Jilly

Hiya Ed.

I am sure there are more people with MS than we think. So, not so rare.

MS has so many different symptoms, it’s hard to even diagnose.

<span class=”ILfuVd NA6bn” lang=”en”><span class=”hgKElc”>World Multiple Sclerosis Day – <b>May 30, 2023</b>.</span></span>

Jilly PPMS

Rock it, good one Carmen. Nice to see you on the boards.

Jilly PPMS

good one Ed. We may as well rock it where we can.

Not really. As a joke sometimes I type PPMS after my name. Both my sisters have letter after their names. I can see people scratching their heads lol.

Yes, I live in a democracy Ed. And no, my new year wasn’t very good. My sister, who thinks she knows what I should be doing ruined that day. She just can’t accept me being ok and making soft toys for the poor kids in my hood. I told her to lower her expectations of me as I will never reach them. Then told her to leave and to stay home. I am so…[Read more]

<span class=”yKMVIe” role=”heading” aria-level=”1″>Jeff Bezos</span> is who I am talking about.

Doors are my biggest hate. I would love to have no doors at home.

No way. Amazon dumps truckloads of products all the time, that should have gone to schools or other poor areas. He is a rich man with no brain. He is a polluter.

Hiya Ed. I am delighted to finally have a project. It’s taken falling out of bed 3 times in 6 months, to buying a body pillow to have the light bulb moment to make toys with felt and pillow filler.

Oh and thanks mum (rip 1985). I still have your sewing kit.

I am making the stuffed little toys for those less fortunate. Thought when I get enough finished I will give them to Women’s Refuge or give them to the neighborhood chemist to give them to the little kids that look like they could used a soft stuffed toy. That’s my plan, I have plenty of felt but need more stuffing, so that’s on order. And I have…[Read more]

I turned 60 a couple of months ago and I have started making felt soft toys. I haven’t hand sewn for 35 years, except for replacing missing buttons. It’s been fun, but my stitches need some work so I am just making small toys at this stage.

Hiya Ed.

When I cry I know why.

And I pretended I was on a beach soaking up the sun and hearing a jack hammer in the background.

Hope some of these tips are helpful.

I have been given a bed rail, I feel much safer now, I bought a body pillow but got the rail first. So I am using the body pillow as my pillow, it’s really wide, I love it.

Puts hand up, I do, I do.

My sister and I got on a plane in Christchurch and flew down to Dunedin to see my other sister’s new home and have lunch with her. I was wheeled everywhere as my walker was put in as luggage. We had such a great day all getting together and before we knew it, it was time to head back to the airport to go home. The whole…[Read more]

Hi Patrick. When I had a 50 minute MRI, I was anxious too. I found the thing they put over your face the oddest part. What I did was shut my eyes and controlled my breathing. I got through doing that, I never opened my eyes, as it was disorientating.

Tip, ask them to talk to you with updates of how much time has gone by. They didn’t talk to me…[Read more]

Not being able to walk or run like I used to. That would be top of my list.

lol Ed, I bet you have some stories too.

I saw my doctor about all this falling out of bed stuff and I have been fast tracked to get a fitted bed rail. So that’s good.

Hi  Ed and John.

I have tried a body shaped bean bag next to my bed but it’s hard to get to my bed with that., and a bit slippery. Had a new idea and placed two pillows under the fitted sheet, felt like spooning, that’s been awhile lol. My forehead and left arm still hurts.

I would like a rail of some kind that can be raised up and down. I have…[Read more]