A “spoonie” is a term used by people with chronic illnesses. It stems from lupus blogger Christine Miserandino who explained her lack of energy using spoons.
How do you know if you’re a spoonie? We’ve scoured the Internet for some examples of what it’s like to be a spoonie and how it affects everyday life.
1. Christine Langager told The Mighty that she needed to wake up extra early to give herself enough time to pep talk herself out of bed.
2. Katie Cupcake knows all about the fatigue that spoonies experience. She spends all day trying to keep her eyes open, only to not be able to sleep when she goes to bed.
3. On a sadder note, fibromyalgiatreatmentgroup.com says you know you’re a spoonie when your friends stop calling to see if you want to do things.
MORE: Firefighter with MS has been on active duty for 25 years with the disease.
4. Adam Johnson tells But You Don’t Look Sick that he knows he’s a spoonie because he needs a nap after he gets up and takes a shower.
5. Regular sized purses are a thing of the past for spoonshares.com. She now carries a Mary Poppins-sized carpet bag to haul her supply of meds around.
6. Having your doctor as your No.1 on speed dial definitely makes you a spoonie according to fibromyalgiatreatmentgroup.com.
MORE: Explaining 35 of the most commonly used terms in multiple sclerosis.
yes…yes…yes….didn,t know there was a name for it…..just thought I was lazy. I have to plan my whole day around taking a shower. My dog loves that I am a ”spoonie”…..he gets to sit on my lap more [ since I have to sit down so much and have no energy ]
I’d like to know more about the Spoonie practice and how it can benefit people with Multiple Sclerosis. I recently heard about it and would also like to share this information with my Rehabilitation therapists
Thank you!!!!
Though I do not have MS, I thank you for this article. To think I’ve been a “spoonie” and didn’t know there was a name for it.