Biography

I’ve been experiencing symptoms for several years, constantly back and forth to the doctors for non specific tests. My symptoms gradually increased over time and to the point I have had to stop working. A GP locum in my surgery finally referred me to Neurology where I had an MRI. This showed multiple lesions on my brain and was told that this is MS but I would need to have the other tests to confirm the diagnosis. All my tests for EEG, evolved potentials and lumbar puncture came back negative. In the meantime we had an issue with my Neurologist who had incorrectly detailing facts on my letters and file. I asked to be referred to another Neurologist who I saw in March this year. He didn’t have my file or results from my first and second MRIs. Then Covid happened and appointments cancelled. I finally managed to get through the department who booked me an appointment for November. Any issues I’ve had in these several months I’ve had to go to my GP who has been reluctant to provide any medications due to the fact I’m under Neuro. I’ve been struggling more lately and rang the Neuro department again explaining my situation so she arranged a telephone consultation earlier. The last night I received a hand delivered letter from the Neurologist stating that because my brain lesions are non specific and all my other tests are negative, the diagnosis has been decided not to be MS. To let him know in the future if I need any further assistance. I’m in bits. Nothing has changed. I still have constant symptoms to a varying degree on a hourly and daily basis. No day is the same. I can’t work and I don’t know where to go now. I’m struggling through with no support or correct medications and now no diagnosis.