Quynh-Loan Luong

Thank you Ed and John for pointing out my error.  I tried Baclofen twice and under the care of two different neurologists and some other spasticity med but they didn’t work, but made me feel like a slug – unable to move my legs/a bound slug.  I am lucky, so far, that I have no pain with my spasticity.  CBD used to relax a teeny then stopped.  Liv…[Read more]

Thank you Ed.  Now I have been hoping for FDA approval of the PoNS.

Loan

I have been on Mayzent for SPMS for a week now.  So far so good.  It’s much easier than Ocreveus and the drug is shipped to you.

Hi again!  My side effects were just minor skin infections.  But, Ocreveus didn’t help me. I read on one of the forums that it is more effective with men.   I was switched to Mayzent this month – so far so good and easy too – a small pill a day.  I am 58 and still limp with a walker (spasticity over half of my body, the other half is weak) .  D…[Read more]

Don’t let your chronological age dictates your treatment.  I’ve seen people in their 70s and 80s more youthful and active than people in their 30s or 40s.  At the first meeting with my neuro, he told me that his other MS with as much brain damage lived to 93.  I was 54 at the time.  Older now and looking forward to beating that record and usi…[Read more]

I am 58. I was on Ocrevus when it came out and I was ~55. It didn’t help me. I was downgraded from RMS to SPMS.

Loan