Forum Replies Created
January 24, 2020 at 3:56 pm #19038
Not heard of this but anything that even has a sniff of a chance of encouraging myelin growth has to be applauded.
January 22, 2020 at 2:40 pm #19025
My own Neurologist was shocked that I wasn’t worried about the chance of death [currently 0.3%]. But then as a patient had recently died of exactly this at the time of my consultation things were quite raw for him.
It’s no panacea if you qualify – 64% seem to benefit! It’s not the miracle cure the media love to hype.
I was too old when I was diagnosed with MS anyway and by the time my own country [UK] got round to it my MS had progressed too far. I had a good old MRI but that only confirmed it.
Still, my Neurologist’s stress levels were no doubt reduced!
January 16, 2020 at 7:25 pm #18986
There’s a lot to unpick here.
Have read a lot of contrary evidence. So much in fact that have had to leap to what is hopefully solid net sources to try and piece it together.
First ‘Brain Training’ games etc is looking more like a way of flogging Apps that is meaningless. If you get fun out of them fair enough but that is probably it!
Then there is this – ‘Bilingual brains are more resilient to dementia cause by Alzheimer’s disease’. Because of connectivity in the brain there is more protection. Pretty sure that if you’re trilingual [or more] it is even better!
Now I have this to add to the mix. I can’t speak any language but rudimentary German. Mind you if I try and ask for a beer in a French bar – if not careful the German comes out. Too many beers and I have to hope they are at least good European Union citizens. My mother was Austrian but stopped teaching me German before I went to school so I wouldn’t be bullied. It was the early ’60s – the war was still fresh.
So here’s a joke I wrote about football many years ago that fits. As I work in satire it’s far too old to ever get an outing again. But hey it fits the zeitgeist – it’s being recycled!
Roy Hodgson was the manager of England and as he had previously worked all over Europe he spoke five languages. Scouser [Liverpool] Wayne Rooney was his star player. Unfortunately for Hodgson though he spoke five languages none of them was Rooney!
January 14, 2020 at 10:29 am #18955
I’m this sites other moderator.
What a great name – am presuming it’s your christian name. Had to really concentrate to spell it right! Hope I did!
A while back wrote a column ‘An Open Letter to a Newly Diagnosed Patient’ based on correspondence in the Newly Diagnosed forum. There might be something in all of this relevant to you.
Great that you’re posting already.
January 10, 2020 at 9:06 pm #18940
January 10, 2020 at 9:02 pm #18938
It was absolutely awful and I’m pretty sure did nothing for me except speed up my deterioration.
After the first infusion my right hand started aching. This undoubtedly would have happened eventually but maybe not as quickly!
I was playing wheelchair tennis before I went in. After it was a travesty.
- This reply was modified 2 weeks, 4 days ago by John Connor.
December 20, 2019 at 4:59 pm #18856
December 20, 2019 at 4:47 pm #18855
December 17, 2019 at 10:06 am #18824
Well, as soon as they get results they should publish. Don’t Bogart that research!
December 17, 2019 at 10:06 am #18823
December 17, 2019 at 9:51 am #18822
Well, as a mate of The Terminator, not sure can always trust the bright future of AI but in this case looks hopeful.
December 16, 2019 at 9:20 am #18807
I’m 62 and started on Ocrevus exactly a year ago.
It’s been the most effective Disease Modifying Therapy I’ve had. However seems like even Ocrevus isn’t about to stop my active steamroller of MS .
At the moment in limbo – which is a tuf place for us atheists to accept!
December 11, 2019 at 3:37 pm #18777
Tried this years ago. Made a difference to my weight but nothing else. Also incredibly tuf! Also found out only works well for certain types of people. Incredibly relieved when it turned out I didn’t fit the profile!
December 3, 2019 at 9:48 am #18728
When research on the Microbiome began to get traction a few years ago I casually wondered if there might be an MS link? So much so that I began to use drinks to up the healthy bacteria – Kefir eventually became my breakfast drink of choice!
It’s going to be v. difficult to research us diagnosed MS’rs who quickly become laced with powerful drugs.
As with a lot of things with this disease intuition maybe the only thing we can use.
So will keep downing the ‘good’ bacteria.
November 22, 2019 at 1:01 pm #18673
Instead of a couple of drops went for the whole pipette!
The upside is get to spend the next day with a partially working right arm and pain so in the background that it could be a battle extra in ‘Game of Thrones’.