[Faith]

Yes I tried it all. I have a lot of fatigue as well.  I need my two naps a day. You mentioned it affecting your quality of life and I completely get that. People often look at me, as I’m sure they look at you, and say “You don’t look sick”, but underneath our physical appearance we’re dealing with just trying to get around, and trying to make it through the day . It’s tough. I’m a singer, and I had to cancel a vocal rehearsal, an audition, and a tv interview this week because of my symptoms. It’s hard. I definetly understand.

[Faith]

Hey Cassie,

Well, this is the most extreme symptom I have. I have a bunch of large lesions on my spinal cord and cerebellum which cause intense dizziness on a daily basis. Over the past 4 years my drs have tried every prescription medication there is to combat this ,but none have worked.

The only thing that helps me is gravol. Which I literally take every 4 hours non stop . I have to deal with the fact that it makes me drowsy. But if I don’t take it, the nauseousness is off the charts.

I wish I had something better to tell you that would fix this for you. But gravol does help me. Also make sure you’re drinking enough water. Dizziness is a really tough symptom. I feel for ya girl.

Take care,

Faith

[Faith]

I really appreciate all of your input. I’m having a very difficult time deciding whether to start this treatment based on everything I’ve researched. So thanks so much for taking the time to weigh in on this. If anyone else has any experience on this drug , your input would be much appreciated:)