Forum Replies Created
July 27, 2020 at 7:27 am #19932
Well, the murk is clearing and am beginning to see the outlines of the bottom of the sea of science I’m trying to swim in!
July 13, 2020 at 11:19 am #19895
On days like today when I’m relatively OK, despite my MS, feel cool. Despite all the other ailments MS throws at me. Sure it does the same to many of you.
Depending on how ill I am – often get crabby/snappy with my family! Lucky, to still have one.
Always wanted to write the great novel – released years ago didn’t have the talent. Hey, but now I can blame the old MS.
- This reply was modified 3 weeks ago by John Connor.
July 13, 2020 at 9:54 am #19894
What Ed wrote…….
July 13, 2020 at 9:54 am #19893
What Ed wrote…….
July 1, 2020 at 9:34 am #19850
I read about the roots of this ages ago. The incidence of MS was much lower in places in Africa where parasites were active. Of course, it’s also nearer the equator where there is less incidence of MS. Presumably because of the higher incidence of Vitamin D from sunlight.
July 1, 2020 at 9:22 am #19849
As, Ed, my fellow Moderator wrote you should really put this in the ‘Living with MS’ Forum.
But in the meantime I suffer hellish spacisty/neuropathic pain in my right arm. For this I now take Gabapentin & Baclofen. If it turns into a spasm I also have Diazepam – which kills the pain but also feels like getting stoned [though it often just puts me to sleep].
Writing of which I also occasionally use liquid marijuana, which def gets me stoned, but helps with pain and also relieves the spacisty. Though it means I really don’t want to do anything – except eat snacks!
June 30, 2020 at 9:00 am #19846
My latest column ‘A Morning With No Opera but Enough for a Small Choir!‘
deals with one hectic day of Social Services descending on me interspersed with a police drama outside.
I went for a convoluted headline relating to a Marx Brothers film – this time I’ve gone for a little know track from one of the the greatest albums ever ‘What a Day That Was‘ from ‘Stop Making Sense’ by Talking Heads.
Pretentious – moi?
What hectic days with MS have you had?
June 22, 2020 at 8:04 am #19810
Hi Ed & hello Collette
Practically every study I’ve flagged up or read about seems to be tested on mice! I’ve highlighted this recent study before questioning the validity of all mice research on us humans.
So as much as I agree with your valid skepticism Ed – think my MS advancement has me now grasping at straws. Despite the plastic ones being terrible for the environment! x
PS Counter with Tom Petty ‘This Old Town’ – admittedly only mention of rodents is ‘Rats to Kill’ but love his music.
June 18, 2020 at 11:59 am #19802
So, I’ve given it a go.
I take a myriad of supplements that might possibly help MS.
Some like Biotin have recently proved to be worthless. Still, it’s flogged as being ‘Support for Healthy Hair, Skin and Nails’ so at least I’m giving myself the chance at being lustrous!
I bought the below off British eBay for £20 – the below is from UK Amazon.£8 more with del but a better sales pitch!
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- This reply was modified 1 month, 1 week ago by John Connor.
June 2, 2020 at 8:11 am #19739
March 19, 2020 at 8:46 am #19442
Still, that’s now turned out to be a good thing.
March 13, 2020 at 4:05 pm #19410
Well, I’m in hiding!
Gave up working in London two weeks ago though in truth the show I run has just been cancelled next week for poor ticket sales. The first time in its nearly 30 year history.
Ironically the only time we’ve ever cancelled the show well in advance is when the night clashed with the England footie team fixtures in either the World or European Cup. The English football authorities have today stopped all elite football.
I have a severely compromised immune system. To an extent as I work in news satire I went to ground relatively early.
Every human is a threat – I have mail but I won’t open it for three days.
Paranoia is now sensible!
March 11, 2020 at 12:16 pm #19383
Have just been told by my MS Nurse at Charing Cross Hospital, London that letters are about to go out to suspend therapies because of the COVID-19 crisis.
I was talking to her about something else so did not have my journo hat on.
It sounded like a general suspension for the time being!
- This reply was modified 4 months, 3 weeks ago by John Connor.
March 11, 2020 at 12:09 pm #19381
Well that’s one supplement that I can cut down on…..
March 10, 2020 at 11:38 am #19375
I’ve always washed my apples – even organic ones!