Just over three months ago, one courageous woman had HSCT in Moscow. And I say she is brave not because she chose to have that treatment, but because she has agreed to share her story — and her progress toward recovery from MS — with you through Multiple Sclerosis News Today.
Julia Browning is going to let me tell you about her experiences, starting with her progress in the early months after the April procedure, and coming back to talk about how she is doing at months six and nine, as well as on the first anniversary of her stem cell transplant.
But, before we talk about recovery, let’s take a look at her life before traveling from her home in the Bahamas to Moscow.
Julia said: “My EDSS was five. I could walk about 800 meters, needing to rest afterwards. I had to hold a rail to ascend and descend stairs and did it very slowly. I had to sit to put on shorts or trousers and struggled with buttons. I hadn’t exercised in over a year because my fatigue was so bad. My balance was extremely bad before Moscow. I had to wear glasses to read. I could no longer hold my camera. I have always done my utmost to hide any bladder and bowel problems, but they were bad before Moscow. I would have daily accidents.”
Yes, relapsing MS was taking its toll. In fact, she has been diagnosed with MS not once but twice.
“I was diagnosed the first time right after my first son was born, I had optic neuritis and no doctor explained MS to me. I was fit, led a healthy lifestyle and ate correctly. I had no symptoms so I ignored the diagnosis because an MRI did not show anything wrong,” said Julia.
‘A second chance at life’
“After my second diagnosis, I immediately looked into the disease and the treatments and I told my husband and doctor that I wanted HSCT. It was not a difficult decision for me; I did not want to end up being dependent on anyone or be an embarrassment to my family. My neurologist told me not to do it because it was dangerous and not proven. My sons were nervous in case I would die, but they understood my reason for wanting to have it done.”
I asked, “How is life right now?” I wanted to know if her recovery from MS was underway.
She tried to smile but it would not come, because one of her sons needs an operation and her beloved 6-year-old dog, Baxter, is seriously ill.
“I’m not doing PT like other patients but rather getting back into my old exercise regime,” she said. “I emailed Dr. Fedorenko to find out how much I can exercise and if I can cause myself any problems. He has told me I am free to push myself.
“I am currently walking 13 kilometers on a cross-trainer and doing floor exercises, too. I am starting weights again, which he has advised I can do too. I also cycle — still only short distances because it makes my knees sore. I have always been an exercise junkie, so will continue to push myself to get back to my pre-MS fitness levels. I also intend to start swimming training after the holidays.
“I no longer require reading glasses. I can ascend and descend stairs with speed and no longer need to hold on. I can jump, which I haven’t been able to do for years. My balance is no longer an issue. I am able to use my camera again with no problem.
“And I haven’t had any bladder or bowel problems in over two months now. I haven’t had it checked yet but I think my EDSS is now 2.5,” she added. “I am extremely grateful to Dr. Fedorenko and his amazing team for giving me a second chance at life.”
What of the neurologist who told Julia not to have HSCT because it was dangerous and unproven? “He is now offering it in the UK,” she said.
Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this blog article are not those of Multiple Sclerosis News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to Multiple Sclerosis.