Forum Replies Created

  • ann-m

    Member
    November 21, 2019 at 7:33 pm in reply to: When did you know something was wrong? What was your first MS symptom?

    I believe the Lyme Disease triggered the MS.

  • ann-m

    Member
    November 21, 2019 at 7:15 pm in reply to: When did you know something was wrong? What was your first MS symptom?

    I was always tired.  I was diagnosed with Lyme Disease so I attributed a lot to that, the tiredness, the aches and pains the clumsiness etc. Years later, after I was supposedly clear of the Lyme and that was past, I had numbness in my face and my regular Dr sent me to a neurologist that did testing and spinal tap, and they diagnosed MS.

    I have a question for everyone…bad spinal tap? I now have a lump on my spine where tap was done, the lump was small for years, now larger and has not changed appearance or size for years, it’s been over 10 years, any problems due to that?

    Thanks in advance.

     

     

     

  • ann-m

    Member
    November 12, 2019 at 1:04 pm in reply to: Multiple sclerosis and swelling

    I too suffer from bad edema. Feet are huge! I can take water pills either OTC or prescription to help alleviate, but then the problem is having to get to the bathroom in time.  Movement is hard to do.   Each leg must weigh 25 lbs each! Does anybody have any recommendation for shoes or slippers to house these things? TIA

  • This is exciting news.

  • ann-m

    Member
    April 23, 2019 at 6:31 pm in reply to: Have you experienced weight gain or loss since your MS diagnosis?

    Hi, I purposely started Nutrisystem, because I knew I was gaining weight not being that active and all, lost 30lbs! Then gained 1/2 back :(, so I am starting it again. Not giving up on me!

  • ann-m

    Member
    March 20, 2019 at 10:12 pm in reply to: Do you get dry mouth?

    YES!! Oh it is awful!  My poor husband. My mouth is so dry some mornings. Medicines have a lot to do with it. I know the nights I take Baclofen close to bedtime it is bad. It can’t be good for the teeth?

  • ann-m

    Member
    February 4, 2019 at 9:19 pm in reply to: Have you had a lumbar puncture to help diagnose your MS?

    Yes, I had one. Nervous as heck when I had it, yet it did confirm diagnosis. Took me 2 days to recoup (I was the fool that went back to work afterwards).  I’ll never forget my spinal tap, I have a permanent scar, lump on my back, thanks to the idiot dr. (don’t see him anymore).

     

     

     

     

  • ann-m

    Member
    December 29, 2018 at 5:12 pm in reply to: What is the first thing you would do if you were free from MS?

    I’d take a walk around the neighborhood and take in the sights and fresh air, but when it gets warmer, I’d go to the beach and just walk along the shoreline.  Would love to get back onto a beach.

  • ann-m

    Member
    November 15, 2018 at 9:31 pm in reply to: What has MS taught you about yourself?

    Friends that I thought were ‘forever friends, turned out NOT to be (when things got real, they went)  and I am stronger than I thought I was.

  • ann-m

    Member
    July 11, 2018 at 5:19 pm in reply to: Does the summer heat keep you housebound?

    YES! I can’t stand the heat (and the intense cold for that matter!)  Basically I stay close to home in the summer and the winter months…boring! The Spring and the Fall are my seasons to enjoy :).

     

  • ann-m

    Member
    November 16, 2019 at 10:09 pm in reply to: Multiple sclerosis and swelling

    Hi Mary, Isn’t it fun?  What slippers do you get? Any interest in opening up a shoe design business? lol