Forum Replies Created

  • phyllis

    Member
    September 6, 2018 at 4:21 pm in reply to: When did you know something was wrong? What was your first MS symptom?

    My first symptom was a slip and fall that caused me to break my right foot. I fell again 4 years later when my leg “gave way a second time” and broke the same foot again.

    Despite reporting these two falls to my Mayo Clinic PCP along with numbness, tingling, fatigue and electric shock sensations in my neck, I was not correctly diagnosed until more than 4 years from the first fall.

    Only after refusing to accept his latest misdiagnosis of depression did my PCP order a MRI and spinal tap.  So many years of frustration and countless medical tests.

  • phyllis

    Member
    September 6, 2018 at 4:08 pm in reply to: Are you over 55 and deciding if Ocrevus is right for you?

    Yes, I have had 3 doses of Ocrevus (the initial starter 2 doses and one full dose). The first infusion for PPMS was done at age 59 1/2. The first full dose a week after turning 60.  I have also been taking high dose biotin for about one year.  My next scheduled in Ocrevus infusion takes place in December 2018.

    At that time, I will reevaluate my decision.  Thank you for starting this discussion and for your very informative articles.