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  • Ed Tobias posted a new activity comment 6 days, 3 hours ago

    Hi Husam,

    Welcome to the MS forums. I hope you’ll add your comments or questions to some of our topic forums.

    Ed

    • Ed Tobias posted a new activity comment 6 days, 3 hours ago

      Hi Shorty,

      We’re glad you joined us here in the forums. Since I’m in the US I don’t know much about the health care system in Australia but I wonder if your MS doc or nurse might be able to have a chat with your oncologist to get him or her on the right track.

      Good luck to you,

      Ed

      • Welcome back, John.

        It’s rare to find someone older than me here. I’m 72 and was DXed 40 years ago. Time may be running but I’ve got a scooter to try to stay ahead of it!

        Ed

      • We’re almost finished with the fourth season of The Crown on Netflix. No doubt you watched it all in one day. If you haven’t seen Queens Gambit (no relation to Elizabeth) I recommend it…and then drag out your old chess set.

        Ed

      • Ed Tobias posted a new activity comment 6 days, 4 hours ago

        Hi B,

        Let me join John in welcoming you. I’m also in the DC area but on the MD side of the river. I was diagnosed at Georgetown Hospital, 40 years ago! Please jump in with comments or questions in our various topic discussions.

        Ed

        • Ed Tobias posted a new activity comment 6 days, 4 hours ago

          Hi Angela,

          Thanks for joining us, Angela. There’s lots to know about MS so I hope you won’t be shy about making comments or asking questions. Please reach out to me if I can help.

          Ed

          • Ed Tobias posted a new activity comment 1 week, 3 days ago

            Hi Vitalina,

            Welcome to the MS forums. I’m glad to see that you’ve already posted a question in one of our topic discussions and I’ve posted a response to it there.

            Ed

            • Vitalina,

              According to items that I’ve read, vaping is unhealthy to begin with…particularly in these days of COVID-19, which can severely attack the respiratory system. I know that John Connor and  others here have used CBD in other forms and may be able to offer some suggestions.

              Ed

            • Ed Tobias posted a new activity comment 1 week, 4 days ago

              Hi Diane,

              Welcome to the MS forum. I’m sorry to learn you’re having all of those symptoms but I hope you’ll find some info here that will be useful and that your upcoming neuro visit will be productive.

              Ed

              • Ed Tobias posted a new activity comment 1 week, 4 days ago

                Hi Maryann,

                Let me join John in welcoming you. I hope you’ll join in some of our topic discussions and add your comments and questions.

                BTW, my wife grew up in Port Washington and her siblings are still scattered around Nassau and Suffolk Counties. We’ve traveled the LIE a lot more than we’d like. :-).

                Ed

                • Ed Tobias posted a new activity comment 1 week, 4 days ago

                  Hi Cozette,We’re glad you joined us here in the forums and hope you’ll join in some of our topic discussions. I’m sorry that your diagnosis arrived on your birthday. I received mine about a week after my 32nd. I’m now 72 and worked full-time until retiring about 8 years ago. I stopped counting birthdays a long time ago. :-).

                  Ed

                • Researchers have been known to say: Mice lye, moneys exaggerate. That’s why I rarely write about a study until it’s in the clinical trial stage. If I do report an earlier study I try to make it clear, as you suggest, how preliminary the results are and why I’m taking the unusual step of writing about them.

                  Ed

                • Ed Tobias posted a new activity comment 2 weeks ago

                  Hi Suzette,

                  Thanks for joining us here in the forums. I’m sorry that you’re facing the possibility of a third generation of MS. If you do a search of the MS News Today site I think you’ll find several articles about MS and genetics. You can also post a question or comment about the subject in one of our topic discussions and see if there…

                  [Read more]

                  • Well, my son went through second round of MRI s to brain and spine . Looks like MS for him as well. Now he needs to research medications. Only Betaseron was available for me and I was in initial group after FDA approval. I hope he only has RRMS and responds well to medication he selects.
                  • Ed Tobias posted a new activity comment 2 weeks ago

                    Hi Myra,

                    It’s good to have you as a member of the forums. All of us know that MS can be very scary to someone who wasn’t diagnosed that long ago and I hope the people and info here will help you how to play the MS cards that you’ve been dealt. Please reach out to John or me if we can help.

                    Ed

                    • Ed Tobias posted a new activity comment 2 weeks ago

                      Hi Kelly,

                      Let me join John in welcoming you. I hope you’ll join some of our topic discussions and share your questions and experiences. Please reach out to John or to me if we can help.

                      Ed

                      • Ed Tobias posted a new activity comment 2 weeks ago

                        Hi Francine,

                        Welcome to the forums. I hope you’ll add your comments and questions to some of our discussion topics. Please reach out to John or to me if we can help.

                        Ed

                        • Ed Tobias posted a new activity comment 2 weeks, 1 day ago

                          It’s amazing how much there is to know about MS and how it affects us all differently. If you don’t mind, I’m going to make a shameless plug for a book I just wrote “We’re Not Drunk, We Have MS.” The e-book is on Apple Books and several other e-book sellers. There’s a paperback on Amazon but the format isn’t good. I’ve re-formatted it and…

                          [Read more]

                        • I’m with you, John. Hit it fast…hit it hard.

                          Ed

                        • Ed Tobias posted a new activity comment 2 weeks, 3 days ago

                          Hi JC,

                          Let me join the other JC in welcoming you. I hope you’ll find some useful info here. Is OHSU Ohio State University? If you’re in Ohio (even if you’re not) you might want to check out Dr. Aaron Boster in Columbus. He’s really on top of MS. https://bosterms.com/ His YouTube channel really excellent.

                          Ed

                            • Thank you, Ed! I started checking out Dr. Boster’s YouTube videos after a recent ophthalmologist suggested that I have MS. (He’s probably the 5th provider to suggest it over the years, so that’s why I’ll be evaluated at the neurology dept. at OHSU, here in Oregon.) The videos are so helpful but also daunting, since he discusses many of…

                              [Read more]

                              • It’s amazing how much there is to know about MS and how it affects us all differently. If you don’t mind, I’m going to make a shameless plug for a book I just wrote “We’re Not Drunk, We Have MS.” The e-book is on Apple Books and several other e-book sellers. There’s a paperback on Amazon but the format isn’t good. I’ve re-formatted it and…

                                [Read more]

                          • Ed Tobias posted a new activity comment 2 weeks, 3 days ago

                            Hi Dave,

                            Thanks for joining us in the forums. I was diagnosed in 1980 and worked full-time until retiring at the end of 2012. I’ve traveled all over the US and internationally and will continued to do that, at age 72, once COVID eases. You’re right, attitude is everything.

                            I’m also JCV positive and was treated with that DMT for 7 years,…

                            [Read more]

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