Forum Replies Created

  • kevin-schaefer

    Administrator
    February 13, 2024 at 9:07 am in reply to: We’re looking for MS stories!

    Hey everyone! Just a heads up we’re still accepting stories! Please email me for more information at [email protected]. Thanks!

  • kevin-schaefer

    Administrator
    July 19, 2021 at 3:03 pm in reply to: #RealTalkRare – Toxic Positivity

    Hey everyone, this is an excellent column by Teresa Wright-Johnson on this subject.

    I especially like this excerpt: “In my life I’ve experienced much loss, adversity, and grief. I have been offered the nauseating, soul-stirring advice to which I am referring, the rationalizations of “at least you’re still here,” “be glad you can still walk,” “it could always be worse,” “they aren’t suffering anymore,” “God makes no mistakes,” and of course, “at least you don’t look sick.” Although there is an element of truth in each and every statement, the issue here is I am struggling. I don’t need a distraction, I need support. The freedom to just be, without judgment, taking the time I need.”

    Do you have any thoughts on this column?

  • kevin-schaefer

    Administrator
    June 28, 2021 at 12:43 pm in reply to: #RealTalkRare – Toxic Positivity

    Hey all, Jamie also wrote a great column on this subject. You can read it here.

    I really like this excerpt: “If you’re an MS patient, sometimes you just need to vent, to scream, cry, or talk about how awful, sad, frustrated, and furious you feel. Most people find it difficult to listen to all this passively. Instead, they want to tell you about their friend’s cousin’s daughter-in-law who is doing well with her MS or about the new herbal treatment they read of on Facebook. They’ll encourage you to smile and keep on the sunny side of life, and if you’re a Christian like I am, they’ll give you the stupidest piece of advice ever: Remember! God will never give you more than you can handle. (Seriously, have you read the Bible!? God does that all the time. That’s how people grow and spiritually mature!)”

  • kevin-schaefer

    Administrator
    April 13, 2020 at 9:36 am in reply to: Insomnia

    Hey Terry, sorry your post didn’t come out right. It wasn’t edited, but there may have been a technical glitch or something. You’re welcome to repost your original comment if you still have it.