This topic contains 1 reply, has 2 voices, and was last updated by  Judy Graham 1 month ago.

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  • #18415
     John Connor 
    Keymaster

    Not the most thrilling title but just been thanked by King’s College London’s PHD research for taking part in this study.

    This initial phase of the study has been completed and excerpts are reported here below for your information.
    Findings
    1. 1] People living with MS who tend to interpret ambiguous situations in a negative fashion also reported being more dissatisfied with their current treatment plan
    2. 2]It was also found that over half of the people with MS (54%) experience clinically significant levels of anxiety, and that this anxiety is related to an adversity of uncertainty, worry levels, effectiveness and ease of treatment plan and fatigue levels.

    Personally I’m not sure what an ‘ambiguous situation’ is. If there’s a tank driving down the road is it being driven by the army, an enthusiast off to a military festival, stolen by an AWOL soldier who will now run amok or a Russian invasion that I’ve just spotted?

    If you’re part of the 54% ‘who tend to interpret ambiguous situations in a negative fashion also reported being more dissatisfied with their current treatment plan’ speak up here. This not an ambiguous request!

    If like me your not negative about it be positive and  speak out!

    Got you both there – perhaps I should start being a PHd student….

    • This topic was modified 1 month ago by  John Connor.
  • #18429
     Judy Graham 
    Participant

    <p style=”text-align: center;”>I have found it’s all too easy to slip into negativity when MS gets worse and you don’t know what the future holds. Easy to say ‘life is full of uncertainty anyway’. It doesn’t help. If you have Progressive MS, no drugs suitable (at least not in UK), although I read that in US that Disease Modifying Drugs doled out regardless. Not sure how that works?  My only way to relieve anxiety/fear of future is to stick rigidly to a lifestyle program. I do mix of Overcoming MS (Jelinek) and Wahls Protocol. It helps a lot with all MS symptoms.</p>

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