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  • Hi Jacqueline,

    It’s so frustrating to be in a place of uncertainty.  2.5 years ago, I felt like I was finally going to get significant answers.  Instead, I got a misdiagnosis.  Then, I got pregnant with my daughter, and I’m just now starting to take care of myself again.  Hoping for more concrete answers in the weeks and months to come.

    -Jessy

  • Hi Ed,

    Thanks for your kind response.  I’m learning that I need to start advocating for myself a lot more, since none of these things that I’m experiencing are “normal” for someone my age.

    I will definitely post an update following my appointments.

    -Jessy

  • Jessy posted a new activity comment 2 years, 4 months ago

    Hi Debi- occasionally I have balance issues. The visual disturbances seem to come in waves, and that’s when I typically start having more issues with balance as well.

  • Hi everyone.  I’m in the process of trying to get diagnosed, and I’m wondering if anyone can relate to the following symptoms:

    1) Visual Disturbance: my vision field will suddenly move back and forth horizontally, very rapidly.  (My pupils are also different sizes.)

    2) Sharp, pin prick type pains in my upper right arm.  When they occur, I al…[Read more]

  • Jessy became a registered member 2 years, 4 months ago

    • Hi Debi- occasionally I have balance issues. The visual disturbances seem to come in waves, and that’s when I typically start having more issues with balance as well.

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