Multiple Sclerosis News Today Forums logo
  • Home
  • About Our Forum
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Paula Mieczkowski

Home Members Paula Mieczkowski
show less show more
Profile picture of Paula Mieczkowski

@paulamski

What about women??? View
  • Activity
  • Profile
  • Friends 1
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of John Connor

    John Connor started the topic Which MS Symptom Annoys You the Most? in the forum Living With MS 4 days, 19 hours ago

    Fatigue used to be what I hated the most about my MS. Wheelchair tennis sessions started out well – by the end, oh dear.
    Now that I’m in a powered wheelchair, the list of problems has grown exponentially. Not sure of my current myriad ones which I’d choose. Force me to pick one by starting a conversation about yours.
    As MS affects all of us diffe…[Read more]

  • Profile picture of John Connor

    John Connor started the topic Does Anyone Use Medical Marijuana for Spasticity? in the forum Alternative Treatments 1 week, 2 days ago

    Using medical marijuana helps me significantly when it comes to managing my spasticity. However, for various reasons, I can’t get any right now. As such, I’m relying on diazepam at a level that isn’t healthy.
    Do you use medical marijuana for managing spasticity?
    Cheers John

  • Profile picture of John Connor

    John Connor started the topic Do you Get Mental Fatigue? in the forum Living With MS 1 month ago

    If you get Mental Fatigue, have you tried to do anything about it? In my case, it was like working through a rasping smog.
    My neurologist eventually solved mine with modafinil.
    As with any drug they have different effects on all of us. Tell me your experiences, please.

  • Profile picture of John Connor

    John Connor replied to the topic Falling Out Of Bed. Is this an MS thing? in the forum Living With MS 1 month ago

    Hi Jilly,

    This is a new one – the wonders of MS r unceasing!

    Luckily can no longer do anything but lie on my back! Which up to now have always found a tad unlucky.

    Have read that all wheelchair using people still walk in their dreams, even the ones who’ve been that way since birth.

    Besides your Neuro as Ed suggests, maybe an Occupational…[Read more]

    • Profile picture of Ed Tobias
      Ed Tobias replied 1 month ago

      I regularly walk in my dreams. In fact, I was doing it last night…and doing it quite well.

      Anyone else here been dream-walking lately?

      Ed

  • Profile picture of John Connor

    John Connor started the topic Beer Consumption May Be Linked to MS Risk in the forum Treatments and Trials 1 month, 1 week ago

    Calm, calm, calm.

    Beer drinking maybe a risk in causing MS but there doesn’t seem to be any statistical risk in making it worse once you have it. Phew.

    The overall data in the report illustrates recent studies have been very mixed.

    Which is a relief as the occasional (OK mostly daily can of beer) is one of my few pleasures. Especially as I s…[Read more]

  • Profile picture of John Connor

    John Connor started the topic MS Tied to 75% Increased Risk of Mortality in US Study in the forum Treatments and Trials 1 month, 2 weeks ago

    Though MS is not itself a terminal disease, our chances of dying earlier than otherwise are likely to be some 75% higher.
    Not a great start to a topic but there is at least some upside. If you have a private pension in the UK and make it to retirement age, with a disease like MS you can opt for an enhanced annuity. This gives u a fixed annual…[Read more]

  • Profile picture of John Connor

    John Connor replied to the topic Medical Marijuana – Yes or No? in the forum Alternative Treatments 1 month, 2 weeks ago

    No go at all by any of my Dr’s in the UK even though it became quasi-legal a couple of years ago. None of their various hospitals allow it. Even Sativex which is totally legal – though in this case none will fund it.

  • Profile picture of John Connor

    John Connor posted an update 2 months ago

    @tomh440

    Hi Tom,
    Noticed u just visited the Forum and have been a member for 4 years.
    I’ve been a Co-Moderator here for 3 so thought I’d say hullo.
    Am still trying to work out what members would like me to write about?.
    Did u find wot u were looking for etc.
    Cheers John
    PS SOZ, feel like I’ve turned into an Amazon feedback algorithm.

    • Profile picture of Tom Harrison
      Tom Harrison replied 2 months ago
      Hi John,
      I enjoy reading your segments, I gain knowledge! I would like to see if you want to write something about our group called SWiMS. Its short for The Society with MS. Its a patient led community of about 3000 people with MS that are interested in researching the latest upcoming treatments and trials. I will give you the links so you…

      [Read more]

      • Profile picture of John Connor
        John Connor replied 1 month, 3 weeks ago

        Hi Tom
        Did reply to u soon after your message but seems my tech ability uis it’s usual self. [I’m 64 u know].
        Can’t find anything about your SWiMS gp online – u’ll be plsd to know it’s also the name of a leisure shoe company.
        Researching latest T&T is right up my strasse.
        Think I also clicked the friend button in case that helps.
        Cheers John

        • Profile picture of Tom Harrison
          Tom Harrison replied 1 month, 3 weeks ago

          Hey there John, like you i’m a bit technologically challenged. Lets try this and see if it works.
          societywithms.org
          Let me know if you have access, and if you have any questions.
          Thanks for your time!
          Tom

        • Profile picture of Tom Harrison
          Tom Harrison replied 1 month, 3 weeks ago

          It wouldn’t let me post a link to the website but this should work.

  • Profile picture of John Connor

    John Connor started the topic First Person With MS Joins New Myelin Repair Trial in the forum Treatments and Trials 2 months ago

    Now this is exciting. It’s not on a mouse but Annabelle.
    The MS UK Society is reporting this trial is about to start.
    By repurposing existing diabetes and hay fever drugs.
    The trial is testing two drugs in combination:
    Metformin is an existing diabetes treatment.
    Clemastine is an antihistamine used to treat hayfever.
    I tried Clemastine myself f…[Read more]

  • Profile picture of John Connor

    John Connor posted an update 2 months, 2 weeks ago

    @jilleen Hi Jilly,
    How’s it going? Have u transitioned to a powered wheelchair yet? Or is that
    step – ahem – too early yet?
    Let me know how you’re doing.
    Cheers John
    PS New series of ‘The Orville’ about to drop. Now Disney involved – budget has made it look brill.

    • Profile picture of Jilly
      Jilly replied 2 months, 2 weeks ago
      Hi John, nice to hear from you. I still have my squeaky walker, which is very annoying. My PPMS is slow moving, but causes great dysfunction of my body.
      I didn’t know there was a new series of the Orville coming, that’s good news.
    • Profile picture of John Connor

      John Connor started the topic Why Using a Urinary Catheter Can Cause Constipation and What to Do About It in the forum Living With MS 2 months, 2 weeks ago

      According to the British MS Society, bladder dysfunction occurs in at least 80 percent of people with MS.
      As I am most definitely part of the 80%, I was intrigued when this article popped up in my inbox recently ‘Why Using a Urinary Catheter Can Cause Constipation and What to Do About It’ I’ve been self-catheterising – OK, OK, using intermi…[Read more]

    • Profile picture of John Connor

      John Connor posted an update 2 months, 3 weeks ago

      @mody Hi Mody,
      See u just paid the Forum a visit. U were really active 3 years ago – I presume when u just joined us.
      As a Co-Moderator who joined about then – may I ask what u’d like to see flagged up to discuss etc? How r u doing?
      Cheers John

    • Profile picture of John Connor

      John Connor started the topic Low Levels of APP Molecule Found in Patients With MS-related Fatigue in the forum Treatments and Trials 2 months, 3 weeks ago

      With the summer upon us in the Northern hemisphere – we’ve already got an unseasonal heat wave here in the UK this week – this finding of ‘Low Levels of APP Molecule Found in Patients With MS-related Fatigue’ is, to my limited medical knowledge, the first time there may be a scientific explanation for this anchor to the majority of our lives…[Read more]

    • Profile picture of John Connor

      John Connor posted an update 2 months, 3 weeks ago

      @katherine
      Hi Katherine
      How u doing?
      As you’re a ‘newbie’ to MS know how overwhelming dealing with the mental side can be. Let alone the physical.
      Any questions I could help u with?
      Just another MS’er, but further along the journey.
      Cheers John

    • Profile picture of John Connor

      John Connor started the topic The Problem of Medical Cannabis in the UK in the forum Treatments and Trials 3 months ago

      In the UK even getting medicinal cannabis prescribed is a struggle. I wrote about this in one of my columns back in 2019. It was kicked off by a battling mother of a child with severe epilepsy. The only thing that worked was liquid marijuana which she bought legally in Holland and was eventually caught smuggling through customs. She had no choice…[Read more]

    • Profile picture of John Connor

      John Connor started the topic Nature Podcast: The quest to prevent MS in the forum Treatments and Trials 3 months ago

      Up until now, we here at Multiple Sclerosis News Today have published 83 articles about, or at least mentioning, the Epstein-Barr virus (EBV) in connection to a possible cause of MS.
      Many of us find it difficult to take in complex written information. To be honest, even though this is part of my job as a moderator of this forum, I also feel…[Read more]

    • Profile picture of John Connor

      John Connor replied to the topic The MSer Who Lay in Bed for 2 Years and Can Now Walk Again in the forum Living With MS 3 months, 1 week ago

      Thank u v. much Sammy. Had done a lot of noodling about on the net & only fished up Coke bottles.

    • Profile picture of John Connor

      John Connor started the topic The MSer Who Lay in Bed for 2 Years and Can Now Walk Again in the forum Living With MS 3 months, 1 week ago

      It’s column plugging time again.

      This week it’s about meeting Chris in a coffee bar and him telling me about a therapy that I’d never heard of: ‘What sparked my interest was his story about how he ended up in bed for two years with a totally dead leg, and then restored it with some sort of electrical therapy. My right leg has been immobile for…[Read more]

    • Profile picture of John Connor

      John Connor posted an update 3 months, 2 weeks ago

      @lucia Hi Akiko,
      See u joined us 8 months ago. Has our Forum helped in any way with being a carer
      for your husband?
      If not r there any resources I can drum up that might help. Sure u’ve been scouring the net like we all do. U never know though!
      Cheers John

    • Profile picture of John Connor

      John Connor started the topic The Tricks of Intermittent Catheterization When You’re in a Wheelchair in the forum Living With MS 3 months, 2 weeks ago

      Yup, a plug for my latest column. The title is about the methodologies I’ve discovered to wear trousers that also allow me to pee using a catheter.

      If you also use a wheelchair and catheterize, how do you manage? Any tips?

    • Load More
    Profile Photo Cynthia Perkins Profile Photo Susan

    Login

    Register

    Search forums

    Generic selectors
    Exact matches only
    Search in title
    Search in content
    Post Type Selectors
    Search in posts
    Search in pages
    Search in posts
    Search in pages

    Who’s Online

    There are no users currently online

    Newest Topics

    • Which MS Symptom Annoys You the Most? by John Connor
    • Marijuana, MS and Guns — Do They Mix? by Ed Tobias
    • Does Anyone Use Medical Marijuana for Spasticity? by John Connor
    • Do You Travel With Your Medications? by Ed Tobias
    • How Do You Beat the Heat? by Ed Tobias

    Recent Replies

    • Night Sweats – Are you Kidding me??
    • Night Sweats – Are you Kidding me??
    • Night Sweats – Are you Kidding me??
    • Night Sweats – Are you Kidding me??
    • Night Sweats – Are you Kidding me??

    Members

    Newest | Active | Popular
    • Profile picture of Ed Tobias
      Ed Tobias
      Active 10 hours, 10 minutes ago
    • Profile picture of Kevin Schaefer
      Kevin Schaefer
      Active 18 hours, 4 minutes ago
    • Profile picture of Kellie Benn
      Kellie Benn
      Active 19 hours, 5 minutes ago
    • Profile picture of Rochelle
      Rochelle
      Active 1 day, 5 hours ago
    • Profile picture of John Connor
      John Connor
      Active 1 day, 17 hours ago

    Forums

    • 31 Days of MS
    • Coronavirus COVID-19 Information
    • Welcome
    • Flash Briefings and Podcasts
    • Newly Diagnosed
    • Alternative Treatments
    • Durable Medical Equipment
    • Living With MS
    • MS Medications
    • Parents​ ​and​ ​Caregivers​
    • Polls & Quizzes
    • Let’s Have Some Fun!
    • Treatments and Trials

    US Hospitals Are Now Required to List Service Prices. But Does That Help?

    • Most popular topics
    • Topics with no replies

    Multiple Sclerosis News Today

    BioNews Services, LLC
    3 W Garden St
    Suite 700
    Pensacola, FL 32502
    Email: [email protected]
    Phone: +1-800-936-1363
    • Email Forum Support
    • Publishing Team
    • Leadership
    • Our Culture
    • Corrections Policy
    • Careers
    • Contact Us
    • Terms of Service
    • Privacy Policy
    • Disable Notifications
    • Advertising Policy

    Disclaimer

    Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

    BioNews, Inc.

    3 W Garden St
    Suite 700
    Pensacola, FL 32502
    Website: bionews.com
    Email: [email protected]
    Phone: 1-800-936-1363

    • Email Forum Support
    • Publishing Team
    • Leadership
    • Our Culture
    • Corrections Policy
    • Careers
    • Contact Us
    • Terms of Service
    • Privacy Policy
    • Disable Notifications
    • Advertising Policy
    Disclaimer

    This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

    Copyright © 2017-2022 All rights reserved.

    ©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

    CONTACT US

    We're not around right now. But you can send us an email and we'll get back to you, asap.

    Sending

    Log in with your credentials

    or     Create an account

    Lost your password?
    Verify you are not a robot

    Forgot your details?

    I remember my details

    Create Account

    Verify you are not a robot