Woman With MS Talks About Her Crippling Condition

Canadian-born Ashley Berini was diagnosed with multiple sclerosis in 2013. The 33-year-old, who now lives in Australia, opened up to the Daily Mail to talk about how the disease has affected her life.

MORE: What is MS-related brain fog?

Along with the pain and fatigue associated with multiple sclerosis, Berini also suffers from sporadic numbness down one side of her body which can leave her unable to walk or talk.

She first experienced symptoms of the disease in 2009, when she suddenly lost vision in her right eye. She then embarked on a long journey to diagnosis.

Berini now knows that stress will trigger MS flares, which can lead to severe abdominal cramping and vomiting.  As well as trying to avoid stress, she maintains a very healthy lifestyle, following a Paleo diet and doing yoga and Pilates.

Berini is now trying to figure out whether or not she wants to freeze her eggs, as it’s likely she’ll need chemotherapy treatment in the future which could leave her infertile.

MORE: Tips for managing the MS hug.

Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

5 comments

  1. luis says:

    Far from getting better, Ms Berini has set up a fundraising page in the hope of getting the treatment Hematopoietic Stem Cell Transplantation (HSCT) she needs

    She doing Hsct but on this site they dont tell nothing about it
    Why?

  2. P. Longford says:

    Certainly, freeze your eggs. You may decide that bringing up kids, may be impossible, but it may give you an option. Things are changing, all the time. Do not write off having kids, just yet.

  3. Jana says:

    Proceed with caution.

    I had a similar unfortunate path to ms. I was diagnosed at age 30. I was progressing very quickly. My doctor suggested freezing my eggs. I thought it was a great idea since I didn’t want to have children at that very time. I started the Clomid injections to multiply my eggs to be frozen and reintroduced later via IVF. It all sounded good until I went from having numbness of my extremities to complete bedridden without any of my senses except for hearing. Yes, I went completely blind. The only option I had for survival was chemotherapy. At that point I was not making any sense with my speech and couldn’t communicate what my wishes were. My family opted for chemo. My uncle, a Harvard graduate and radiologist, devised a plan along with my neurologist from Northwestern in Chicago to dose just enough chemo stop the progression. I believe they consulted many doctors from all the major hospitals in Chicago as well as my uncles professors at Stanford and Harvard. I only required 3 doses of chemo. My doctor thought I would have to take it for a year. I slowly regained most of my senses that I had lost. I also got my period back the following month. I am a nurse. My background is critical care. I read a lot of published papers and now I concentrate on MS related ones. I came across one and I’m sure you or one of the readers can find it. It concluded that “some” women with MS who freeze their eggs who go through with the injections can progress very quickly. That is what happened to me.
    You are still young. You may not go through my experience. And many women do have the injections with no issues. I don’t want anyone to go through what I did. Get informed. Good luck to you.

    • Col. Richard Powell says:

      You sound like a HERO to me. My wife has – after 16 years with the wrong diagnosis – been diagnosed with PPMS and is now paraplegic with many complications…. I write as her husband and a retired Colonel. When I came back from a very long tour in Iraq I found Julia ignored by both normal and Social medical doctors and support. We live in the UK. I, apart from my normal role, have combat med experience. Have you got any suggestions. I cant get any viable solutions in Europe. But I have options in US (Via VA) or Israel. Last year on 9/11 my car was tampered with and I spent three months in a coma and 2 more months learning to walk and talk again. Honestly I don’t care what happens to me, but I DO care about Julia and anything that can help her! Any ideas? This location is like going back 100 years in terms of her therapy and care!

      Very best wishes to you and this is the first time I have posted anything on the net.

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