Search Results for: MSAA

October 18, 2018October 25, 2018

#ECTRIMS2018 – Role of Brain Atrophy in MS Progression Poorly Understood by Patients, MSAA Survey Finds

News

Although brain atrophy — the loss of brain volume — is an increasingly important measure in multiple sclerosis trials and treatment outcomes, MS patients have a limited understanding of ... Read more

June 29, 2018July 6, 2018

Updated ‘My MS Manager’ App Now Offers More Features, MSAA Announces

News

The Multiple Sclerosis Association of America (MSAA) recently launched a new version of the My MS Manager, a mobile app designed to provide convenient services to the multiple sclerosis ... Read more

June 18, 2018June 18, 2018

MSAA Expands Financial Aid Fund for MRI Scans to Meet Growing Demand

News

The Multiple Sclerosis Association of America (MSAA) announced that it will expand its MRI Access Fund to help meet the growing demand for magnetic resonance imaging (MRI) tests within the multiple ... Read more

March 5, 2018March 5, 2018

MS Progression Focus of MSAA Events, ‘Ask Experts’ Sessions for Awareness Month

News

Understanding multiple sclerosis (MS) progression will be the focus of the Multiple Sclerosis Association of America’s (MSAA) campaign for MS Awareness Month 2018. March has been recognized as MS Awareness Month since 2003. ... Read more

December 21, 2017

The MSAA on Helping MS Patients – Monday Through Sunday

In this video, the Multiple Sclerosis Association of America (MSAA) reminds everyone that people with MS don’t get a day off from the disease. They have to deal with multiple ... Read more

June 26, 2017June 26, 2017

MSAA Unveils New Print, Online Resources for Multiple Sclerosis Patients

News

The Multiple Sclerosis Association of America (MSAA) has released three new resources for people with multiple sclerosis (MS), available for free as both printed and online versions on MSAA’s website. According ... Read more

May 12, 2017May 21, 2018

MSAA’s Dr. Jack Burks Responds to Readers’ Questions About Ocrevus and Its Use

News, Ocrevus

Recently approved, Ocrevus (ocrelizumab) should now be available nationwide for patients prescribed the therapy. But as with any new treatment, concerns about safety and practical issues are on many ... Read more

March 2, 2017March 2, 2017

MSAA Releases Promotional Video to Mark Multiple Sclerosis Awareness Month

News

On a Monday in July, the Multiple Sclerosis Association of America (MSAA) gave Kathy, who loves to hike in the woods, a cooling vest that reduces heat stress — ... Read more

August 16, 2016August 16, 2016

MSAA Opens New Online Community Forum for MS Patients, Caregivers

News

The Multiple Sclerosis Association of America (MSAA) recently announced the official launch of My MSAA Community, a free online community forum supporting people with multiple sclerosis (MS), and their caregivers ... Read more

March 3, 2016March 3, 2016

MSAA Draws Attention to Specific Multiple Sclerosis Symptoms Each Week of March, MS Awareness Month

News

March is Multiple Sclerosis (MS) Awareness Month, and the  Multiple Sclerosis Association of America (MSAA) will be marking it with a campaign to educate and heighten public awareness of the ... Read more

May 18, 2015

MSAA Organizes Make a Splash Fundraising Event for Memorial Day

Multiple Sclerosis News, News

The Multiple Sclerosis Association of America (MSAA) is organizing a national fundraising campaign just in time for summer. The Swim for MS event will help the association fund activities and support the multiple sclerosis ... Read more

May 6, 2015May 6, 2015

MSAA Publishes 2015 MS Research Updates for Multiple Sclerosis Management

News

The Multiple Sclerosis Association of America (MSAA) recently published the latest MS Research Update both printed and online at mymsaa.org. This update is a comprehensive overview of research findings on FDA-approved disease-modifying ... Read more

August 3, 2018August 1, 2018

Healthcare Is Expensive, So Why Don’t We Comparison Shop?

Columns, The MS Wire - A Column by Ed Tobias

If you’re going to buy a car, do you limit your shopping to just one car dealer? If you need gas, do you drive past three inexpensive service stations ... Read more

July 12, 2018July 17, 2018

A Hot Mess: Heat Sensitivity and MS

Columns, Silver Linings - a Column by Jennifer Powell

I am a hot mess. No, really, I am a hot, sweaty, gel-pack-laden mess. My AC kicked it three hours ago; three hours before Orange County hit a record ... Read more

June 25, 2018June 28, 2018

MS News that Caught My Eye Last Week: A Genetic MS Link?, Spinal MRIs, MRI Payment Help, PPMS Study

Columns, The MS Wire - A Column by Ed Tobias

Researchers Discover How Key Genetic Risk Factor for MS Operates A genetic link to MS is something that some scientists have suspected for years. Now, there’s new research that ... Read more

June 21, 2018July 12, 2018

Webinar Focuses on Importance of Maintaining Independence for Progressive MS Patients

News

When a progressively debilitating disease like multiple sclerosis (MS) causes a patient to feel physically “wiped out” after a simple daily activity, such as a shower, it is of ... Read more

June 15, 2018June 13, 2018

Getting Help Paying for Your MRIs

Columns, The MS Wire - A Column by Ed Tobias

It’s not unusual for someone with MS to have an annual MRI exam. Sometimes it’s even semiannual. And it’s not cheap. According to the website Healthcare Bluebook, an MRI ... Read more

April 30, 2018April 30, 2018

#AAN2018 – New AAN Guideline Favors Advising Patients to Use DMTs Early in Disease Course

News

A new American Academy of Neurology (AAN) guideline recommends that multiple sclerosis (MS) patients in general be counseled to start treatment with disease-modifying therapies (DMTs) as early as possible. ... Read more

April 12, 2018April 25, 2018

The MS Alphabet: UTI, Vertigo, White Matter Lesions, and Other ‘U’ Through ‘Z’ Terms

Columns, MS in Moderation, a column by Tamara Sellman

Editor’s note: Tamara Sellman continues her series on the “MS alphabet” with this column referencing terms starting with the letters “U” through “Z.” This is the last post in ... Read more

March 27, 2018March 26, 2018

Moving Forward After MS Awareness Month

Columns, Patiently Awakened - A Column by Teresa Wright-Johnson

We are approaching the conclusion of National Multiple Sclerosis Awareness Month, but those of us with MS know that the responsibility to educate is unending. I was pondering what ... Read more

March 13, 2018March 12, 2018

Living Just for Today

Columns, Patiently Awakened - A Column by Teresa Wright-Johnson

Last week, I wrote about the incessant emotions of MS and chronic illness. This week, I will focus on living in the present moment. Remaining on a quest to ... Read more

March 6, 2018March 5, 2018

The Ride Doesn’t Stop: MS-related Emotions Revisited

Columns, Patiently Awakened - A Column by Teresa Wright-Johnson

“What is wrong with you?” I have been asked this question numerous times by significant people in my life. The most recent was a few days ago. The question ... Read more

February 27, 2018February 27, 2018

What’s Hot and What’s Not Among MS Therapies?

Columns, The MS Wire - A Column by Ed Tobias

The newest kids on the MS block, disease-modifying therapies (DMT) such as Genentech’s Ocrevus (ocrelizumab) and Sanofi Genzyme’s Lemtrada (alemtuzumab), are attracting a lot of interest these days. But, ... Read more

February 26, 2018

Chill Seeker: Tips for Reducing MS Anxiety

A whopping 43 percent of all people with MS have some type of anxiety disorder. Worse, according to the Multiple Sclerosis Association of America, “Anxiety is perhaps the most ... Read more

February 14, 2018February 13, 2018

The MS Balancing Act: Steady As We Go

Columns, MS in Motion - A Column by Mike Knight

Gait and balance issues and MS go together like peanut butter and chocolate. At least they do to me. In one way or another, they’ve been in the foreground of ... Read more

February 8, 2018February 7, 2018

Mercury Rising: Heat and MS

Columns, Silver Linings - a Column by Jennifer Powell

My favorite season is fall, which is almost tied with winter, then spring, and finally, summer. I love fall for being the beginning of the holiday season as well ... Read more

Pseudobulbar Affect in Multiple Sclerosis

With multiple sclerosis (MS), some people may experience a condition known as pseudobulbar affect — a sudden burst of uncontrollable laughter or crying, often with no triggering event. Pseudobulbar affect is ... Read more

February 5, 2018

MS Spasticity and You: Five Stretches You Should Try (and Why)

An estimated 85 percent of people with MS experience some type of spasticity due to the disease, according to a recent report (p/w) published in Multiple Sclerosis and Related ... Read more

February 2, 2018February 1, 2018

Affording Your MS … or Not, You’re Likely Paying Either Way

Columns, The MS Wire - A Column by Ed Tobias

Have you been in this Catch-22? You had great medical insurance when you were working. But, you’re not working anymore. Your insurance now comes with a $6,000 deductible and ... Read more

January 29, 2018January 26, 2018

Tips to Ease Anxiety, an Often Overlooked Effect of MS

Columns, Faith of the Mustard Seed - a Column by Debi Wilson

Since the onset of my MS, I have been acutely aware that stress and anxiety can wreak havoc on my body. Being anxious is not a comfortable feeling, whether ... Read more

November 22, 2017

10 Mobile Apps for Better Living With MS

Stop for a second and think about this: 2.3 billion smart phone users worldwide will download an estimated 268 billion mobile apps in 2017. Three quarters of adults in ... Read more

Therapies for Managing Fatigue in MS

Multiple sclerosis (MS) has a wide set of symptoms, which are variable and unpredictable. Fatigue is among the most common symptoms, affecting more than 80 percent of all patients. The causes of ... Read more

November 15, 2017November 15, 2017

3 Tips for Explaining MS to Others

Columns, MS in Motion - A Column by Mike Knight

Face it: Understanding MS isn’t easy — even if you have it. There’s no known cause, no cure, no predictability in progression, and while there are common symptoms and ... Read more

September 14, 2017September 13, 2017

There’s an App (Maybe Too Many) for That!

Columns, Engaging Thoughts

How many hours do the pharmaceutical companies think we have in our day? I ask because almost all of them have come up with very slick tools to use, ... Read more

September 8, 2017September 7, 2017

When Do MS Symptoms Become a Relapse?

Columns, The MS Wire - A Column by Ed Tobias

Am I having an MS relapse? I saw that question asked the other day on one of the social sites I follow. At first, I thought, “Gee, doesn’t everyone ... Read more

August 24, 2017August 23, 2017

MS Advocacy Resources are Many

Columns, Engaging Thoughts

Advocacy comes in many forms, and recently I wrote about what advocacy by individuals might look like. The other type of advocacy we have going for those of us ... Read more

June 7, 2017June 7, 2017

Cruising Toward Solutions for the Other MS — Motion Sickness

Columns, You've Got Some Nerves - A Column By Judy Lynn

This summer I will venture out on an Alaskan cruise with my mother and older sister. The beautiful trip through the Inside Passage is on our collective bucket list ... Read more

May 26, 2017May 26, 2017

#CMSC17 – MS Mobile Apps Link Clinicians and Patients, Improving Disease Management, Study Says

News

The use of multiple sclerosis (MS) mobile apps by patients and their clinicians encourages shared decision-making and helps patients improve their outcomes, finds a study presented at the 2017 Annual ... Read more

May 26, 2017May 26, 2017

#CMSC17 – Genentech Starts Site to Connect MS Patients and Caregivers with Resources

News

Genentech has rolled out a website to connect multiple sclerosis (MS) patients and caregivers with resources that can help them. The company unveiled GatherMS at the annual meeting of the Consortium for ... Read more

May 24, 2017May 25, 2017

Healthline Names MS News Today One of the Best Multiple Sclerosis Blogs of 2017

News

Healthline recently selected Multiple Sclerosis News Today as one of the Best Multiple Sclerosis Blogs of 2017, spotlighting its columns as “thoughts from experts and patients from all kinds of backgrounds” and ... Read more