Linda
Forum Replies Created
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Micki,
would you be so kind as to send me the name of your pharmacy also, I’m new here so still finding my way around, but old to trying to find solutions to help this agony!
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I was one of the weird few who had chicken pox twice as a child, also had cold sores as long as I can remember (neither parents ever had them, so who gave them to me before kindergarten then????, hmmmm mom?). Had mono at 16. Dx with MS in my 40’s . Mother has MS, LUPUS, RA. Mothers sister died from complications of MS at 42. Grew up swimming in the Hudson River, NY. Wouldn’t recommend that today.
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Hello Jaime,
Good job taking care of mom!
I agree depression may play a part in your mom’s behavior, but if she is still working a full time job fatigue might also explain a lot. You said she must keep working to keep getting treated for her disease. That is a tremendous pressure and if she is as fatigued as I am from this disease, it might be all she can emotionally handle.
If people don’t understand her disease, like at work, she could be pushing people away, (saying leave me alone), as a way of dealing with them requiring too much of her energy. I have family and friends who are fairly educated about my MS, however, since I don’t look or seem sick they quickly forget and I have to remind them when things will be too much for me.
I would suggest your family continue your research about all the silent symptoms of MS, allow Mom time to rest after work, speak with her Dr about what symptoms might not be being treated and instead of telling her to go for a walk or exercise with her try to lovingly open communications as to what she needs, as a way to pay her back for all the wonderful years she gave you as a fun to be around mom. She is still in there, just hurting right now.
Good luck and God Bless you all.