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    • #19038
      John Connor
      Keymaster

      Wowser!

      Not heard of this but anything that even has a sniff of a chance of encouraging myelin growth has to be applauded.

    • #19025
      John Connor
      Keymaster

      My own Neurologist was shocked that I wasn’t worried about the chance of death [currently 0.3%]. But then as a patient had recently died of exactly this at the time of my consultation things were quite raw for him.

      It’s no panacea if you qualify – 64% seem to benefit! It’s not the miracle cure the media love to hype.

      I was too old when I was diagnosed with MS anyway and by the time my own country [UK] got round to it my MS had progressed too far. I had a good old MRI but that only confirmed it.

      Still, my Neurologist’s stress levels were no doubt reduced!

    • #18986
      John Connor
      Keymaster

      There’s a lot to unpick here.

      Have read a lot of contrary evidence. So much in fact that have had to leap to what is hopefully solid net sources to try and piece it together.

      First ‘Brain Training’ games etc is looking more like a way of flogging Apps that is meaningless. If you get fun out of them fair enough  but that is probably it!

      Then there is this – ‘Bilingual brains are more resilient to dementia cause by Alzheimer’s disease’.  Because of connectivity in the brain there is more protection. Pretty sure that if you’re trilingual [or more] it is even better!

      Now I have this to add to the mix. I can’t speak any language but rudimentary German. Mind you if I try and ask for a beer in a French bar – if not careful the German comes out. Too many beers and I have to hope they are at least  good European Union citizens. My mother was Austrian but stopped teaching me German before I went to school so I wouldn’t be bullied. It was the early ’60s – the war was still fresh.

      However it looks like writing comedy professionally might have a similar effect as learning a language, It seems our brains become wired differently .

      So here’s a joke I wrote about football many years ago that fits. As I work in satire it’s far too old to ever get an outing again. But hey it fits the zeitgeist – it’s being recycled!

      Roy Hodgson was the manager of England and as he had previously worked all over Europe he spoke five languages. Scouser [Liverpool] Wayne Rooney was his star player. Unfortunately for Hodgson though he spoke five languages none of them was Rooney!

       

    • #18955
      John Connor
      Keymaster

      Hi Marceletrido

      I’m this sites other moderator.

      What a great name – am  presuming it’s your christian name. Had to really concentrate to spell it right! Hope I did!

      A while back wrote a column ‘An Open Letter to a Newly Diagnosed Patient’ based on correspondence in the Newly Diagnosed forum. There might be something in all of this relevant to you.

      Great that you’re posting already.

      Best John

       

       

       

       

       

    • #18940
      John Connor
      Keymaster

      Well this good news.

      Just became a vegan.

      My latest column is about it!

    • #18938
      John Connor
      Keymaster

      It was absolutely awful and I’m pretty sure did nothing for me except speed up my deterioration.

      After the first infusion my right hand started aching. This undoubtedly would have happened eventually but maybe not as quickly!

      I was playing wheelchair tennis before I went in. After it was a travesty.

      I wrote some columns about it – hopefully I managed to extract some humour from a very depressing period.

      • This reply was modified 2 weeks, 4 days ago by John Connor.
    • #18856
      John Connor
      Keymaster

      Hey by grateful – I usually bang on about Lord Buckley.

      Who besides being the original ‘alternative’ comic/hipster poet is possibly the first person to ever smoke a joint on US national TV.

       

    • #18855
      John Connor
      Keymaster

      This adds to a growing sense that something is going on….

      I’ve recently gone Vegan  just in case it helps.

    • #18824
      John Connor
      Keymaster

      Well, as soon as they get results they should  publish. Don’t Bogart that research!

    • #18823
      John Connor
      Keymaster

      As soon as they get results they should  publish. Don’t Bogart that research!

      • This reply was modified 1 month, 1 week ago by John Connor.
    • #18822
      John Connor
      Keymaster

      Well, as a mate of The Terminator, not sure can always trust the bright future of AI but in this case looks hopeful.

      John Connor

       

    • #18807
      John Connor
      Keymaster

      Hi  All

      I’m 62 and started on Ocrevus exactly a year ago.

      As a patient columnist I of course wrote about it: Steering My Own Boat and Making a Splash,The Right Hand of Lightness and my latest col   Stop in the Name of Leukocytes

      It’s been the most effective Disease Modifying Therapy I’ve had. However seems like even Ocrevus isn’t about to stop my active steamroller of MS .

      At the moment in limbo – which is a tuf place for us atheists to accept!

      Cheers John

       

       

    • #18777
      John Connor
      Keymaster

      Tried this years ago. Made a difference to my weight but nothing else. Also incredibly tuf! Also found out only works well for certain types of people. Incredibly relieved when it turned out I didn’t fit the profile!

    • #18728
      John Connor
      Keymaster

      Interesting.

      When research on the Microbiome began to get traction a few years ago I casually wondered if there might be an MS link? So much so that I began to use drinks to up the healthy bacteria – Kefir eventually became my breakfast drink of choice!

      It’s going to be v. difficult to research us diagnosed MS’rs who quickly become laced with powerful drugs.

      As with a lot of things with this disease intuition maybe the only thing we can use.

      So will keep downing the ‘good’ bacteria.

    • #18673
      John Connor
      Keymaster

      Instead of a couple of drops went for the whole pipette!

      The upside is get to spend the next day with a partially working right arm and pain so in the background that it could be a battle extra in ‘Game of Thrones’.

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