• Hey Jono

    Just a quick note to sympathise. It’s a shock when you get your first attacks and the resulting diagnosis. I’m another Brit and some 40plus years into the disease. I’m now 65 and still hiking ultra marathons and climbing mountains. There have been many attacks along the way impacting walking, sight, hearing, bladder and bowel, but I’m…[Read more]

  • Nicholas Brown replied to the topic Ibuprofen? in the forum Alternative Treatments 2 months ago

    I used it a lot before I went onto DMTs and found its anti inflammatory ability a help in taking the edge off symptoms. I still use it when I get an MS driven headache. The DMTs (I’m currently on Gilenya) have meant I now use it much less.

  • Nicholas Brown posted a new activity comment 2 months ago

    Wow, that’s a long list. I’m lucky in that for a long period I would return to par after each relapse. I got to a point where I was beginning to slip and went back to my consultant who said that in general they would reckon about 15 years between primary and secondary and that as I had done 27 could I please go onto the drugs now!! I’d really like…

    [Read more]

    • It might be a long list but I’ve been living with MS for 39 years. I haven’t had a real exacerbation in decades, though I’ve slowly gone downhill to the point where I need a scooter to travel more than 200 feet, or so.

      There have been a lot of articles about connections between gut bacteria and MS that you can search and find. Your illness in…[Read more]

  • Nicholas Brown posted a new activity comment 2 months, 1 week ago

    Yes, did 10 years on Avonex, then changed to Gilenya which seems to be working and so much better than stabbing oneself in the thigh once per week! The Avonex was okay but I injected on Thursday evening and had big side effects which only abated properly by Friday afternoon. The Gilenya had no noticeable side effects after a few months but I did…

    [Read more]

    • I was in the Phase III clinical trial for Avonex, so it was my first DMT. But I, too, developed needle fatigue and went from it to Tysabri and then Aubagio and finally Lemtrada. Now, 14 months post Round 2 my MS appears to be on hold and some symptoms are improving. At nearly 71 years old I expect I’ve now use the last of my DMTs.

      Ed

      • Wow, that’s a long list. I’m lucky in that for a long period I would return to par after each relapse. I got to a point where I was beginning to slip and went back to my consultant who said that in general they would reckon about 15 years between primary and secondary and that as I had done 27 could I please go onto the drugs now!! I’d really like…

        [Read more]

        • It might be a long list but I’ve been living with MS for 39 years. I haven’t had a real exacerbation in decades, though I’ve slowly gone downhill to the point where I need a scooter to travel more than 200 feet, or so.

          There have been a lot of articles about connections between gut bacteria and MS that you can search and find. Your illness in…[Read more]

  • Nicholas Brown became a registered member 2 months, 1 week ago

    • Hi Nicholas,

      Welcome to the MS forums.

      I like your the attitude you expressed in your profile. I’m retired after working, full-time, in the stressful news media until the end of 2012. Now, at age 70, I’m not climbing any mountains but I do a lot of writing about MS. Have you been using any DMTs to help hold your MS at bay?

      Ed

      • Yes, did 10 years on Avonex, then changed to Gilenya which seems to be working and so much better than stabbing oneself in the thigh once per week! The Avonex was okay but I injected on Thursday evening and had big side effects which only abated properly by Friday afternoon. The Gilenya had no noticeable side effects after a few months but I did…

        [Read more]

        • I was in the Phase III clinical trial for Avonex, so it was my first DMT. But I, too, developed needle fatigue and went from it to Tysabri and then Aubagio and finally Lemtrada. Now, 14 months post Round 2 my MS appears to be on hold and some symptoms are improving. At nearly 71 years old I expect I’ve now use the last of my DMTs.

          Ed

          • Wow, that’s a long list. I’m lucky in that for a long period I would return to par after each relapse. I got to a point where I was beginning to slip and went back to my consultant who said that in general they would reckon about 15 years between primary and secondary and that as I had done 27 could I please go onto the drugs now!! I’d really like…

            [Read more]

            • It might be a long list but I’ve been living with MS for 39 years. I haven’t had a real exacerbation in decades, though I’ve slowly gone downhill to the point where I need a scooter to travel more than 200 feet, or so.

              There have been a lot of articles about connections between gut bacteria and MS that you can search and find. Your illness in…[Read more]

  • Nicholas Brown's profile was updated 2 months, 1 week ago

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