Carla Epps
Forum Replies Created
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Hello Ed. I read your experience and it sounded all too familiar to something I experienced a few years ago. I was having labored breathing and not able to take deep breaths in and out. It was a time when I was having increased neurological symptoms. Both my primary care physician and my neurologist at the time were concerned it was a function of my MS. I was referred to a pulmonologist who ran a series of tests and concluded that it was asthma. I was put on an inhaler for 1-2 months and was able to fade it out once the season changed…thankfully. To think that my MS was considered a possible culprit was terrifying. The journey continues…
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Hello there! I’ve had 4 full doses of Ocrevus so far and I have to say it has helped significantly with my fatigue and strength, particularly in my upper body. As far as my lower extremities, it has allowed me to start conditioning them. I’m hoping that Ocrevus coupled with Physical Therapy will allow for further improvements in hips, legs and feet. Time will tell. I’m viewing Ocrevus as an “In the meantime” therapy as I watch and wait for Stem Cell Research to continue progressing.
Back to Ocrevus, its effectiveness becomes clear to me the month before I’m due for an infusion because the weakness & fatigue resurface. My MS team has moved my infusion up a month earlier for the next one so I’ll see how that goes. I’ll continue to keep you all posted.
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Bananagrams is my favorite!!!! I also like headbandz which I play frequently with my children.
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I’d go hiking with my kids!
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Yes Debi, I most certainly will.
Thank you for sharing Ed! That is encouraging to hear.
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- I’ve had 3 infusions of Ocrevus and find this news congruent with my experience. In fact, I’ve found that it not only preserves but strengthens my upper extremities. My lower extremities, not so much. I will continue to monitor. I would welcome other’s experience on Ocrevus
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Pardon me as I learn to navigate through these forums. I would have to say spasticity coupled with lower extremity weakness have the most significant impact on my life. To address these, Intense PT has been helpful but not an overnight solution.