Author Archives: BNS Staff

Cheryl Hile and her husband, Brian. Photo courtesy of Michael Moberly Day 9 of 31 This is Cheryl Hile’s story: My husband jokes he knew I was a real runner when I asked him at a 10K, “Is the course accurate?” I was running fast and having…

Photo courtesy of Heather Plummer-Goodrich Day 8 of 31 This is Heather Plummer-Goodrich’s story: Hello, my name is Heather. I am a nana of six beautiful grandchildren, a wife, and an ultra marathon runner. My mantra is: Never give up. Make adjustments, not excuses. Stay positive. When…

Photo courtesy of Dan Clarke Day 7 of 31 This is Heather Russell-Kay’s story: Hi! My name is Heather and I am an actor, teacher, blogger, and support volunteer. I was diagnosed with MS just over six years ago, and for me, it…

Photo courtesy of Sandra Costello Day 6 of 31 This is Dee DiFatta’s story: Being diagnosed with multiple sclerosis the day before my 22nd birthday was not something I expected or anticipated, but it has truly been a blessing. Navigating MS has taught me to slow down…

Photo courtesy of Lelainia Lloyd Day 5 of 31 Lelainia Lloyd is a patient advocate in Canada. These are her words: March is Neuromyelitis Optica (NMO) awareness month. NMO is a rare disease that is often mistaken for MS. Many NMO patients are…

Photo courtesy of Anita Alberto Photography. Day 4 of 31 This is Jen DeTracey’s story: It’s been over 10 years since I was diagnosed with MS.  Ironically, on the anniversary, I didn’t think about it. I realized a few days later…

A multiple sclerosis diagnosis is life-changing for patients as well as for their family members and caregivers. A sea of medical documents, endless lifestyle changes and, perhaps most difficult, coping with new physical limitations, can change your very sense of self. One fast-growing, free and anonymous mobile app, BelongMS, has…

Photo courtesy of Svetlana Didorenko Day 3 of 31 This is Alex Twersky’s story: My name is Alex Twersky, and I have worked with Overcoming MS for more than seven years, applying my marketing and communications experience to advancing our vision.

Photos courtesy of Sophie Brodie Day 2 of 31 This is Sophie Brodie’s story: MS is a label. Sometimes that label means something, but a lot of time it doesn’t. Almost two years ago — when I had lost some vision, some sensation, some balance, some mobility — a…

Photos courtesy of Hayley Crowther Day 1 of 31 This is Hayley Crowther’s story: When I look back at the year I got sick, I’d just celebrated my 30th birthday. I was living with my husband and 7-year-old son, had a job I loved and, just four weeks prior…

FFF Enterprises and BioNews Services, publisher of this website, announced today that both rare and orphan disease advocates are joining forces to provide patients with resources to help them connect as a community and continue to manage their health during this time when many are finding themselves alone.

An interactive event in Coral Gables, FL this weekend will give relapsing Multiple Sclerosis patients who live in the area access to best practices and therapeutic insights that can help them better manage the disease. The Coral Gables MS Exchange event will be held from 10:30 a.m. to 2:15 p.m. on…

http://multiplesclerosisnewstoday.com/wp-content/uploads/2015/10/ECTRIMS-Podcast-2-091015-8.32-pm.mp3   Read the articles mentioned in the podcast: #ECTRIMS2015 – Another Attendee Record #ECTRIMS2015 – “Vitamin D plays important role in MS inflammation.” – Jorge Correale #ECTRIMS2015 – “When you stop smoking you can decrease the risk of disease progression.” – Jorge Correale Discovering a New…

In an effort to access firsthand patient data as a means of improving healthcare and drug safety, the Food and Drug Administration (FDA) has announced a unique partnership with  PatientsLikeMe, an online network of 350,000 patients who have reported on their own personal experiences in living with over 2,500 different diseases. The…

Concert Pharmaceuticals, Inc. will announce their latest results from the Phase 1 data of CTP-354, a drug developed to treat spasticity — a chronic condition associated with patients with brain disorders, including Multiple Sclerosis — at the next American Neurological Association’s Annual Meeting in Baltimore, Maryland. The Phase 1 randomized,…

Researchers have recently discovered that the fatigue that patients with multiple sclerosis (MS) experience is not the same kind of fatigue that healthy people feel from time to time, nor is it caused by the same factors. The National Multiple Sclerosis Society reports that around 80% of people who suffer from…

Multiple sclerosis (MS) patients who are prescribed Tysabri have an increased risk to develop the rare, often fatal infection of the brain called progressive multifocal leukoencephalopathy (PML), according to a recent study. PML is caused by a common virus that infects blood cells and can be mobilized by popular RRMS drug Natalizumab,…

Questcor Pharmaceuticals, Inc. is a drug development company with a viable Multiple Sclerosis drug called H.P. Acthar® Gel, which is currently approved in the U.S. by the FDA for the treatment of acute exacerbations of multiple sclerosis in adults. However, in addition to developing and commercializing MS therapies, the…

The National Center of Neurology and Psychiatry, based in Japan, announced that they will initiate a 3-month clinical trial on 9 patients with multiple sclerosis, beginning in March. Multiple sclerosis is an autoimmune disease caused by mutations of lymphocyte immune cells, which attack and destroy a patient’s own nerve cells. Patients with multiple sclerosis typically…

Researchers from the Kessler Foundation have found that higher educational achievement reduces the negative impact of traumatic brain injury (TBI) on cognitive status. The study appeared in Archives of Physical Medicine & Rehabilitation. It was reported in the study that cognitive ability after experiencing TBI differs in individuals even when their injury levels were comparable. As…