Jennifer (Jenn) Powell

I enjoyed Teresa’s column as she captured how it feels to receive cliche’s. The support we so crave seems to evade and people are often at a loss. The assumptions made about our state-of-being are painfully untrue. It is okay to just be un-ok. Thank you Teresa #realtalkrare

Jenn

Dear Lola,

I wish I could hug you. Feeling unheard and unsupported is very tough and the isolation compounds those feelings.

Many do not understand all we endure. To make themselves feel better they offer quick fixes or platitudes which can make us feel worse. You are heard here and validated in your pain. I do wish I could help with your…[Read more]

I have SO much experience here – I am learning that I have been the recipient but also given platitudes. It feels so frustrating when someone glosses over with an “At least it is not worse”, or “I know how you feel.”

Has anyone else struggled with this? Let me know – let’s get real! #realtalkrare

Thanks,

Jenn Powell

Hello,

I can truly empathize with how difficult this decision is. I have Secondary Progressive MS and am on a similar infusion. I have been advised not to proceed with treatment due to Coronavirus. I want to emphasize that each individual’s MS is different. My physician made a decision based on my case.

I see Adam is scheduled two weeks apart.…[Read more]