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  • Paul J Mello posted a new activity comment 1 month, 1 week ago

    Hi again,yesterday i had a virtual appt with who will be my new neuro and after my first consultation want me to start on tecfidera in hopes that it will slowdown my secondary ms symptoms . Was all for it but now after reading about it and researching it i am not so sure
    • I saw my new neuro today and he wants me to try tecfidera. I went to the reviews on yahoo and it leaves me wondering if i .am doing the right thing ??

    • Paul J Mello posted a new activity comment 2 months ago

      Today are you on anything at all,as for myself i still take baclofen 10mgs 3 times a day and thats it. I stillget around but not well anymore and not sure what to do. my neuro retired about 10 year back and i decided not to replace him. All the damage from the ms is here on me and i do not know than anything would help now to make t. All…

      [Read more]

      • You were DXed before me but we’re at the same stage in life. I turned 72 a week ago and retired from the broadcast news media at the end of 2012. I walk short distances (100 yards or less) with the help of two canes and my Bioness L-300 Go. For longer I use scooter.

        I’ve been very fortunate to have been with the same, excellent neuro for…

        [Read more]

      • Hi again,yesterday i had a virtual appt with who will be my new neuro and after my first consultation want me to start on tecfidera in hopes that it will slowdown my secondary ms symptoms . Was all for it but now after reading about it and researching it i am not so sure
      • Paul J Mello posted a new activity comment 2 months ago

        Sure thing,and as you know there was absolutely nothing back then to help us or slow it down.
          • Oh, I know that well. I was one of the subjects in the Phase III for Avonex. As it turned out, I received the placebo but the med worked so well they ended the trial early and put us all on the real stuff. Since then I’ve used Tysabri, Aubagio and Lemtrada…the last being the best of the bunch. It’ll also be my final DMT.
              • Today are you on anything at all,as for myself i still take baclofen 10mgs 3 times a day and thats it. I stillget around but not well anymore and not sure what to do. my neuro retired about 10 year back and i decided not to replace him. All the damage from the ms is here on me and i do not know than anything would help now to make t. All…

                [Read more]

                • You were DXed before me but we’re at the same stage in life. I turned 72 a week ago and retired from the broadcast news media at the end of 2012. I walk short distances (100 yards or less) with the help of two canes and my Bioness L-300 Go. For longer I use scooter.

                  I’ve been very fortunate to have been with the same, excellent neuro for…

                  [Read more]

                • Hi again,yesterday i had a virtual appt with who will be my new neuro and after my first consultation want me to start on tecfidera in hopes that it will slowdown my secondary ms symptoms . Was all for it but now after reading about it and researching it i am not so sure
            • Find a cure

            • Paul J Mello became a registered member 2 months ago

              • Hi Paul,
                Welcome – loads of info, research & experiences on here.
                You can also start topics – my fellow
                moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
                I see you’ve already got stuck in – well done sir.
                Cheers John
                • Hi Paul,

                  Welcome to the forums. You’re one of the few people here who was diagnosed with MS before I was (in 1980). So, your insights will be particularly welcome. I hope you’ll continue to join in some of our topic discussions.

                  Ed

                  Ed

                    • Sure thing,and as you know there was absolutely nothing back then to help us or slow it down.
                        • Oh, I know that well. I was one of the subjects in the Phase III for Avonex. As it turned out, I received the placebo but the med worked so well they ended the trial early and put us all on the real stuff. Since then I’ve used Tysabri, Aubagio and Lemtrada…the last being the best of the bunch. It’ll also be my final DMT.
                            • Today are you on anything at all,as for myself i still take baclofen 10mgs 3 times a day and thats it. I stillget around but not well anymore and not sure what to do. my neuro retired about 10 year back and i decided not to replace him. All the damage from the ms is here on me and i do not know than anything would help now to make t. All…

                              [Read more]

                              • You were DXed before me but we’re at the same stage in life. I turned 72 a week ago and retired from the broadcast news media at the end of 2012. I walk short distances (100 yards or less) with the help of two canes and my Bioness L-300 Go. For longer I use scooter.

                                I’ve been very fortunate to have been with the same, excellent neuro for…

                                [Read more]

                              • Hi again,yesterday i had a virtual appt with who will be my new neuro and after my first consultation want me to start on tecfidera in hopes that it will slowdown my secondary ms symptoms . Was all for it but now after reading about it and researching it i am not so sure
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