August 14, 2017 Social Clips by admin 4 Ways Ocrevus Can Improve Your Life Ocrevus was approved by the FDA at the end of March but the buzz hasnāt died down.Though there is someĀ trepidation, the MS community is incredibly excited about what the new “game-changing”Ā medication can do for patients all across the country. Here are just a few ways that Ocrevus can…
August 14, 2017 Social Clips by Marta Ribeiro 6 of the Most Common Symptoms of Chronic Fatigue If you suffer from a chronic illness likeĀ MS, then it’s highly likely that you’ll experience fatigue from time to time. Fatigue is different thanĀ just feeling tired, and generally it’s not something that can be fixed with an early night or by taking a little break. With tipsĀ from the pros atĀ …
August 11, 2017 Social Clips by Wendy Henderson 29 Tips to Help You Survive the Summer While Living With Multiple Sclerosis While most people enjoy the summer months, for those living with multiple sclerosis (MS), the warmer weather can bring a newĀ set of problems,Ā exacerbating symptoms and making life pretty uncomfortable. Keeping cool through the summerĀ heat can beĀ a challenge but there are ways you can make life a little easier. We’ve put…
August 10, 2017 Social Clips by Patricia Silva, PhD How a Lumbar Puncture Can Help Diagnose MS According to the MS Trust, a lumbar punctureĀ (also known as aĀ spinal tap) is a test thatĀ can be used to help diagnose multiple sclerosis (MS). During the procedure, some of the cerebrospinal fluid is removed and analyzed. A lumbar puncture takes about half an hour and is done under a…
August 9, 2017 Social Clips by Patricia Silva, PhD How Massage and Bodywork Is Used to Treat MS Patients MassagesĀ areĀ knownĀ toĀ relieveĀ pain, stressĀ andĀ helpĀ outĀ withĀ problemĀ areas. AccordingĀ toĀ theĀ National MS Society,Ā it’sĀ oneĀ ofĀ theĀ mostĀ well-knownĀ bodyworkĀ treatments.Ā ThereĀ areĀ severalĀ kindsĀ ofĀ massagesĀ thatĀ originatedĀ inĀ differentĀ countries ā belowĀ areĀ someĀ ofĀ theĀ mostĀ usedĀ today. MORE:Ā MassageĀ helps with MSĀ pain and fatigue TheĀ SwedishĀ massageĀ isĀ a bit more “traditional.” ItĀ usesĀ techniquesĀ suchĀ asĀ vibration,Ā kneading, and friction. TheĀ GermanĀ massageĀ usesĀ mostĀ ofĀ theĀ sameĀ techniquesĀ asĀ theĀ Swedish massage,Ā butĀ combinesĀ themĀ withĀ healingĀ baths.Ā KeepĀ inĀ mindĀ thatĀ ifĀ you’re sensitive to heat, thisĀ mightĀ notĀ beĀ the best optionĀ forĀ you. AcupressureĀ sounds likeĀ acupuncture, and that’s no mistake. This treatmentĀ isĀ aĀ ChineseĀ massageĀ thatĀ originatedĀ from acupunctureĀ andĀ usesĀ fingersĀ toĀ stimulateĀ theĀ sameĀ partsĀ ofĀ theĀ body as needles do. Shiatsu isĀ aĀ JapaneseĀ treatmentĀ that focuses on preventing conditions, not…
August 8, 2017 Social Clips by Patricia Silva, PhD How Chiropractic Therapy Can Help Multiple Sclerosis Patients Chiropractic therapy is a common form of treatment to try and help ease some of the physical symptoms associated with multiple sclerosis. According to the Multiple Sclerosis Society, the goal of chiropractic therapy is to restore normal function to the patient’s joints, focusing particularly on the vertebrae and the…
August 7, 2017 Social Clips by Wendy Henderson Jamie-Lynn Sigler Opens Up About Using Walking Sticks for MS The Sopranos’Ā actress Jamie-Lynn Sigler only recently shared that she’s been living withĀ multiple sclerosis (MS)Ā for 15 years, choosing to remain quiet about her health out ofĀ fear that it wouldĀ affect her career. Following her announcement, she won the support of multiple sclerosis sufferers all over the world and is now an advocate…
August 3, 2017 Social Clips by Wendy Henderson 10 Things to Know About Multiple Sclerosis in Children Although multiple sclerosis is more likely to be diagnosed in adults between the ages of 20 and 40, children can also develop the autoimmune disease. According to WebMD, between 8,000 and 10,000 children under the age of 18 are diagnosed with MS each year, and many more could be living with the condition but have yet to be diagnosed. Here are some more facts to know about multiple sclerosis in children. Often MS is diagnosed in children following the nerve disorder acute disseminated encephalomyelitis. Although MS often progresses slowly in children and teenagers, those who have an early onset of the disease may have physical disabilities earlier in life. Childhood MS often has more of an emotional effect on children, affecting school and social life as well as self-image. Symptoms of childhood MS are similar to adult MS, presenting problems with vision, balance, walking, bladder or bowel control, tingling or numbness, and tremors among others. Children with MS are also more prone to total lack of energy and seizures, which rarely affect adults with the condition. There is no cure for child-onset MS but there are treatments available to make life more comfortable and help relieve some of the symptoms of the disease. Corticosteroids can be used to reduce inflammation during flares, however, many may suffer from side effects. Plasma exchange and intravenous immunoglobulin can be used for children who cannot tolerate corticosteroids. Although there aren't any medications that have been approved by the FDA for MS patients under the age of 18 to use, children are usually prescribed the same medications as adults but with a reduced dosage. Treatment will often also include physical therapy, occupational therapy, and counseling.
August 3, 2017 Social Clips by Wendy Henderson 8 Tips for Dealing With the Heat When You Have Multiple Sclerosis Many people living with multiple sclerosis find that their symptoms become more pronounced when they are subjected to heat. With summer arriving in most parts of the country, many people with the condition will soon experience a temporary worsening of symptoms. (The same can happen if the person takes a bath or shower that's too hot.) According to verywell.com, the symptoms affected could include blurred vision, fatigue, tremors, numbness, cognitive abilities, and general weakness. Thankfully, the symptoms ease off when the weather cools down. According to the National MS Society, there are ways that those living with MS can help relieve heat sensitivity, including: Installing air conditioning (which may be tax deductible if recommended by your doctor) Staying indoors in extreme hot weather Wearing cooling products such as cooling vest, bandanas, and neck wraps Drinking icy drinks or eating popsicles Exercising in a cool swimming pool (under 85ĀŗF) Exercising outdoors in the early morning or late evening Exercising indoors with fans or air conditioning Taking a cool bath or shower Some people may find that if heat becomes too much of a problem that moving to an area with a more suited climate is the only way to find relief.
August 2, 2017 Social Clips by Wendy Henderson 4 Things to Know About Vitamin D and Multiple Sclerosis Vitamin DĀ is often talked about as an important vitamin that helps the body stay fit and strong, but it could also help in the fight againstĀ multiple sclerosis (MS).Ā While there still needs to be more research into the beneficial effects of vitamin D, there are some things to know about its…
August 1, 2017 Social Clips by Wendy Henderson 9 Ways to Manage Brain Fog One of the most frustrating symptoms of living with a chronic illness is brain fog. There are medications to treat many symptoms of chronic diseases, but sadly there isn’t yet a pill that takes away brain fog. However, there are ways to deal with it so patients canĀ minimize its effectsĀ and…
July 31, 2017 Social Clips by Wendy Henderson How Doctors Treat Spasticity in Multiple Sclerosis Spasticity is where the muscles become stiffened and often spasm due to nerve damage ā it's a common symptom associated with multiple sclerosis. Generally, the spasticity occurs in the arms and legs and may impact the way a person can move their limbs. According to WebMD, for some people living with MS, the spasticity may come and go ā particularly during the night ā while others may experience spasticity all the time. Weather can often affect the severity of spasticity, with many experiencing worsening symptoms during either hot or cold weather. Other things that can influence spasticity are infections and even wearing tight clothing. There are ways to treat spasticity, but the method will depend on how severe the spasticity is and the effect it has on the person's daily life. The first port of call is usually physical therapy, which will use exercises designed to stretch and elongate the muscles to help reduce stiffness. Occupational therapy involves the use of items that may help improve mobility, including casts, braces, walking sticks, or splints. If occupational or physical therapy has no effect on the spasticity, doctors may prescribe medications to relax the muscles or aid sleep if spasticity is worse at night. In severe cases, surgery may be required to cut away affected spinal nerves or tenotomy, which cuts tight tendons away from muscles to relieve tension.
July 25, 2017 Social Clips by Wendy Henderson What You Need to Know About Natalizumab (Tysabri) Natalizumab, also known by its brand name Tysabri, is a drug used in the treatment of relapsing forms of multiple sclerosis (MS). We've put together a list of things to know about the treatment using information from tysabri.com and the National MS Society. Natalizumab is administered intravenously, usually every 28 days. Patients are monitored for an hour after infusion for any adverse effects. It has been proven to slow the progression of many common MS symptoms. The drug can decrease the number of MS flares a person suffers. Reduction of relapse rate in Tysabri's clinical trial was more than 60 percent. Natalizumab works by prohibiting the binding of white blood cells to molecules in the spinal cord and brain, limiting the normal immune response. Tysabri was approved by the FDA in 2004 after just a year of data from a two-year clinical trial. People who take natalizumab are at a higher risk of developing the rare brain infection known as progressive multifocal leukoencephalopathy (PML), and the risk increases the longer you take the drug or if the patient has had the JCV virus. Those with other immune-compromising diseases are advised not to take natalizumab. Patients will undergo a risk assessment before beginning Tysabri treatment. Regular liver tests are conducted to determine white blood cell counts and check for liver damage. Common side effects include headaches, rashes, fatigue, pains in arms and legs, joint pain, nausea, vomiting, diarrhea, stomach pain, lung infection, nose and throat infections, depression, and vaginitis. Natalizumab is not advised for use during pregnancy or while breastfeeding.
July 25, 2017 Social Clips by Wendy Henderson Could High-Dose Biotin Be Used as a Treatment for Multiple Sclerosis? High-dose biotin, a B-complex vitamin, has been found to be an effective tool for slowing down multiple sclerosis (MS)Ā in two clinical trials by MedDay Pharmaceuticals. According to aĀ report on healthline.com, the vitamin also known as vitamin H could be used to treat both relapsing and progressive…
July 25, 2017 Social Clips by Patricia Silva, PhD How Your Genes Are Connected to Multiple Sclerosis YourĀ parents’Ā genes came together to create your genetic makeup, and that’s exactly what gives your bodyĀ directions onĀ how toĀ look,Ā both inside and out.Ā That covers everything fromĀ yourĀ hairĀ colorĀ to your eye color to health conditionsĀ like multiple sclerosis (MS). MORE:Ā Myelin dysfunction linked to gene mutations AccordingĀ to theĀ MSĀ Society,Ā thereĀ isn’tĀ a geneĀ that directlyĀ causesĀ MS,Ā but there are certainĀ genesĀ thatĀ may…
July 21, 2017 Social Clips by Wendy Henderson 9 Ways Multiple Sclerosis Affects Your Body From Head to Toe Multiple sclerosis (MS) is a chronic illness thatĀ has many different symptoms as it can affect any part of your body. No two people living with MS will experience the same symptoms but here are some of the ways that the condition can affect you from head to toe, according to…
July 20, 2017 Social Clips by Wendy Henderson Rare Symptoms of MS: 12 Things to Know About Trigeminal Neuralgia Trigeminal neuralgia is a term used for facial pain which begins in the trigeminal nerve. It usually occurs in people over the age of 50 and affects women more than men. However, it is more common in people who have multiple sclerosis (MS). We’ve put togetherĀ a list of facts about…
July 19, 2017 Social Clips by Wendy Henderson The October Club Announces Partnership With the Multiple Sclerosis Trust Mark Pumfey addresses House of Commons guests The October Club is a London-based committee of philanthropists who choose a different charity each year to work with. This year, the club (which is celebrating its 30th anniversary) chose the Multiple Sclerosis TrustĀ (MS…
July 18, 2017 Social Clips by Patricia Silva, PhD 10 Quotes to Help You When You’re Feeling Down We know dealing with multiple sclerosis (MS)Ā sometimesĀ feels like an uphill battle, both for the patients and theĀ caregivers. You feel like you’re not doing enough or as if the diseaseĀ is taking up all yourĀ time and attention. To help you on your journey, we’ve gatheredĀ a few quotesĀ we thought…
July 17, 2017 Social Clips by Patricia Silva, PhD 5 Areas of Research That Could Change the Future of MS Treatment Multiple sclerosis is a disease that affects the nervous system, disrupting messages between the brain and the rest of the body resulting in a range of physical symptoms. Researchers are constantly working to develop more effectiveĀ treatments, with the hopes that one day they’ll discover a cure. Ā According to theĀ MS…
July 14, 2017 Social Clips by Wendy Henderson 12 Ways Amazon’s Alexa Can Help People With Multiple Sclerosis “Alexa” is Amazon’s talking service that acts as a virtual personal assistant. According to tomsguide.com, as part of the company’s Echo speaker system, the voice-activated device can pick out music tracks for you, operate other electical devices, create to-do lists, and of…
July 13, 2017 Social Clips by Wendy Henderson Tips for Managing Cognitive Health With Multiple Sclerosis According to the National Multiple Sclerosis Society, around 65 percent of people living with the disease suffer from some cognitive issues ā most notably, memory, concentration and speed of processing information. MORE: Six of the best apps for managing chronic illness. If you find that…
July 12, 2017 Social Clips by Wendy Henderson Using Low-Dose Naltrexone as a Treatment for Multiple Sclerosis Using Low-Dose Naltrexone as a Treatment for Multiple Sclerosis Naltrexone is traditionally used for the treatment of addiction to alcohol or opioids because of its ability to block the action of the opioid or alcohol, making them less appealing to those who are addicted. Low-dose naltrexone (LDN) has also been used as a treatment for a variety of conditions including Alzheimer's disease, Parkinson's disease and amyotrophic lateral sclerosis (ALS) to help with pain relief ā but could it be useful in the treatment of multiple sclerosis (MS)? According to the National Multiple Sclerosis Society, a clinical trial in 2010 of 60 MS patients taking low-dose naltrexone found that it could improve quality of life for those suffering from various types of multiple sclerosis. The trial reported that areas such as pain management, mental health and cognitive function improved while patients were taking the drug. Another smaller trial in 2008 of 40 patients with primary-progressive MS who took LDN for six months found that it helped significantly in managing fatigue and depression, although there were side effects such as sleep disturbances, urinary tract infections and increases in liver enzymes. However, also in 2010, a 96-patient trial found no significant difference in quality of life between the group taking LDN and the placebo group, with the researchers concluding that research needed to be conducted over a longer period of time to properly assess the efficacy of low-dose naltrexone.
July 11, 2017 Social Clips by Patricia Silva, PhD Important Things to Remember If You Have MS If you or a loved one isĀ living with multiple sclerosis (MS), it’s important to rememberĀ that you can always try to make yourĀ situation better. If your doctor says something like “there’s no other option” or “we have nothing more to offer you,” find another doctor. Doctors are humans, too, and they…
July 10, 2017 Social Clips by admin These Lifestyle Hacks Will Help Anyone With a Chronic Illness If you have a chronic illness, you know just how much energy it takes to complete your daily chores and common household tasks. In this video from newlifeoutlook, JenniferĀ shares some practical tips toĀ help make life a little easier for anyone suffering from a chronic illness. MORE:Ā Nine ways…
July 7, 2017 Social Clips by Wendy Henderson 6 of the Best Apps for Chronic Illness Management Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…
July 6, 2017 Social Clips by Patricia Silva, PhD 5 Tools Used to Diagnose Multiple Sclerosis It’s never a good idea to jump to conclusionsĀ when trying to find a cause for any symptoms you might have. With multiple sclerosisĀ (MS), self-diagnosing is not the way to go. This diseaseĀ may cause permanent damage even in its earliest stages so it’s crucial to get it properly diagnosed as soon…
July 5, 2017 Social Clips by Patricia Silva, PhD How to Rediscover Intimacy When You Have MS Intimacy is often challenging, and sometimes uncomfortable, for anyone, but having a chronic disease likeĀ MS just adds another layer to a tough topic. According to the Multiple Sclerosis Association of America (MSAA) there are a number of things that an MS patient can think about in order to rediscover…
June 30, 2017 Social Clips by Wendy Henderson 4 Things to Know About Vitamin D and Multiple Sclerosis Vitamin DĀ is often talked about as an important vitamin that helps the body stay fit and strong, but it could also help in the fight againstĀ multiple sclerosis (MS).Ā While there still needs to be more research into the beneficial effects of vitamin D, there are some things to know about its…
June 29, 2017 Social Clips by Wendy Henderson Explaining Chronic Illness: An Alternative to the Spoon Theory If you are active on social media and have aĀ chronic illness,Ā you’ve probablyĀ come across the term “spoonie.” The word comes from a woman’s explanation of how she has to manage her energy levels each day. Ā As she was in a cafe at the time, she grabbed a bunch of spoons to…