This topic contains 16 replies, has 5 voices, and was last updated by  Jilleen Verina 2 months, 4 weeks ago.

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  • #15111
     Ed Tobias 
    Keymaster

    I’m scootering over to the gym after I write this to do some exercising. Right now I can do 4 or 5 minutes on a recumbent bicycle and  I’m trying to improve that, little by little. Then I do some upper body resistance exercises, finishing with some sit-up type crunches to help my core muscles.

    Have you tried to exercise? What things do you do to try to stay in shape?

    Ed

  • #15112
     Debi Wilson 
    Member

    Ed, I also ride a recumbent bike, It’s taken me quite a while to build up to, but I can do 30 minutes at once.  I can’t do it every day, only twice a week. I have found, even if I do it 10 minutes and try to do it every day, I can’t. My legs are too affected and they have to have time to rest. I also do, exercises my physical therapist has given me.  I can lay on the bed and do them with the resistance band and rubber ball.  They focus a lot on my core to help with my balance. As with the bike, I am limited in how often I can do them. But, I feel  better physically and mentally and when I do exercise.  I am sure you will reap the benefits also , good for you!

    • #15123
       Ed Tobias 
      Keymaster

      I definitely feel better when I’m doing some sort of exercise, Debi. Like you, I can’t do it everyday. When I’m here in  Florida, though, I’m pretty good about swimming or walking in the pool if it’s a day when I’m not exercising.

  • #15118
     Jilleen Verina 
    Participant

    ok, I’ll be totally honest here like I am everywhere.  I do not exercise, not ever.  My jobs kept me fit but now I reject and have no desire to exercise as I believe it’s hardly going to help and I get no enjoyment out of it, so why bother.  I know what you will be thinking, but exercise helps, no it doesn’t in my mind.

    I just learnt that milk isn’t good for us, we were all brought up to believe milk is good for our bones, well it’s only good for calves, go figure.  We are all lied to about everything since birth, so I am a non believer about most things.  And my belief system is based on my experiences, of which I am only truly guessing.  And that has to be good enough for me.

    Jilly.

    • #15124
       Ed Tobias 
      Keymaster

      Jilly,

      I’m sorry to hear you think that everyone “is lied to about everything” their whole life. It must be difficult to feel that way. And if exercise isn’t your thing, so be it. I can only tell you that I feel a lot better, physically and mentally, when I exercise…though if I stop it takes concerted effort to resume.

      As for milk…I hate the stuff! Always have. 🙂

      Ed

  • #15121
     Jacqueline 
    Participant

    I once walked daily for miles, done yoga, Pilates and my favourite…Tai Chi Chuan, but the only exercise I do now is going from one end of my home to the other several times a day to the loo for a bladder emptying….I am also not going to give in  with a fight, nor give up my feet and legs as long as I can keep going on them and keep my body moving, and at times this is getting harder, they become heavy yet jelly wobbly like, other times manageable to a limit…

    And no I do not plan on doing any further yoga, Pilates or definitely not any Tai-Chi, I would rather remember them as I once could do them, not the shambles I would be doing them now if I tried…I would rather leave those good memories, good times where they belong, in the past…

    Jackie…

    • This reply was modified 4 months, 2 weeks ago by  Jacqueline.
    • #15125
       Ed Tobias 
      Keymaster

      That’s too bad, Jackie. I can certainly understand how you feel. I haven’t been able to play tennis or ski for decades, and I do miss both. But, rather than live on those pleasant memories, my enjoyment now comes from exercises that I can do sitting down or in a swimming pool. I get nearly as much enjoyment and it costs a lot less!  🙂

      Ed

       

  • #15127
     Jacqueline 
    Participant

    Oh yes, I once also enjoyed swimming at our then local sports centre but my body shape has now changed I know I would be more self conscious of it as I now have the classic MS bending forwards, I just dont hold myself- my body, like I used to…my legs and feet have still that swollen look about them ( Oedema ) although my ankles have now improved somewhat and are now looking more like ankles, not sure what I done to at least rectify those…either it was the dry skin ankle brushing, the Epsom salts foot soaks, the alternating of teas ( caffeinated and de-caffeinated ) or drinking more water during our last dry and hot summer, but whichever one it was, it worked…

     

    Jackie…

    • This reply was modified 4 months, 1 week ago by  Jacqueline.
  • #15130
     Jacqueline 
    Participant

    Meant to have added, bent over and shuffling my feet like a typical typecast-ed ” old lady ” and I am only 67 plus 10 months, what will I be like when I get old…Ok joking and humour put aside…but this is me now when people who are older than me are more fitter, more energetic…Oh dear, I am sounding like a real grouch…

  • #15153
     Jeanine Thiede 
    Participant

    Ed Tobias, I work on my core and stretches on my legs, I try to work on my arms but I have been getting a lot of pain as of late. I have a gym in my garage. I wish I had a bike. I can not do much on my legs as Debi also mentioned. I find if I don’t anything, my legs are harder to deal with. I do 40 setups every other day along with weight work out on my core. I just keep gaining weight and eating less and less and still can’t seem to get the weight off. I have this machine, I don’t know what it is called but you sit on it and it has peddles, it stretches the legs nicely and crunches the belly. I have to say, it took me some time to start working out, I started on my diet first. I got off dairy, went to almond milk, I use olive oil instead of butter, no more bread or cheese. I loved sour cream. I don’t miss any of these things now. I have added berries, oranges everyday along with supplement vitamins. I will work out as long as my body allows me too. I have to use a walker when my days have been busy. I don’t want to end up in a wheelchair. I know it is only in time.

    • #15176
       Ed Tobias 
      Keymaster

      Wow, Jeanine, it sounds as if you’re doing more than me.

      Whether or not it results in weight loss, the stretching and crunching have to be helping your overall well being.

      Keep it up!

      Ed

  • #15156
     Jacqueline 
    Participant

    Same here, my right leg is so heavy to lift up by itself…A  couple of months ago at one of my regular two MS monthly social gathering evenings we had a lady come in to take us through some very easy and basic exercises to a fun story she put together which made the exercise more fun as we had to do the hand and foot movements of driving a car, the wheel, the brakes, then showing that the driver of the car in front had gotten us angry as we shake our fist at it, it was all down to movements of our arms, and legs but oh, how I struggled to lift my right leg, same as when I try to get myself into the car,( an actual car that takes me there and brings me home, )  I simply have to lift it in by picking it up as I know other MS’ers have to also do…

    • This reply was modified 4 months, 1 week ago by  Jacqueline.
  • #15161
     Jilleen Verina 
    Participant

    I don’t have the desire to exercise, you either have it or you don’t.  I can be my worst enermy and I still smoke, I smoke because I am bored.  I have been bored most of my life lol.  I find life very predictable as if I have been here before. Smoking is a slow suicide.  I have never been married, I have no children, all I have is myself and I am not that impressed with myself.  I feel guilty that I am time rich and I waist it.  It always comes back to desire, or lack there of.  This is how it is for me.  I doubt I will ever get past lack of desire.  But who knows, if I do, you all will be the first to know.

    Jilly Pp.ms

  • #15167
     Jacqueline 
    Participant

    Jilly…

    …there was a time ( way before my MS ) I would have told anyone who was thinking on joining a gym in trying to lose  weight…” dont waste your money joining a gym, you have a pair of good legs, get out there and walk, walking is free…” well how I am now eating my words, I never in a million years thought that one day my every day ( free ) walking would be taken away from me through an illness such as MS…oh yes of course I knew as we get into old age it is natural to have such things as hip-knee replacements, arthritis – rheumatism and other old age wear and tears…all part of our normal ageing process. but this was something that just crept up on me, the last thing I would have thought of ever suffering but hey, here it is….

    I too have never been married but I do have one daughter coming up to 50, a grandson almost 30, and now a great grandchild 3 who I have yet to meet, as me and my daughter are now estranged – again…Oh well, such is life…life never turns out the way we expect it, does it – who said life was meant to be perfect?

    • This reply was modified 4 months, 1 week ago by  Jacqueline.
  • #15177
     Jilleen Verina 
    Participant

    Hey Jacqueline,  sorry to hear your estranged from your daughter, someone has to make the first move to bring you two back together.  So I put that in your hands, as I only know you.   Life is way too short to hold grudges.  Good luck.

    I also never ever expected to get this kind of illness, heart attacks and cancer is in my family, not MS.  Not in a million years as you say.  Yip, here we are, just like that.

    We I get to a retirement home, I just may find the kind man I have been searching for most of my life.  There’s still time lol.

    Jilly Pp. ms

  • #15178
     Jacqueline 
    Participant

    Jilly…

    …when I told my daughter I had MS along with the possibility of cancer ( I had just undergone a Hysteroscopy three weeks after being told I had PPMS, and still awaiting the result, ) she left me a nasty telephone message calling me a selfish b***d because in her words, ” I was passing my illness onto her, her son ( my grandson) and his soon to be baby…( my great grandchild…)  she never even cared that I might have had cancer, thankfully I was told I was clear apart from polyps which were taken out…

    I have learnt the hard way…I now look after number one, me..

    • This reply was modified 4 months, 1 week ago by  Jacqueline.
    • #16155
       Jilleen Verina 
      Participant

      ((((Jackie)))) omg, that’s really sad to hear.  I am really feeling for you after reading your words.  And yes put yourself first.  You matter to you, like I matter to me.  all we truely have is ourself.

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