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Joan Bondira

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@joanb

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  • Profile picture of Joan Bondira

    Joan Bondira changed their profile picture 1 year, 2 months ago

    • Profile picture of Ed Tobias
      Ed Tobias replied 1 year, 2 months ago
      Hi Joan,

      We haven’t heard from you in quite a while. It’s nice to see you’re still active and hope you’re doing ok.

      Ed

    • Profile picture of stana granch

      stana granch and Profile picture of Joan BondiraJoan Bondira are now friends 1 year, 6 months ago

    • Profile picture of Doreenda Smith Arthur

      Doreenda Smith Arthur and Profile picture of Joan BondiraJoan Bondira are now friends 1 year, 10 months ago

    • Profile picture of Tammy

      Tammy and Profile picture of Joan BondiraJoan Bondira are now friends 2 years, 6 months ago

    • Profile picture of Joan Bondira

      Joan Bondira replied to the topic Where do you experience pain? What makes it feel better? in the forum Living With MS 3 years, 2 months ago

      Sorry that you have the same, Debi. And yeah, we are left to find a lot of our own solutions, aren’t we? Anything touching my feet causes pain, so as I write this, I’m sitting barefoot, with my legs propped up on a footstool with soft foam cushioning on top and a mini-fan gently blowing on them.

      BTW, all of this is going on under my desk at work…[Read more]

    • Profile picture of Joan Bondira

      Joan Bondira replied to the topic Where do you experience pain? What makes it feel better? in the forum Living With MS 3 years, 2 months ago

      Hi Debi, I have the type of pain most commonly associated with diabetes (I am not diabetic)–the old burning and stabbing in my feet. I’m on several meds for it, and those make it sort of tolerable. But it’s still by far my most debilitating MS symptom. Sometimes a soak in cool water soothes it a bit, but that’s not a practical solution for when…[Read more]

      • Profile picture of Ed Tobias
        Ed Tobias replied 3 years, 2 months ago

        Joan,

        I don’t know what the medical marijuana laws are where you live but, if it’s available, have you considered trying it? If marijuana isn’t available to you I’d suggest looking into its CBD element, which can be purchased legally.

    • Profile picture of Joan Bondira

      Joan Bondira replied to the topic Do you feel that being kind can affect your wellbeing? in the forum Living With MS 3 years, 3 months ago

      Yes, but only if the kindness is given as it s own reward; it can’t be transactional, as in “I’ll be nice to you so you’ll be nice to me.”

    • Profile picture of Joan Bondira

      Joan Bondira replied to the topic Is incontinence an issue for you? in the forum Living With MS 3 years, 3 months ago

      Debi, most people need to get retreated about every six months. That’s not so bad, hunh? And the experience wasn’t that bad, either. I’ll describe it if anyone wants to know, but otherwise will leave it to your imagination.

      LOL, Jiljeen. Unfortunately, it doesn’t help with frown lines.  Would it help to know that I’ve been smiling a lot more…[Read more]

    • Profile picture of Joan Bondira

      Joan Bondira replied to the topic Is incontinence an issue for you? in the forum Living With MS 3 years, 3 months ago

      I’m so glad this has come up! I really, really wanted to talk about this with someone who would understand. I’ve been dealing with this for several years and have gone through multiple medications that worked at first, and then didn’t. I finally found that I’d pretty much been through them all, and was shocked to find, when copays kicked in for…[Read more]

    • Profile picture of Joan Bondira

      Joan Bondira replied to the topic What mobility devices help you to get around? in the forum Durable Medical Equipment 3 years, 3 months ago

      Hi Janelle, so sorry that I somehow missed your post before. I don’t know for sure because I’m not on Medicare yet, but I believe that most insurers get a lot of their rules for stuff like this from CMS (Center for Medicare and Medicaid) because it’s easier to copy and paste (and then make up their own ideas about what it means). So what I’m…[Read more]

      • Profile picture of Ed Tobias
        Ed Tobias replied 3 years, 3 months ago

        Joan,

        I’ve found what you say to be true. If Medicare won’t pay for something then private insurance won’t. However, to find out what Medicare will usually approve (or not) just go to the Medicare website:

        https://www.medicare.gov/index.php/coverage

    • Profile picture of Joan Bondira

      Joan Bondira replied to the topic What mobility devices help you to get around? in the forum Durable Medical Equipment 3 years, 3 months ago

      Hi Jilleen. Maybe you should give it more thought if you’re feeling housebound, I mean, if you’re unhappy about it.  There’s nothing wrong with being a homebody. But I was really unhappy and tired of not going to the farmers’ market, museums, concerts, protests, and all the other stuff I used to enjoy.

      So one day I decided to get over the…[Read more]

    • Profile picture of Joan Bondira

      Joan Bondira replied to the topic What mobility devices help you to get around? in the forum Durable Medical Equipment 3 years, 3 months ago

      Hi John – It’s a Quickie Q7. Don’t know if we’re allowed to post links here, but I found one site that gives the specs up front, so here goes:  https://www.1800wheelchair.com/product/quickie-q7-adjustable-ultralight-wheelchair/

      If the link didn’t go through, just Google “Q7 wheelchair” and look for the 1800wheelchair site.  You probably want to…[Read more]

    • Profile picture of Joan Bondira

      Joan Bondira replied to the topic What mobility devices help you to get around? in the forum Durable Medical Equipment 3 years, 3 months ago

      I can walk a little bit with two canes or a rollator, and I do. But if I want to get through a store all in one day, I use an ultra lightweight wheelchair with a small, detachable  assist motor (12.5 lbs). I love this combination because I can get the chair in my little Fiat 500 by myself, and it gets me up steep hills (I live in Pittsburgh, PA),…[Read more]

    • Profile picture of Joan Bondira

      Joan Bondira replied to the topic Have you had a lumbar puncture to help diagnose your MS? in the forum Living With MS 3 years, 3 months ago

      Yes, I have had two. I didn’t think either was too bad. I know it sounds horrible, and you think “you want to do what to my what?!?” but if anyone reading this is facing one, you will get through it, honest. If you’ve ever had anything like an injection in your hip or knee or neck, it’s not really much worse. And like Jilleen said, if you’re…[Read more]

    • Profile picture of Joan Bondira

      Joan Bondira's profile was updated 3 years, 3 months ago

    • Profile picture of Joan Bondira

      Joan Bondira changed their profile picture 3 years, 3 months ago

    • Profile picture of Joan Bondira

      Joan Bondira became a registered member 3 years, 3 months ago

      • Profile picture of Ed Tobias
        Ed Tobias replied 3 years, 3 months ago

        Hi Joan,

        Welcome to the MS forums. We hope you’ll find useful information and look forward to reading any comments you post.

        Ed

      • Profile picture of Debi Wilson
        Debi Wilson replied 3 years, 3 months ago

        Hi Joan! Welcome , we are glad that you are here ! Please ask us any questions that you may have .
        Debi

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