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Jennifer (Jenn) Powell replied to the topic #RealTalkRare – Toxic Positivity in the forum Living With MS 11 months, 1 week ago
I enjoyed Teresa’s column as she captured how it feels to receive cliche’s. The support we so crave seems to evade and people are often at a loss. The assumptions made about our state-of-being are painfully untrue. It is okay to just be un-ok. Thank you Teresa #realtalkrare
Jenn
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Jennifer (Jenn) Powell replied to the topic #RealTalkRare – Toxic Positivity in the forum Living With MS 12 months ago
Dear Lola,
I wish I could hug you. Feeling unheard and unsupported is very tough and the isolation compounds those feelings.
Many do not understand all we endure. To make themselves feel better they offer quick fixes or platitudes which can make us feel worse. You are heard here and validated in your pain. I do wish I could help with your…[Read more]
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Jennifer (Jenn) Powell's profile was updated 1 year ago
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Jennifer (Jenn) Powell changed their profile picture 1 year ago
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Jennifer (Jenn) Powell replied to the topic #RealTalkRare – Toxic Positivity in the forum Living With MS 1 year ago
I have SO much experience here – I am learning that I have been the recipient but also given platitudes. It feels so frustrating when someone glosses over with an “At least it is not worse”, or “I know how you feel.”
Has anyone else struggled with this? Let me know – let’s get real! #realtalkrare
Thanks,
Jenn Powell
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Jennifer (Jenn) Powell replied to the topic Need Advise in the forum Coronavirus COVID-19 Information 2 years, 2 months ago
Hello,
I can truly empathize with how difficult this decision is. I have Secondary Progressive MS and am on a similar infusion. I have been advised not to proceed with treatment due to Coronavirus. I want to emphasize that each individual’s MS is different. My physician made a decision based on my case.
I see Adam is scheduled two weeks apart.…[Read more]
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Jennifer (Jenn) Powell changed their profile picture 2 years, 4 months ago
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Jennifer (Jenn) Powell changed their profile picture 2 years, 4 months ago