Forum Replies Created

Viewing 15 posts - 1 through 15 (of 43 total)
  • Author
    Posts
  • #18252
     John Connor 
    Keymaster

    Sure do! OUCH!!

    In UK we pay for it unless over 65 or suffering a med condition. Have done ever since had MS.

    Also work with comics who are obviously peripatetic and therefore more likely  to hit outbreaks. Can lose serious money if they have to take week off – if Christmas it’s a disaster. Have convinced a few to pay for it. Even if they get flu the jab tends to reduce longevity.

  • #18197
     John Connor 
    Keymaster

    Good news – except for the recent report ‘Here’s Why Drugs That Work So Well in Mouse Brains Often Fail Miserably in Humans‘ Of course this might not hold for rats……

    • This reply was modified 1 week, 6 days ago by  John Connor.
  • #18189
     John Connor 
    Keymaster

    Hi Ros [& indeed ED] The news from the UK is that the modifying therapy Ocrevus has only just be allowed for use with Progressive MS patients. This was finally agreed in May of this year and supposedly should be available to such patients from now – September 2019.

  • #18159
     John Connor 
    Keymaster

    It was a wonderful revelation to find that the ‘Supernatural‘ fantasy-drama series has mysteriously [long story] appeared on Netflix. The story about two brothers who hunt ghouls, ghosts, vampires et al and hang occasionally with a  very chilled god and fight with the very odd demon would you think last for a few series. But it roots itself in hip ‘pop’ culture and  is often wryly funny – writers who regularly reference cultural gods like Kurt Vonnegut know what they’re doing. It’s been my guilty pleasure for years and I’m obviously not alone as 14 series are available. Unluckily I’ve seen the first 13. Luckily I’ve now got the 14’th to burn thru. And I never did get to see the pilot till yesterday. An atheists prayers have been answered.

    Anyone else a fan?

    • This reply was modified 2 weeks, 5 days ago by  John Connor.
  • #18152
     John Connor 
    Keymaster

    Er, marijuana. That’ll be $130K pls!

  • #18142
     John Connor 
    Keymaster

    Never been disabled!

    Never been a Marvel Superhero either…

     

  • #18122
     John Connor 
    Keymaster

    Well, I’m 61 and am pretty sure I now know what it’s like to be 90!

  • #18111
     John Connor 
    Keymaster

    Hi Jono

    I’ve only just seen your reply – presume you’re at the hospital now or have just got back.

    We’d love to hear from you but your head’s going to be crawling with arachnids for quite a while. So although our job is to get you to engage in this web space [sorry – what am I like?] please don’t reply if you feel it’s just another chore. Last thing you should worry about,

    We’re here to support – thanking everyone is cool enough.

    Cheers John

  • #18088
     John Connor 
    Keymaster

    Well, if you want to be really cool you just can’t hang out with fans…..

  • #18085
     John Connor 
    Keymaster

    And there’s one more…

  • #18084
     John Connor 
    Keymaster

    I’ve been very open about my diagnosis. (It’s the easiest way to explain the cane😂) Maybe it’s just the mentality of the people here in the Texas Hill Country or that I’m a bit of a loaner, but I have found the responses refreshing… not scared or overbearing, but supportive in a very reserved fashion.
    I think often times we need to use discernment in these sorts of things like when I kept my battle with Iberian cancer mostly to myself, but if we have more visible symptoms we are somehow graced with the most appropriate response. I’m sorry that you weren’t

    Erin Franco

  • #18083
     John Connor 
    Keymaster

    Well, they will be floating in a most peculiar way……

  • #18081
     John Connor 
    Keymaster

    So Jono if you take a look at the Newly Diagnosed Forum you’ll read another four replies.

    Let me/us know if you find any of it helpful. Cheers John

     

  • #18079
     John Connor 
    Keymaster

    The best thing that anyone call tell a newly diagnosed patient is to tell them about HSCT!! Knowing what I know now after fighting MS for 13 years, going through antibiotics, bee stings, FDA trial participant, taking a DMT, & being treated for Lyme’s Disease, I wish that I had gone right for HSCT the day that I was diagnosed & would have had I known about it!! HSCT could be helping so many people that it is outrageous that the MS community isn’t being informed about it & that it isn’t available to all!! We need HSCT & we need it now!!

    Kevin Keplinger

  • #18078
     John Connor 
    Keymaster

    Hi Jono,

    Keep moving, take supplements – Hemp Oil, vitamin D, B complex, CoQ10, fish oil, flaxseed oil, iron! Keep reading, the neurologists don’t like to hear about anything except a DMT, but these will be good for you. Have faith!

    Dayna 

Viewing 15 posts - 1 through 15 (of 43 total)
Copyright © 2017-2019 All rights reserved.

©2019 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
or

Log in with your credentials

or    

Forgot your details?

or

Create Account