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Kevin Schaefer started the topic Day 30 of #31DaysofMS: I Keep My Body Moving and Life Is Good in the forum 31 Days of MS 11 months, 3 weeks ago
This is Lance Schultz’s (@drlschultz) story.
Lance’s journey with MS has been a whirlwind. From managing issues with spasticity and muscle weakness to navigating relationships, he’s been through a lot. For him, keeping his body moving has been key to his well-being.
Here’s an excerpt, “I’d given up all my dangerous hobbies, and my upper bod…[Read more]
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Kevin Schaefer started the topic Day 28 of #31DaysofMS: Finding My Balance, Both Mentally and Physically in the forum 31 Days of MS 11 months, 4 weeks ago
This is Roy Padilla’s (@royale_padilla) story.
Roy initially struggled with his MS diagnosis. He had no history of the disease in his family, and he wasn’t sure how to process it. In time, he learned more about the disease, and how to care for himself mentally and emotionally.
Here’s an excerpt, “It’s been a while since I’ve had sever…[Read more]
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Kevin Schaefer started the topic Day 23 of #31DaysofMS: The Uncertainty Helps Me to Take It a Day at a Time in the forum 31 Days of MS 12 months ago
This is Feliciano Velazquez’s (@felicia.no) story. Feliciano initially didn’t think much of his MS symptoms, but eventually came to terms with his diagnosis. He then started focusing on his health and adapted to his new life.
Here’s an excerpt, “I used this invisibility as a way to negate coming to terms with the fact that I’d live with this…[Read more]
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Kevin Schaefer started the topic Day 21 of #31DaysofMS: A Positive Mind Leaves Little Room for Negativity in the forum 31 Days of MS 1 year ago
Check out Ken Bach’s (@kens.ms.fitmess) story.
Ken writes about first experiencing MS symptoms when his youngest son was born. He endured many challenges during the initial stage of diagnosis, but he then started exercising and applying a positive mindset. This helped him manage his MS and push forward.
Here’s an excerpt: “I’ve learned if…[Read more]
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Kevin Schaefer started the topic Day 16 of #31DaysofMS: I Do My Best to Be Strong in the forum 31 Days of MS 1 year ago
This is Pamela Neckameyer’s story.
Pamela writes about trying to stay positive and not bring others down because of her situation. However, she also recognizes the reality of living with MS and the things she’s lost since her diagnosis.
Here’s an excerpt: “Intellectually, I know there are many more serious illnesses than MS and I feel g…[Read more]
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Kevin Schaefer started the topic Day 14 of #31DaysofMS: We Are All Stronger Than We Think in the forum 31 Days of MS 1 year ago
This is Rennie Rankin’s (@yogaren) story.
Rennie writes about being diagnosed with MS in 2003, and how her relationship toward her disease has evolved since then. She’s become an advocate, immersed herself in the community, and practiced yoga and meditation.
Here’s an excerpt, “My biggest piece of advice would be to always listen to your bo…[Read more]
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Kevin Schaefer started the topic Day 10 of #31DaysofMS: I’ve Learned to Be More Comfortable With Limitations in the forum 31 Days of MS 1 year ago
In today’s 31 days story, Carolyn Hinds’ (@carriecnh12) writes about dealing with cognitive impairment and how it coincides with MS. Carolyn writes about how this impacts her and how her view toward MS has evolved.
Here’s an excerpt, “Living with MS and all its symptoms can at times feel like life is too much, but luckily, I’m stubborn. My st…[Read more]
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Kevin Schaefer started the topic Day 9 of #31DaysofMS: I Threw Away Fear and Began Following My Dreams in the forum 31 Days of MS 1 year ago
In today’s story, Cassidy Krygger’s (@cassidykrygger) writes about facing her fears and pursuing her filmmaking dreams. Though she initially struggled to come to terms with her MS diagnosis, she eventually settled into her new way of living.
I especially love this excerpt: “As the weeks faded into months, the shock of my diagnosis began to lif…[Read more]
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Kevin Schaefer started the topic Day 7 of #31DaysofMS: MS Has Taught Me That Timing Is Everything in the forum 31 Days of MS 1 year ago
Check out the latest 31 Days of MS story here!
Alexios Touloupis (@alexios4real) writes about his journey from being diagnosed with MS in high school to accepting himself. In particular, he says that timing is everything. Between confronting his diagnosis, accepting his identity, and chasing his dreams, Alexios says it took time.
Here’s an…[Read more]
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Kevin Schaefer started the topic Day 2 of 31 Days of MS: A New Mindset Made Me Stronger in the forum 31 Days of MS 1 year ago
In today’s story, Zaki Farzand shares the pitfalls and triumphs surrounding his MS journey. Read the full story here.
Zaki opens up about how the days following his diagnosis were terrifying, and he also went through a divorce. He felt overwhelmed and directionless, and for a time he didn’t think he’d be able to recover.
Eventually, t…[Read more]
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Kevin Schaefer started the topic Check Out Our Podcast! in the forum Flash Briefings and Podcasts 1 year, 6 months ago
For several months, Multiple Sclerosis News Today columnist and patient advocate Jenn Powell has been hosting an MS podcast. This podcast features conversations with patients, medical professionals, and other members of the community.
Our very own moderator @ed-tobias was the featured guest on episode six. Check out the interview he…[Read more]
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Kevin Schaefer started the topic Dealing with Restless Legs Syndrome in the forum Living With MS 1 year, 6 months ago
In Jenn Powell’s latest column, she writes about how restless legs syndrome interferes with her sleep. Her fervent aching and twitching cause fatigue and prolonged soreness.
Here’s an excerpt: “This is all part of my life with secondary progressive multiple sclerosis. Large active lesions in areas that affect my legs exacerbate my restless l…[Read more]
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Kevin Schaefer replied to the topic #RealTalkRare – Toxic Positivity in the forum Living With MS 1 year, 8 months ago
Hey everyone, this is an excellent column by Teresa Wright-Johnson on this subject.
I especially like this excerpt: “In my life I’ve experienced much loss, adversity, and grief. I have been offered the nauseating, soul-stirring advice to which I am referring, the rationalizations of “at least you’re still here,” “be glad you can still walk,” “i…[Read more]
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Kevin Schaefer replied to the topic #RealTalkRare – Toxic Positivity in the forum Living With MS 1 year, 8 months ago
Hey all, Jaime also wrote a great column on this subject. You can read it here.
I really like this excerpt: “If you’re an MS patient, sometimes you just need to vent, to scream, cry, or talk about how awful, sad, frustrated, and furious you feel. Most people find it difficult to listen to all this passively. Instead, they want to tell you about t…[Read more]
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Kevin Schaefer started the topic Thoughts on States Reopening in the forum Coronavirus COVID-19 Information 2 years, 10 months ago
Hey everyone! Hope you all had a safe and relaxing weekend. For those here in the U.S., I wish you all a good Memorial Day.
So, as states and other places around the world begin to reopen, I wanted to get your thoughts. I don’t want to start anything political here. Rather, I’m just curious if anyone here feels comfortable going out som…[Read more]
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Kevin Schaefer started the topic COVID-19 and Post-Traumatic Growth in the forum Coronavirus COVID-19 Information 2 years, 10 months ago
So I’m sure you’re all pretty tired of hearing about COVID. Paying attention to the news right now is exhausting.
However, I did want to share this column about COVID-19 and post-traumatic growth. The author, Brianna Albers, is a writer for one of our sibling sites. She’s been writing about mental health coping mechanisms, speci…[Read more]
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Kevin Schaefer started the topic Motivation Monday: Setting Personal Goals in the forum Living With MS 2 years, 10 months ago
Hey everyone! Hope you all had a safe and relaxing weekend.
Today, I wanted to start a conversation about setting personal goals. Obviously, it’s an unusual time to even think about this subject. Between the COVID-19 pandemic and just trying to stay healthy, most of us aren’t focused on the future.
Still, I actually think it’s a great time…[Read more]
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Kevin Schaefer started the topic Preparing for a specialist appointment during COVID-19 isolation in the forum Coronavirus COVID-19 Information 2 years, 10 months ago
Since the COVID-19 pandemic is having a major impact on our healthcare services, we have to approach medical appointments differently than before. TeleMed and other virtual services could become the new norm. Still, some appointments and procedures need to be in-person. It raises questions about how we can best approach appointments with our…[Read more]
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Kevin Schaefer started the topic Book Recommendation: Disability Essay Anthology in the forum Living With MS 2 years, 10 months ago
Hey everyone! Hope you all had a safe and relaxing weekend.
I wanted to share this book with you all. This is a collection of essays from the New York Times disability series. The book’s contributors include people living with quadriplegia, chronic illnesses, blindness, and more. The idea is to give people with a plethora of visible and i…[Read more]
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Kevin Schaefer started the topic Accessibility Awareness and Other Changes in the forum Coronavirus COVID-19 Information 2 years, 10 months ago
Hey everyone! Hope you’re all doing well.
Check out Jessie’s latest column here. In thinking about what our world might look like once the COVID-19 pandemic is finally over, Jessie makes some good points. She points out that in spite of everything horrible going on with the virus, it’s also a wake-up call for our society. Company execu…[Read more]
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