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  • Phil Thompson posted a new activity comment 5 months, 2 weeks ago

    Hi Keith, I saw your posts on leg spasticity. I have MS and just started having killer leg spasms and am looking for any remedies. I just got a medical marijuana card and your positive comment for relief excites me. Does your cannabis include THC or is it basically 10to1 CBD oil? Also appreciate your magnesium and B12 comments.
    Best Regards,…

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  • Phil Thompson posted a new activity comment 6 months, 3 weeks ago

    Thanks Ed, I am glad that I found the side and look forward to reading all comments. 1st I will never give up hope. I’m do not consider all neuro’ s in SW Ohio bad, that was basically my early years of MS. 2. At The Cleveland Clinic it was my decision to forgo meds because I wondered how I would ever realize it was working. Because it’…

    [Read more]

  • I have been testing Ampyra for a month. I haven’t seen any real walking improvement  however, I have had difficulty going to sleep and also had some new spastic anxiety reactions. At best, I couldn’t fall asleep before 2:00 am. I looked up the side affects and it listed insomnia. It also said no more than 2% should experience it. Call me odd but…[Read more]

  • Phil Thompson became a registered member 6 months, 3 weeks ago

    • Hi Phil,

      Welcome to the MS forums. I’m sorry you’ve had such a difficult time with diagnosis, treatment and crummy neuros. (I always thought the MS people at Mayo were pretty good). A good disease modifying medication might have slowed, or stopped, your progression. There are more than 15 of them now, several just approved within the past couple…[Read more]

      • Thanks Ed, I am glad that I found the side and look forward to reading all comments. 1st I will never give up hope. I’m do not consider all neuro’ s in SW Ohio bad, that was basically my early years of MS. 2. At The Cleveland Clinic it was my decision to forgo meds because I wondered how I would ever realize it was working. Because it’…

        [Read more]

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