@mody
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Ed Tobias started the topic Do you think MS is a rare disease? in the forum Living With MS 3 months, 1 week ago
February 28 is Rare Disease Day.
Do you think MS is a rare disease? Is having a day to bring attention to rare diseases important to you?
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Ed Tobias started the topic MS flares, relapses, and exacerbations in the forum Living With MS 3 months, 2 weeks ago
There are MS flares, relapses, and exacerbations.
Did you know they’re all the same thing? Have you had one recently?
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Ed Tobias started the topic Briumvi is a new MS disease-modifying treatment in the forum MS Medications 3 months, 3 weeks ago
The latest weapon in the arsenal of disease-modifying therapy is Briumvi, a new b-cell-depleting therapy.
Have you heard about it? Is this something you might ask your neurologist about trying?
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Ed Tobias started the topic Is MS a pain in your hips? in the forum Living With MS 4 months ago
A lot of people with MS have hip pain.
Did you know that it might be related to steroids often used to treat MS symptoms? Are you doing something to treat it?
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Ed Tobias started the topic Have you had the MS hug? in the forum Living With MS 4 months, 1 week ago
It’s the hug you don’t want. The MS hug can feel like your ribs are being crushed. It can feel like a heart attack.
https://multiplesclerosisnewstoday.com/columns/2022/11/18/ms-hug-frightening-embrace-youd-rather-not-have/Have you had the hug? What was your experience?
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Ed Tobias replied to the topic Should Amazon be in the healthcare field? in the forum Living With MS 4 months, 2 weeks ago
Jilly, Sorry about your new year. I hear you and absolutely know how you feel (probably better than anyone else). There are people who think they know what’s best for us. Sometimes they do have a clue but usually they don’t. I love that you’re making toys for kids in the hood, btw.
Ed
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Ed Tobias replied to the topic Does it matter what you call your MS? in the forum Living With MS 4 months, 2 weeks ago
Great idea, Jilly.
Ed, SPMS 🙂
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Ed Tobias started the topic Have you thought about your brain recently? in the forum Living With MS 4 months, 2 weeks ago
Brain shrinkage, or atrophy, is one of the silent symptoms of MS and it has a direct impact on brain “fog” and other cognitive issues. My neurologist says “time is brain.”. https://multiplesclerosisnewstoday.com/columns/2022/12/09/managing-brain-atrophy-multiple-sclerosis/
Has your neurologist talked with you about brain atrophy?
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Ed Tobias started the topic Does it matter what you call your MS? in the forum Living With MS 4 months, 3 weeks ago
Neurologists have, for years, classified MS in four categories: CIS, RRMS, PPMS, and SPMS.
https://multiplesclerosisnewstoday.com/columns/2022/12/02/are-stages-ms-still-useful-diagnosis/Does it matter what it’s called, except to insurance companies? Do you care how you’re classified?
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Ed Tobias replied to the topic Some ideas to make your home MS-friendly in the forum Living With MS 4 months, 3 weeks ago
I have to say it can be a challenge getting through my door when I’m riding my scooter and also have our dog with me! Ed
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Ed Tobias replied to the topic Should Amazon be in the healthcare field? in the forum Living With MS 4 months, 3 weeks ago
Well, Jilly….you certainly know how to express an opinion. 🙂 I hope your new year is starting well. Ed
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Ed Tobias started the topic Should Amazon be in the healthcare field? in the forum Living With MS 5 months ago
Amazon is trying again to enter the healthcare business.
Would you use Amazon to buy your medications or to receive basic medical care?
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Ed Tobias started the topic Some ideas to make your home MS-friendly in the forum Living With MS 5 months, 2 weeks ago
A few weeks ago I wrote a column about some things to do to make living at home easier.
https://multiplesclerosisnewstoday.com/columns/2022/11/4/best-car-disabled-passenger-access/
You probably have some ideas of your own. What hints can you share for making living with MS easier?
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Ed Tobias posted an update 5 months, 2 weeks ago
Happy holidays to all. Anyone going anywhere special?
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Ed Tobias started the topic What vehicle is best for your disability? in the forum Living With MS 5 months, 3 weeks ago
After years of hauling my mobility scooter around in an SUV I’ve turned a corner. My latest set of wheels is a minivan and I love it!
What do you use when you hit the road? Does it meet your needs?
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Ed Tobias started the topic Is your doctor uncomfortable treating you? in the forum Living With MS 6 months ago
“I am not the doctor for you” is the title of a shocking new study recently published in the journal Health Affairs. It reports that a surprisingly large number of doctors acknowledge being uncomfortable with treating people with a disability. I reported on this in my col…[Read more]
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Ed Tobias started the topic A strategy for dealing with the holidays in the forum Living With MS 6 months ago
Christmas is only about two weeks away and Hanukkah starts a week from Monday. Do you have a plan for dealing with the holidays? I just saw this great column from Beth Ullah. She has a holiday strategy! Do you?
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Ed Tobias started the topic Where is everybody???? in the forum Living With MS 6 months ago
It’s been pretty quiet around here lately? Is everybody hiding? Heck, my condo was hit by Hurricane Ian, followed a month later by Tropic Storm Nicole, and I’m still at my keyboard. How are you doing? Let’s hear from you all!
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Ed Tobias replied to the topic Anyone Been Stirred to Do Something By their MS Diagnosis in the forum Living With MS 6 months ago
I just kept on doin’ what I’d been doin’, John. My MS progressed slowly over the past 42 years, so I didn’t feel the need to do anything special. I just continued my life, eventually getting slower at doing that.
Ed
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Ed Tobias replied to the topic Medical Marijuana – Yes or No? in the forum Alternative Treatments 7 months ago
That’s too bad, Brad. Of course, you can get a similar benefit from the CBD/THC combinations that you can get in many drug stores, and all over the internet.
Ed
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