• Ed Tobias posted a new activity comment 19 hours, 52 minutes ago

    Hi LS,

    Welcome to our MS forums. There’s a lot of information here to please let me, or co-moderator John Connor, know if we can help you looking around the site. Also, we’d love to read your comments in any of your discussions.

    Ed

  • Ed Tobias posted a new activity comment 1 day, 10 hours ago

    Hi Kathleen,

    We’re glad to have you join us here on the forums. It’s nice to have another MS old-timer. (I’m 71 and was DXed in 1980). Your years of experience as a person with MS, combined with your experience as an RN, makes you somewhat unique. I hope you’ll share some of that experience by chiming in on some of our discussions.

    Ed

  • Ed Tobias posted a new activity comment 1 day, 10 hours ago

    Hello Colette,

    Let me join John in welcoming you to our forums. I hope you’ll join some of our discussions to share your experiences or to ask questions. We’re glad to have you on board.

    Ed

  • Ed Tobias posted a new activity comment 1 day, 15 hours ago

    Hi Gary,

    Welcome to the MS forums. We hope you’ll find useful information here and won’t be shy about adding your comments to some of our discussions. Please reach out to me or John Connor, our other moderator, if we can be of any help.

    Ed

  • Ed Tobias posted a new activity comment 2 days, 17 hours ago

    Hi Ian,

    Welcome to the MS forums. There’s lots of information here as well as some good discussions. I hope you’ll jump right in with your comments.

    John Connor and I are the moderators. Please reach out to either of us if you have any questions or problems.

    Ed

  • Ed Tobias posted a new activity comment 2 days, 21 hours ago

    Chris,

    You’re not alone in having a long wait before a diagnosis. But, that’s behind you now.

    The good new is that, out of 17 disease-modifying treatments approved for use in the US, Ocrevus is one of the two that seem to be the most effective at slowing, or even stopping, the disease. Some people on Ocrevus have even reported some improvement…[Read more]

    • Glad to here from someone who knows what i’m talking abuot a lot of people don’t.
      Thanks Ed.
    • Ed Tobias posted a new activity comment 2 days, 22 hours ago

      Hi Chris,

      Thanks for joining us here in the MS forums and welcome. I know that an MS diagnosis can leave you with a lot of questions and concerns and I hope you’ll be able to find useful information here. Please don’t be shy about asking questions in our topic sections. Also, please holler to me or co-moderator John Connor if you need any help…[Read more]

      • Thank you Ed I was just diagnosed . And I’m trying to wrap my head around it. I’ve been complaining about left side weakness for years all I got from docters was use it or lose it. Finally I pushed the issue and they ordersd an MRI , now I know why i’m off balance all the time and I keep tripping on my own feet. I feel betrayed by the…

        [Read more]

        • Chris,

          You’re not alone in having a long wait before a diagnosis. But, that’s behind you now.

          The good new is that, out of 17 disease-modifying treatments approved for use in the US, Ocrevus is one of the two that seem to be the most effective at slowing, or even stopping, the disease. Some people on Ocrevus have even reported some improvement…[Read more]

          • Glad to here from someone who knows what i’m talking abuot a lot of people don’t.
            Thanks Ed.
      • Ed Tobias posted a new activity comment 2 days, 22 hours ago

        Hello Mahendra,

        Welcome to the MS forums. I hope the information here will be useful to you and the person for whom you are caring. Please contact me, or co-moderator John Connor, if we can help you find your way around this site.

        Ed

      • Ed Tobias posted a new activity comment 2 days, 22 hours ago

        Hi Tina,

        It’s good to have you as a member of our MS forums. It’s a good place to find and share info and I hope you’ll add your comments to some of our discussions.

        Ed

      • Ed Tobias posted a new activity comment 2 days, 22 hours ago

        Hi Serdar,

        Thanks for joining us here in the MS forums. We hope you’ll add your comments from Turkey (a country I’ve visited and would like to visit again). Please contact me, or co-moderator John Connor, if you need any help here.

        Ed

      • Ed Tobias posted a new activity comment 2 days, 22 hours ago

        Hi Sam,

        Welcome to the MS forums. This is a great place to ask questions and share information and we hope you’ll jump right in. Please reach out to me, or co-moderator John Connor, if you need any help navigating the site.

        Ed

      • Ed Tobias posted a new activity comment 3 days, 13 hours ago

        Hi Carolina,

        Welcome to the MS forums. We’re glad you’ve joined us and we hope you add your comments to our discussions.

        John Connor and I are co-moderators. Please contact either of us if you need any help.

        Ed

      • Ed Tobias posted an update 3 days, 13 hours ago

        We’ve had a slew of new members over the past couple of days, topping 800 total members. I’ve tried to welcome each of you individually but my apologies if I missed you when you joined.

        John Connor, my co-moderator, and I are glad that you’ve joined us. Communication among people with MS, their caregivers and their health care providers is…[Read more]

        • Hello
          My name is Kathleen sometimes called Kathy or Kath by my friends and family. I was diagnosed with MS back in 1985 on the day after my 35th birthday luckily I was released from hospital over the weekend of my celebration and felt quite bouyant on return to hospital on the sunday eveving the night duty nursing officer stood at the foot…

          [Read more]

      • Ed Tobias posted a new activity comment 3 days, 15 hours ago

        Nigel,

        Thanks for the detailed response. The info about APS is very interesting. I use an FES to help counter my left foot drop. APS sounds quite similar to that process.

        • Hi Treva,

          I’m glad that you’re doing well with Ocrevus, as many are. I’m being treated with Lemtrada and also doing well, I’m happy to say.

          Also, I’m sorry that I welcomed you again today. I see that you’ve been a member of the forums for at least a year, so please forgive the double-welcome.

          Ed

        • Hey Mary –

          Good for you! I’ve used a scooter for years and it’s been on trains, and boats and planes, as well as in the back of my SUV. I’ve ridden it in 15 or 16 countries. There’s no reason we can’t be as mobile as possible.

          Ed

        • Ed Tobias posted a new activity comment 3 days, 15 hours ago

          Hi Treva,

          Welcome to the MS forums. You can find good MS information if you browse around the forums but I hope you’ll also jump in and add your comments to some of our discussions.

          Please reach out to co-moderator John Connor or to me if we can help.

          BTW, the name Treva jumps out at me. It’s the name of one of my grandmothers and I h…

          [Read more]

        • Ed Tobias posted a new activity comment 3 days, 15 hours ago

          Hi Scott,

          I’ve deleted your other account. If I didn’t already welcome you on that account let me do it here. We’re glad to have you and hope you’ll add your comments to some of our discussions.

          Ed

        • Ed Tobias posted a new activity comment 3 days, 15 hours ago

          Hi Lawrence,

          I’d like to join John in welcoming you here. You can find good MS information if you browse around the forums but I hope you’ll also jump in and add your comments to some of our discussions. It would be good to have more input from caregivers.

          Please reach out to co-moderator John or to me if we can help.

          Ed

        • Ed Tobias posted a new activity comment 3 days, 15 hours ago

          Hi Marcus,

          I’d like to join John and Kevin in welcoming you. You can find good MS information if you browse around the forums but I hope you’ll also jump in and add your comments to some of our discussions.

          Please reach out to John or to me if we can help.

          Ed

        • Load More
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