Biography

Xmas has been 19yrs. My disease was highly progressive when i was diagnosed in 2004. I knew and drs assumed id b wheelchair bound by 30. But i have always believed and knew that my faith would see me thru. Now its truly hitting me and with some of us, this disease may never stop. But sometimes give you a break. But for the past 2yrs now. I have had no relief and it is sinking into my spirit and my 2 girls just how real this is. I am trying to spiritually build myself back up. But …its heartbreaking. I can not do much with my little one. My oldest is my caregiver. Ppl, drs think bc you look ok on the outside that your ok inside. And my reality is that’s just not true. As i need help the most no one is there or here for my but my children. Feeling lonely and burdened. Forgive me… I guess i just needed to vent away from my babies.  Besides Christ they’re all i have and push for.