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    • #19932
      John Connor
      Keymaster

      Ta.

      Well, the murk is clearing and am beginning to see the outlines of the bottom of the sea of science I’m trying to swim in!

    • #19895
      John Connor
      Keymaster

      With grit.

      On days like today when I’m relatively OK, despite my MS, feel cool. Despite all the other ailments MS throws at me. Sure it does the same to many of you.

      Depending on how ill I am – often get crabby/snappy with my family! Lucky, to still have one.

      Always wanted to write the great novel – released years ago didn’t have the talent. Hey, but now I can blame the old MS.

    • #19894
      John Connor
      Keymaster

      What Ed wrote…….

    • #19893
      John Connor
      Keymaster

      What Ed wrote…….

    • #19850
      John Connor
      Keymaster

      I read about the roots of this ages ago. The incidence of MS was much lower in places in Africa where parasites were active. Of course, it’s also nearer the equator where there is less incidence of MS. Presumably because of the higher incidence of Vitamin D from sunlight.

    • #19849
      John Connor
      Keymaster

      Hi Quynh-Loan
      As, Ed, my fellow Moderator wrote you should really put this in the ‘Living with MS’ Forum.
      But in the meantime I suffer hellish spacisty/neuropathic pain in my right arm. For this I now take Gabapentin & Baclofen. If it turns into a spasm I also have Diazepam – which kills the pain but also feels like getting stoned [though it often just puts me to sleep].
      Writing of which I also occasionally use liquid marijuana, which def gets me stoned, but helps with pain and also relieves the spacisty. Though it means I really don’t want to do anything – except eat snacks!
      Cheers John

    • #19846
      John Connor
      Keymaster

      My latest column ‘A Morning With No Opera but Enough for a Small Choir!‘
      deals with one hectic day of Social Services descending on me interspersed with a police drama outside.
      I went for a convoluted headline relating to a Marx Brothers film – this time I’ve gone for a little know track from one of the the greatest albums ever ‘What a Day That Was‘ from ‘Stop Making Sense’ by Talking Heads.
      Pretentious – moi?
      What hectic days with MS have you had?

    • #19810
      John Connor
      Keymaster

      Hi Ed & hello Collette
      Practically every study I’ve flagged up or read about seems to be tested on mice! I’ve highlighted this recent study before questioning the validity of all mice research on us humans.
      So as much as I agree with your valid skepticism Ed – think my MS advancement has me now grasping at straws. Despite the plastic ones being terrible for the environment! x
      PS Counter with Tom Petty ‘This Old Town’ – admittedly only mention of rodents is ‘Rats to Kill’ but love his music.

      • This reply was modified 1 month, 1 week ago by John Connor.
      • This reply was modified 1 month, 1 week ago by John Connor.
      • This reply was modified 1 month, 1 week ago by John Connor.
    • #19802
      John Connor
      Keymaster

      So, I’ve given it a go.
      I take a myriad of supplements that might possibly help MS.
      Some like Biotin have recently proved to be worthless. Still, it’s flogged as being ‘Support for Healthy Hair, Skin and Nails’ so at least I’m giving myself the chance at being lustrous!
      I bought the below off British eBay for £20 – the below is from UK Amazon.£8 more with del but a better sales pitch!

      Ursolic Acid 100 Capsules | Natural Anabolic | Loose Body Fat, Increase Lean Muscle Mass, Fuel Your Strength |
      by Haya Labs
      4.0 out of 5 stars 12 ratings
      Was: £25.99
      Price: £23.99 (£23.99 / Item) + £4.26 delivery
      You Save: £2.00 (8%)
      Pay £23.99 £3.99: get a £20 gift card upon approval for the Amazon Classic Mastercard. Terms apply.
      NATURAL ANABOLIC: designed to accelerate lean muscle growth, promote greater strength and decrease body fat
      POWERFUL ANTI-CATABOLIC: preserves lean mass by preventing muscle breakdown and increasing net muscle gains
      HELPS BUILD MORE LEAN MUSCLE FASTER: Haya Labs Ursolic Acid is a potent bioactive Compound that literally works through multiple pathways to turn off muscle breakdown and turn on muscle growth
      ACCELERATED FAT LOSS: Haya Labs Ursolic Acid produces powerful fat burning effects, helping you build muscle while getting leaner
      100% QUALITY ASSURANCE: Ursolic Acid capsules crafted by Haya Labs ensures their customers the products used are from the purest and natural ingredients on the market – Rosemary Leaf Extract

      • This reply was modified 1 month, 1 week ago by John Connor.
    • #19739
      John Connor
      Keymaster

      Well, obvs was v. exited and started a week and a 1/2 early! Still am now back. How u y’all doing? Sorry in the last 2 months convinced my family to watch ‘Justified’ on Amazon Prime. Hey, ‘holler’ if u like it too….

    • #19442
      John Connor
      Keymaster
    • #19410
      John Connor
      Keymaster

      Well, I’m in hiding!

      Gave up working in London two weeks ago though in truth the  show I run has just been cancelled  next week for poor ticket sales. The first time in its nearly 30 year history.

      Ironically the only time we’ve ever cancelled the show well in advance is when the night clashed with the England footie team fixtures in  either the World or European Cup. The English football authorities have today stopped all elite football.

      I have a severely compromised immune system. To an extent as I work in news satire I went to ground relatively early.

      Every human is a threat – I have mail but I won’t open it for three days.

      Paranoia is now sensible!

       

    • #19383
      John Connor
      Keymaster

      Have just been told by my MS Nurse at Charing Cross Hospital, London that letters are about to go out to suspend therapies because of the COVID-19 crisis.

      I was talking to her about something else so did not have my journo hat on.

      It sounded like a general suspension for the time being!

      • This reply was modified 4 months, 3 weeks ago by John Connor.
    • #19381
      John Connor
      Keymaster

      Well that’s one supplement that I can cut down on…..

    • #19375
      John Connor
      Keymaster

      I’ve always washed my apples – even organic ones!

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