mehaffey
Forum Replies Created
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Hi Ed
thank you for your reply to my post. Apologies for delay in getting back to you I haven’t been well and off line for a while.
I have a great neurologist but As you say I wish they would tell us about what can happen as i really didn’t put my increasing memory problems and depression down to My MS at first and honestly thought I was ‘cracking up’. Still waiting on MRI which may shed some light on the recent changes.
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Hi Micki
I have been diagnosed 18 years and experienced brain fog badly for the first this year. So stressful, debilitating and exhausting.
I was in work and people asking me questions about a job I have done for 10 years and i couldn’t answer. It was like an out of body experience and I was looking done on myself shouting. ‘Answer’. I couldn’t have even told you my name at the time. The computer became blurred, nothing made sense and i felt totally inadequate. This started happening more often and i went to the doctor thinking it was due to the menopause or worse, was I getting dementia ? It was scary. Then the GP explained that it was down to where the lesions are on my brain which will affect how I process information. It was good to know there is a reason but try explaining it to people looking at you as if your cracking up! Hard to explain as we don’t fully understand it ourselves. And when trying to explain it people go, oh that happens to me dont worry. I want to shout ‘but I do worry’ it’s not your daily forgetting an odd thing it’s like hanging in limbo thinking what is wrong with me I can’t answer a question I should know, I can’t focus and I look and sound like an idiot ! People won’t understand unless they have experienced it.