Mike Purcell
Forum Replies Created
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My answer depends on what you’re looking for. Since I’ve been at this while I transitioned from a scooter to a power chair. Now use a power chair full-time. When I was still somewhat mobile I used the scooter at disassembled into 3 pieces easily. As for power chairs Permobil is what I recommend.
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My sister
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Mike Purcell
MemberNovember 25, 2023 at 2:51 pm in reply to: Help Design a Mobility Scooter for Those with Multiple SclerosisI have much experience with this subject. I am happy to answer any questions you may have.
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Mike Purcell
MemberNovember 24, 2023 at 1:10 pm in reply to: Blocking Fibulin-2 Protein May Increase RemyelinationMe too.
I think it’s not about you but beingslowing -
Mike Purcell
MemberNovember 23, 2023 at 2:09 pm in reply to: Pharmac funding treatment for PPMS in New ZealandI’ve had this treatment. The protocol is they give you first 2 half doses. Then you received a full dose. Each one is an infusion which takes four or five hours. I tolerated it well. The only side effect was a scalp itchiness which they gave me something to relieve . It worked immediately to relieve the itching. I really had no other side effects. In total I had five or six infusion treatments. I stopped it really because my next treatment was scheduled during the start of the pandemic.
One other thing that I cannot say one way or another was after my third treatment (approximately) I came down with the shingles. I can answer any specific questions you may have I will be happy to. Good luck. By the way, my neurologist immediately described the O
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I did not mean to say WoW… In a disrespectful manner. I can relate to having difficulty. 25 years later (PP MS) I can tell you without hesitation, it doesn’t get easier. If anyone has an approach to manage this please share with us.
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Mike Purcell
MemberNovember 20, 2023 at 2:47 pm in reply to: What vehicle is best for your disability?After some time
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Boy am I with you on that comment. I’ve been working on a new place design myself over the past 3 or 4 years. There are couple books on accessible dwellings. One written my the local architect. (She’s in a Newton MA) and another written a paraplegic lady in Canada. Both very informative. If you would like I can post the titles but I’m sure Google will provide them for you.
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Here’s what I do. I use a Get–U–up lift to get on and off regular toilet. I cannot do the commode thing. My shower chair has a hole in the seat but I don’t use it or that, only to shower. I’m interested in a more comfortable shower chair. This one is hard is hard to use.
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Mike Purcell
MemberDecember 17, 2023 at 4:08 pm in reply to: Get – U – up lift (for transitions)No.