Ocrevus was approved by the FDA at the end of March but the buzz hasn’t died down.Though there is some trepidation, the MS community is incredibly excited about what the new “game-changing” medication can do for patients all across the country. Here are just a few ways that Ocrevus can…
If you suffer from a chronic illness like MS, then it’s highly likely that you’ll experience fatigue from time to time. Fatigue is different than just feeling tired, and generally it’s not something that can be fixed with an early night or by taking a little break. With tips from the pros at …
While most people enjoy the summer months, for those living with multiple sclerosis (MS), the warmer weather can bring a new set of problems, exacerbating symptoms and making life pretty uncomfortable. Keeping cool through the summer heat can be a challenge but there are ways you can make life a little easier. We’ve put…
According to the MS Trust, a lumbar puncture (also known as a spinal tap) is a test that can be used to help diagnose multiple sclerosis (MS). During the procedure, some of the cerebrospinal fluid is removed and analyzed. A lumbar puncture takes about half an hour and is done under a…
Massages are known to relieve pain, stress and help out with problem areas. According to the National MS Society, it’s one of the most well-known bodywork treatments. There are several kinds of massages that originated in different countries — below are some of the most used today. MORE: Massage helps with MS pain and fatigue The Swedish massage is a bit more “traditional.” It uses techniques such as vibration, kneading, and friction. The German massage uses most of the same techniques as the Swedish massage, but combines them with healing baths. Keep in mind that if you’re sensitive to heat, this might not be the best option for you. Acupressure sounds like acupuncture, and that’s no mistake. This treatment is a Chinese massage that originated from acupuncture and uses fingers to stimulate the same parts of the body as needles do. Shiatsu is a Japanese treatment that focuses on preventing conditions, not…
Chiropractic therapy is a common form of treatment to try and help ease some of the physical symptoms associated with multiple sclerosis. According to the Multiple Sclerosis Society, the goal of chiropractic therapy is to restore normal function to the patient’s joints, focusing particularly on the vertebrae and the…
The Sopranos’ actress Jamie-Lynn Sigler only recently shared that she’s been living with multiple sclerosis (MS) for 15 years, choosing to remain quiet about her health out of fear that it would affect her career. Following her announcement, she won the support of multiple sclerosis sufferers all over the world and is now an advocate…
Although multiple sclerosis is more likely to be diagnosed in adults between the ages of 20 and 40, children can also develop the autoimmune disease. According to WebMD, between 8,000 and 10,000 children under the age of 18 are diagnosed with MS each year, and many more could be living with the condition but have yet to be diagnosed. Here are some more facts to know about multiple sclerosis in children. Often MS is diagnosed in children following the nerve disorder acute disseminated encephalomyelitis. Although MS often progresses slowly in children and teenagers, those who have an early onset of the disease may have physical disabilities earlier in life. Childhood MS often has more of an emotional effect on children, affecting school and social life as well as self-image. Symptoms of childhood MS are similar to adult MS, presenting problems with vision, balance, walking, bladder or bowel control, tingling or numbness, and tremors among others. Children with MS are also more prone to total lack of energy and seizures, which rarely affect adults with the condition. There is no cure for child-onset MS but there are treatments available to make life more comfortable and help relieve some of the symptoms of the disease. Corticosteroids can be used to reduce inflammation during flares, however, many may suffer from side effects. Plasma exchange and intravenous immunoglobulin can be used for children who cannot tolerate corticosteroids. Although there aren't any medications that have been approved by the FDA for MS patients under the age of 18 to use, children are usually prescribed the same medications as adults but with a reduced dosage. Treatment will often also include physical therapy, occupational therapy, and counseling.
Many people living with multiple sclerosis find that their symptoms become more pronounced when they are subjected to heat. With summer arriving in most parts of the country, many people with the condition will soon experience a temporary worsening of symptoms. (The same can happen if the person takes a bath or shower that's too hot.) According to verywell.com, the symptoms affected could include blurred vision, fatigue, tremors, numbness, cognitive abilities, and general weakness. Thankfully, the symptoms ease off when the weather cools down. According to the National MS Society, there are ways that those living with MS can help relieve heat sensitivity, including: Installing air conditioning (which may be tax deductible if recommended by your doctor) Staying indoors in extreme hot weather Wearing cooling products such as cooling vest, bandanas, and neck wraps Drinking icy drinks or eating popsicles Exercising in a cool swimming pool (under 85ºF) Exercising outdoors in the early morning or late evening Exercising indoors with fans or air conditioning Taking a cool bath or shower Some people may find that if heat becomes too much of a problem that moving to an area with a more suited climate is the only way to find relief.
Vitamin D is often talked about as an important vitamin that helps the body stay fit and strong, but it could also help in the fight against multiple sclerosis. While there still needs to be more research conducted into the beneficial effects of vitamin D, there are some things to know about its relationship with MS. It may slow the progression of multiple sclerosis: There is some evidence that suggests people with multiple sclerosis who have higher levels of vitamin D in their bodies are likely to suffer less severe symptoms. According to Web MD, a study noted the symptoms of a group of people with MS and then found that five years later, those which higher levels of vitamin D experienced fewer problems. While this shows promise, more research needs to be conducted into whether vitamin D can actually slow down the progression of MS. Other studies have found that vitamin D may be helpful in the prevention of the disease. Researchers discovered that children who spent a lot of time outside in the sunshine were less likely to develop the disease later in life. This is also backed up by the fact that the further away from the equator you live, the higher your risk of developing MS becomes, as the amount of sunshine diminishes. To date, no one is really sure what role vitamin D plays in protecting people against MS. Many think that vitamin D enhances the immune system, making it less likely for a person to develop an autoimmune disease like MS. How much vitamin D do you need to take? A simple blood test can determine your levels of vitamin D. The National Multiple Sclerosis Society suggests that people living with the disease get between 200 and 600 IUs (international units) a day. How can you improve your vitamin D intake? You can either take a supplement (if recommended by your healthcare team), spend 15 minutes each day in the sun, or eat more food containing vitamin D such as oily fish, beef liver, cheese, eggs and foods fortified with vitamin D such as cereals, milk and orange juice.
One of the most frustrating symptoms of living with a chronic illness is brain fog. There are medications to treat many symptoms of chronic diseases, but sadly there isn’t yet a pill that takes away brain fog. However, there are ways to deal with it so patients can minimize its effects and…
Spasticity is where the muscles become stiffened and often spasm due to nerve damage — it's a common symptom associated with multiple sclerosis. Generally, the spasticity occurs in the arms and legs and may impact the way a person can move their limbs. According to WebMD, for some people living with MS, the spasticity may come and go — particularly during the night — while others may experience spasticity all the time. Weather can often affect the severity of spasticity, with many experiencing worsening symptoms during either hot or cold weather. Other things that can influence spasticity are infections and even wearing tight clothing. There are ways to treat spasticity, but the method will depend on how severe the spasticity is and the effect it has on the person's daily life. The first port of call is usually physical therapy, which will use exercises designed to stretch and elongate the muscles to help reduce stiffness. Occupational therapy involves the use of items that may help improve mobility, including casts, braces, walking sticks, or splints. If occupational or physical therapy has no effect on the spasticity, doctors may prescribe medications to relax the muscles or aid sleep if spasticity is worse at night. In severe cases, surgery may be required to cut away affected spinal nerves or tenotomy, which cuts tight tendons away from muscles to relieve tension.
Natalizumab, also known by its brand name Tysabri, is a drug used in the treatment of relapsing forms of multiple sclerosis (MS). We've put together a list of things to know about the treatment using information from tysabri.com and the National MS Society. Natalizumab is administered intravenously, usually every 28 days. Patients are monitored for an hour after infusion for any adverse effects. It has been proven to slow the progression of many common MS symptoms. The drug can decrease the number of MS flares a person suffers. Reduction of relapse rate in Tysabri's clinical trial was more than 60 percent. Natalizumab works by prohibiting the binding of white blood cells to molecules in the spinal cord and brain, limiting the normal immune response. Tysabri was approved by the FDA in 2004 after just a year of data from a two-year clinical trial. People who take natalizumab are at a higher risk of developing the rare brain infection known as progressive multifocal leukoencephalopathy (PML), and the risk increases the longer you take the drug or if the patient has had the JCV virus. Those with other immune-compromising diseases are advised not to take natalizumab. Patients will undergo a risk assessment before beginning Tysabri treatment. Regular liver tests are conducted to determine white blood cell counts and check for liver damage. Common side effects include headaches, rashes, fatigue, pains in arms and legs, joint pain, nausea, vomiting, diarrhea, stomach pain, lung infection, nose and throat infections, depression, and vaginitis. Natalizumab is not advised for use during pregnancy or while breastfeeding.
High-dose biotin, a B-complex vitamin, has been found to be an effective tool for slowing down multiple sclerosis (MS) in two clinical trials by MedDay Pharmaceuticals. According to a report on healthline.com, the vitamin also known as vitamin H could be used to treat both relapsing and progressive…
Your parents’ genes came together to create your genetic makeup, and that’s exactly what gives your body directions on how to look, both inside and out. That covers everything from your hair color to your eye color to health conditions like multiple sclerosis (MS). MORE: Myelin dysfunction linked to gene mutations According to the MS Society, there isn’t a gene that directly causes MS, but there are certain genes that may…
Multiple sclerosis has many different symptoms, as it can affect any part of your body. No two people living with MS experience the same symptoms, but here are some of the ways that the condition can affect you from head to toe, according to healthline.com. Brain: Cognitive issues such as brain fog, memory and concentration problems are common for people living with MS, and many experience vertigo or dizziness. In rare cases, patients may also suffer from tremors or seizures. Eyes: Vision problems are often one of the first signs of MS. Double vision, blurred vision and eye pain can come on suddenly, but in most cases, they are temporary and are due to inflammation of the muscles around the eye and can be rectified with medication. Ears: In rare cases of MS, damage to the brainstem may result in hearing problems or deafness. Again, the majority of cases are temporary but some may suffer permanent damage to hearing. Mouth and throat: Around 40 percent of people living with MS may experience problems with speech, usually slurred speech or trouble articulating. Some may also have trouble controlling the volume of their speech. Rarer still, some people may experience problems with swallowing which can be serious as it can lead to choking. Speech and language therapists can help with both speech and swallowing problems. Arms and legs: The limbs are most likely to be affected by multiple sclerosis, with patients suffering from a variety of ailments such as pain, numbness, and tingling. Both fine and gross motor skills are involved as hand-to-eye coordination may be affected and many will suffer from balance problems or have difficulty walking as the disease progresses. Bladder and bowel: Nerve damage can lead to problems controlling the bladder and bowel. Bladder problems are extremely common in MS, affecting around 80 percent of patients. Bowel problems such as constipation, diarrhea and lack of bowel control can sometimes be maintained through diet and exercise but in some cases, medication or surgery may be required. Reproductive system: There is no evidence that suggests MS affects fertility in men or women. And for women, many find that their MS goes into remission during pregnancy. However, between 20 percent and 40 percent will relapse after they have given birth. Sexual dysfunction is common in MS. This could be due to a variety of reasons both physical and emotional. Nerve damage, fatigue, general pain and the effects of depression can all have an effect on a person's libido. However, these can often be overcome with some medication or a little bit of planning. Skeletal Structure: The regular use of steroids and lack of exercise puts multiple sclerosis patients at a higher risk of osteoporosis. Exercise is important to help keep bones strong and healthy and to avoid excess bone density loss. People with multiple sclerosis are also more likely to be deficient in vitamin D, which plays a vital role in bone health. Heart: Researchers have discovered that women with MS are more likely to suffer from cardiovascular problems than those without the condition. Regular exercise and a good diet are essential to help avoid problems such as stroke, heart disease or heart failure.
Trigeminal neuralgia is a term used for facial pain which begins in the trigeminal nerve. It usually occurs in people over the age of 50 and affects women more than men. However, it is more common in people who have multiple sclerosis (MS). We’ve put together a list of facts about…
Mark Pumfey addresses House of Commons guests The October Club is a London-based committee of philanthropists who choose a different charity each year to work with. This year, the club (which is celebrating its 30th anniversary) chose the Multiple Sclerosis Trust (MS…
We know dealing with multiple sclerosis (MS) sometimes feels like an uphill battle, both for the patients and the caregivers. You feel like you’re not doing enough or as if the disease is taking up all your time and attention. To help you on your journey, we’ve gathered a few quotes we thought…
Multiple sclerosis is a disease that affects the nervous system, disrupting messages between the brain and the rest of the body resulting in a range of physical symptoms. Researchers are constantly working to develop more effective treatments, with the hopes that one day they'll discover a cure. According to the MS Society UK, MS research is moving quickly in a number of different areas. 1. Stem Cell Therapy Due to stem cells' ability to self-renew, they have the potential to help MS patients. A greater understanding of the myelin-producing stem cells in the brain could lead the way to treatment promoting myelin repair. MS patients suffer from myelin loss, resulting in exposure of nerve fibres which can lead to some of the disabling symptoms associated with the disease. 2. Genetics Although not the only contributing factor, genetics do play a role in the development of MS. If scientists understand more about the inheritance factors of the disease, they can develop strategies to help prevent people from developing MS or tailor treatments depending on the patient's genes. 3. Vitamin D Our bodies need vitamin D to absorb nutrients, particularly calcium which promotes healthy bone growth. MS is more common in countries further from the equator, meaning fewer hours of sunlight and lower levels of vitamin D. Recent research is trying to determine the link between vitamin D and MS, to find out if vitamin D supplements could be used as an effective method of treatment for MS. 4. Myelin Repair To prevent MS, there needs to be a treatment that can repair the myelin loss MS patients suffer. Myelin is the protective coating around the nerve cells, and without it, the nerve is exposed to damage, exacerbating the progress of the disease. There are a number of myelin research projects underway to help develop a treatment that could stop the progression of MS. 5. Neuroprotection The latest research has indicated that protecting nerve cells from damage could be a potential strategy to prevent or slow down the progression of MS. The idea would be to develop drugs to protect nerve cells from damage which could slow down or ultimately stop the progression of MS. Experts are currently researching a number of potential treatments which could be used as MS therapies in the future.
“Alexa” is Amazon’s talking service that acts as a virtual personal assistant. According to tomsguide.com, as part of the company’s Echo speaker system, the voice-activated device can pick out music tracks for you, operate other electical devices, create to-do lists, and of…
According to the National Multiple Sclerosis Society, around 65 percent of people living with the disease suffer from some cognitive issues — most notably, memory, concentration and speed of processing information. MORE: Six of the best apps for managing chronic illness. If you find that…
Using Low-Dose Naltrexone as a Treatment for Multiple Sclerosis Naltrexone is traditionally used for the treatment of addiction to alcohol or opioids because of its ability to block the action of the opioid or alcohol, making them less appealing to those who are addicted. Low-dose naltrexone (LDN) has also been used as a treatment for a variety of conditions including Alzheimer's disease, Parkinson's disease and amyotrophic lateral sclerosis (ALS) to help with pain relief — but could it be useful in the treatment of multiple sclerosis (MS)? According to the National Multiple Sclerosis Society, a clinical trial in 2010 of 60 MS patients taking low-dose naltrexone found that it could improve quality of life for those suffering from various types of multiple sclerosis. The trial reported that areas such as pain management, mental health and cognitive function improved while patients were taking the drug. Another smaller trial in 2008 of 40 patients with primary-progressive MS who took LDN for six months found that it helped significantly in managing fatigue and depression, although there were side effects such as sleep disturbances, urinary tract infections and increases in liver enzymes. However, also in 2010, a 96-patient trial found no significant difference in quality of life between the group taking LDN and the placebo group, with the researchers concluding that research needed to be conducted over a longer period of time to properly assess the efficacy of low-dose naltrexone.
If you or a loved one is living with multiple sclerosis (MS), it’s important to remember that you can always try to make your situation better. If your doctor says something like “there’s no other option” or “we have nothing more to offer you,” find another doctor. Doctors are humans, too, and they…
If you have a chronic illness, you know just how much energy it takes to complete your daily chores and common household tasks. In this video from newlifeoutlook, Jennifer shares some practical tips to help make life a little easier for anyone suffering from a chronic illness. MORE: Nine ways…
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…
It’s never a good idea to jump to conclusions when trying to find a cause for any symptoms you might have. With multiple sclerosis (MS), self-diagnosing is not the way to go. This disease may cause permanent damage even in its earliest stages so it’s crucial to get it properly diagnosed as soon…
Intimacy is often challenging, and sometimes uncomfortable, for anyone, but having a chronic disease like MS just adds another layer to a tough topic. According to the Multiple Sclerosis Association of America (MSAA) there are a number of things that an MS patient can think about in order to rediscover…
Vitamin D is often talked about as an important vitamin that helps the body stay fit and strong, but it could also help in the fight against multiple sclerosis (MS). While there still needs to be more research into the beneficial effects of vitamin D, there are some things to know about its…
If you are active on social media and have a chronic illness, you’ve probably come across the term “spoonie.” The word comes from a woman’s explanation of how she has to manage her energy levels each day. As she was in a cafe at the time, she grabbed a bunch of spoons to…
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