., which the group said need to be more affordable, and ways of acquiring them more simple and transparent.

The initiative asksĀ leaders ofĀ all involved parties involved ā€“ from pharmaceuticals to insurance providers, policymakers to pharmacy benefit managers and MS patients themselves ā€“ to work together and focus on lowering the costs of MS medications, to give patients the conditions they need to have a stable quality of life.

In 2004, the National MS Society reported, the average annual cost ofĀ MS medications was $16,000. Today,Ā it is aboutĀ $78,000 ā€” an increase of nearly 400% that puts a considerable burden on patients and their families.

A case in point, the Society said, isĀ Abigail Bostwick, 36, who was diagnosed with MS in 2013.

Abigail Bostwick

Abigail Bostwick pays $5,600 per month for her MS medication, and the out-of-pocket costs drain her family’s budget. (Courtesy of National MS Society)

“Our savings quickly drained. We’ve sold a lot of our things. We live paycheck to paycheck,” Bostwick said in aĀ press release. Like many other MS patients, sheĀ struggles to afford her medications and to navigate the complicated U.S. system of prescription medication insurance coverage.

“It is time for change,” saidĀ Cyndi Zagieboylo, the National MS Societyā€™s president and chief executive officer. “People with chronic illnesses need to have confidence that they’ll be able to get the life-changing medication they need.”

MS patients report that medicine prices are escalating fast and aggressively, raisingĀ out-of-pockets costs with them, thatĀ formularies ā€“ or lists of medications covered by an insurance plan ā€“ are confusing and inconsistent,Ā and that medicine coverageĀ approval processes areĀ complex and make access to necessary treatments difficult.

Because these challenges can delay starting or changing a medication, they can also be a cause of relapses orĀ Ā risk accelerating disease progression, and a cause of additional stress and anxiety ā€“ further burdeningĀ people dealing with a complex and unpredictable disease, the Society said.

ItĀ is encouraging the MS community to get involved and contact their representatives in governments or candidates running for public office, and ask them to support better access to medications. As the Society notes, medications can only change lives if theyā€™re available to those who need them, and should be affordable, with access that is simple and transparent.

“No single stakeholder has all the solutions,” Zagieboylo said, “we can only find the solutions together.”

More personal stories and a full list of the MS Society’s recommendations are available on its campaign webpage.