Cassie

Unfortunately, it has been around for a long time, but is not available in the U.S.

I moved from England to the U.S. (my husband is English, I am American) and within a month, had optic neuritis and was diagnosed with MS within a few months.  I feel very fortunate as I know of others in the U.K. who have had to wait forever for the first MRI and treatment was limited based on a timed 25 foot walk. At least that’s how it was back…[Read more]

I agree with Ed.  Find the nearest MS center and get another opinion.

I also take Cymbalta for neuropathic pain.  I used to take the highest dose of Gabapentin, as well.  I did this for 5+ years.  A few year s ago, I decided I wanted to try to see how I did without the meds.  It took several months to taper off of them and it was horrible.  I experienced lots of dizziness, headaches, fatigue, etc., and my anxi…[Read more]

Thanks, Chereyle.  The Meclizine didn’t touch it, but the diphenhydrinate helped.  Of course it knocks me out, but sleeping is better than dizziness.  I’m glad LDN is helping you so much!

Haha, self experimentation gives you something to do.  Just make sure to drink lots of water.  I understand the high doses can cause headaches and heartburn.

I took 30 mg of Biotin/day for a year or so.  All it did for me was give me better fingernails.  The trial MD1003 was 300mg (10x the recommended dose).  Baclofen worked for the spasticity in my legs really well, but even at the lowest dose, made me dizzy. 😢

My cognitive issues started pretty early on and are the most frustrating part of MS for me.  I was diagnosed with highly active RRMS in 2002 and SPMS in 2014.

Thank you, Faith.  I’ll give diphenhydrinate a try:  I tried Meclizine because fatigue is one of my worst symptoms.  Fortunately, I have not experienced nausea with the lightheadedness, but I know some people get relief with Zofran.  I guess you’ve tried that, too. 😢

Thank you for posting this, Ed.  I doubled my dose of Meclizine this morning, so hoping that helps some.  I have SPMS and this symptom started about a year ago off and on.  It seems to be more “on” recently and is beginning to affect my QOL as it limits me. 😢