• Thank you Ed.  Now I have been hoping for FDA approval of the PoNS.

    Loan

  • I have been on Mayzent for SPMS for a week now.  So far so good.  It’s much easier than Ocreveus and the drug is shipped to you.

  • Hi again!  My side effects were just minor skin infections.  But, Ocreveus didn’t help me. I read on one of the forums that it is more effective with men.   I was switched to Mayzent this month – so far so good and easy too – a small pill a day.  I am 58 and still limp with a walker (spasticity over half of my body, the other half is weak) .  D…[Read more]

  • Quynh-Loan Luong replied to the topic Too old to be treated? in the forum MS Drugs 1 month ago

    Don’t let your chronological age dictates your treatment.  I’ve seen people in their 70s and 80s more youthful and active than people in their 30s or 40s.  At the first meeting with my neuro, he told me that his other MS with as much brain damage lived to 93.  I was 54 at the time.  Older now and looking forward to beating that record and usi…[Read more]

  • Quynh-Loan Luong posted a new activity comment 1 month ago

    Thank you Ed. Earlier this year I was prescribed Mayzent. I was gungho to try a new medication, hoping something would help. After undergoing all the pre-med tests and waiting for the med rep to call, I changed my mind and, after notifying my doctor, went off meds. I don’t want to eventually have comprised liver function and untamed MS.…

    [Read more]

  • I am 58. I was on Ocrevus when it came out and I was ~55. It didn’t help me. I was downgraded from RMS to SPMS.

    Loan

  • Quynh-Loan Luong became a registered member 1 month ago

    • Hey Quynh, welcome! I’m Kevin Schaefer, Forums Director for this site’s parent company. Please let me, or moderators Ed Tobias and John Connor, know if you have any questions. And feel free to introduce yourself in our welcome forum. Thanks for joining us!

    • Hi Loan,

      We’re glad to have you join with us on the MS forums. I’m sorry that Ocrevus didn’t work for you but I hope that you’ll be able to find another medication that will work. Please let me know if I can help you find any information.

      Ed

    • Thank you Ed. Earlier this year I was prescribed Mayzent. I was gungho to try a new medication, hoping something would help. After undergoing all the pre-med tests and waiting for the med rep to call, I changed my mind and, after notifying my doctor, went off meds. I don’t want to eventually have comprised liver function and untamed MS.…

      [Read more]

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