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J Howell

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@j-howell

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  • Profile picture of stana granch

    stana granch and Profile picture of J HowellJ Howell are now friends 1 year, 7 months ago

  • Profile picture of J Howell

    J Howell changed their profile picture 1 year, 11 months ago

  • Profile picture of Doreenda Smith Arthur

    Doreenda Smith Arthur and Profile picture of J HowellJ Howell are now friends 1 year, 11 months ago

  • Profile picture of J Howell

    J Howell replied to the topic Syracuse’s High Multiple Sclerosis Rate in the forum Welcome 2 years, 4 months ago

    I dunno, but for years I wondered why the small town I went to high school in had such a high rate of MS cases among people just slightly (3-5 years) younger than me, my brother included…and then I was diagnosed.

    I always thought it was strange that one of the big 3 employers in town was the originator of aerosols, and their one remaining big…[Read more]

  • Profile picture of J Howell

    J Howell replied to the topic 7 Strange and Unusual Symptoms of Multiple Sclerosis in the forum Living With MS 2 years, 7 months ago

    These aren’t symptoms I’ve had so far, though since I was diagnosed I haven’t had dental work or flown. I do need to schedule some dentistry, though…hopefully I won’t have any extra discomfort.

    The “hot foot” I haven’t experienced since I was diagnosed, or recently, though I had something very similar off and on for a long tie years ago.…[Read more]

  • Profile picture of Tammy

    Tammy and Profile picture of J HowellJ Howell are now friends 2 years, 7 months ago

  • Profile picture of J Howell

    J Howell replied to the topic Cannabis-based drugs to help epilepsy and MS approved for NHS use in the forum Alternative Treatments 2 years, 7 months ago

    I’m all for it!

  • Profile picture of J Howell

    J Howell replied to the topic I'm Not Going to Shoulder On in the forum Living With MS 2 years, 7 months ago

    Ha! Yeah…I never had much skill rolling either, even back when I was a recreational connoisseur. I use a lovely glass pipe made by a friend who’s a talented glassblower.

    I don’t mind the liquids I’ve tried thus far, but so far my experience has been that even the better ones weren’t as consistent as I’d like. Some bottles seemed very…[Read more]

  • Profile picture of J Howell

    J Howell replied to the topic Which DMT do you prefer? in the forum MS Medications 2 years, 7 months ago

    One week of Gilenya down…so far, so good, though I can’t say that I notice much difference other than some stomach upset (that frankly might be a lingering side effect of Solumedrol a couple of weeks ago) one way or the other.

    Hoping it will pump the brakes on new lesions and give my CNS some time without disease activity to recover. We’ll see.

  • Profile picture of J Howell

    J Howell replied to the topic Newly Diagnosed – Advice welcomed. in the forum Living With MS 2 years, 7 months ago

    Hahahahaha! Nice.

    I have a few friends (and friends of friends, mostly) who do standup, and a few more who do stage comedy- usually drag shows built around things like the Golden Girls, etc. It takes a special kind of clever to be good enough to keep that sort of thing up for a month, much less thirty years. Bravo!

  • Profile picture of J Howell

    J Howell replied to the topic I'm Not Going to Shoulder On in the forum Living With MS 2 years, 7 months ago

    I’ve found CBD to be incredibly helpful! I’ve also found that all CBD products are not created equally. The ones that are good, though, are great! So far I’ve found that, averse though I am to smoking, the most effective CBD I’ve found has been cannabis with high CBD and no THC content smoked. It seems to work faster that way. Your mileage may…[Read more]

  • Profile picture of J Howell

    J Howell replied to the topic Newly Diagnosed – Advice welcomed. in the forum Living With MS 2 years, 7 months ago

    Interesting…I’ve not heard of Modafinil, but I’ll look into it. At the moment the real chore is ascertaining what is actual cognitive fog, and what is normal- aside from having MS become a “thing” recently, we’ve had a ton of other things going on in our household and at work as well, I find it difficult to get to bed early enough to get a…[Read more]

  • Profile picture of J Howell

    J Howell posted a new activity comment 2 years, 8 months ago

    Thank you!

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    • Profile picture of J Howell

      J Howell replied to the topic Newly Diagnosed – Advice welcomed. in the forum Living With MS 2 years, 8 months ago

      Thanks Nicholas! I’m a little anxious but keen to start tomorrow. “Cog fog” is one of the most worrisome aspects of MS for me already- I write for a living, so not being able to quite find the right word is a big problem for me! I’m already worried that I’m slipping sometimes, but my colleagues assure me that I’m worrying more than I should- so…[Read more]

      • Profile picture of Ed Tobias
        Ed Tobias replied 2 years, 8 months ago

        J –

        I hope all went well today. I just came across this and thought it might help ease your anxiety a little.

        Long-term Gilenya Treatment Safe and Effective for Relapsing MS Patients, Phase 3 Trial Shows

        Ed

    • Profile picture of J Howell

      J Howell replied to the topic Newly Diagnosed – Advice welcomed. in the forum Living With MS 2 years, 8 months ago

      Jono- I hope you’re doing well. How are things now?

      Nicholas- what were the side effects you experienced with Gilenya that led you off it for a bit?

      I was just diagnosed a few weeks ago and get my monitored first dose of Gilenya next Tuesday. I’m a little nervous about the whole heart rate drop thing, but my brother has done very well with it.…[Read more]

      • Profile picture of Ed Tobias
        Ed Tobias replied 2 years, 8 months ago

        Way to go, J. Hit it hard and hit it fast!

        Ed

    • Profile picture of J Howell

      J Howell replied to the topic What were your first symptoms? in the forum Newly Diagnosed 2 years, 8 months ago

      Hey there. I was just diagnosed about a month or so ago, but this exacerbation seems to have started in early July. The symptoms initially were some neuropathy-like numbness and tingling in my right hand.

      Even though my brother was diagnosed with MS almost two decades ago, I wasn’t particularly fearful- I’ve had some issues related to…[Read more]

      • Profile picture of Ed Tobias
        Ed Tobias replied 2 years, 8 months ago

        When I was diagnosed, way back in 1980, there were no disease-modifying treatments. But there Solumedrol and I had several infusions over my early MS years. Each knocked down the symptoms but, eventually, the reversal became less and less complete. I’m grateful for the DMTs that have come along and have, I believe, slowed my progression. But, as…[Read more]

    • Profile picture of J Howell

      J Howell posted a new activity comment 2 years, 8 months ago

      Thank you!

        View Conversation
      • Profile picture of J Howell

        J Howell became a registered member 2 years, 8 months ago

        • Profile picture of John Connor
          John Connor replied 2 years, 8 months ago
          Hi J,

          Welcome to the MS Forum. Loads of info/research here. Answer questions or indeed ask your own. My fellow Moderator Ed explains all at the top of the Welcome Forum.

          I’m also a patient columnist in these here parts and a while back wrote a piece ‘An Open Letter to a Newly Diagnosed Patient’: https…

          [Read more]

          • Profile picture of J Howell
            J Howell replied 2 years, 8 months ago
            Thank you!
          • Profile picture of Ed Tobias
            Ed Tobias replied 2 years, 8 months ago

            A somewhat delayed welcome to the group, J. I see you’ve already jumped in and have commented on a few things. Keep it up and please let me, or co-moderator John Connor, know if we can be of any help.

            Ed

            • Profile picture of J Howell
              J Howell replied 2 years, 8 months ago
              Thank you!
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