@shorty
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shorty replied to the topic Wow – Small Trial of Robotic Exoskeleton Helps Walking & Brain Function in the forum Treatments and Trials 1 year, 9 months ago
Nasa is not the only reputable authority on the existence of Xenomorph’s John, I’m sure there would be some readers of this column who could vouch for them. Unfortunately.
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shorty replied to the topic Over 50% of MS Patients Report Urinary Problems in Italian Study in the forum Living With MS 1 year, 9 months ago
You certainly do need to do your homework John. When I was in hospital being nuked, radiation therapy, a doctor arrogantly, without informing me let alone discussing it, changed my prescription from Mirabegron to Oxybutynin. I had been using this previously but found I couldn’t tolerate it so we had a verbal altercation in the 4 bed ward which was…[Read more]
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shorty replied to the topic Having a Fall – But in a Wheelchair? in the forum Living With MS 1 year, 9 months ago
Some people will do anything to get attention. You young people these days. I don’t know how you live with yourself John, disgraceful!
I am still able to walk, with the aid of a Hip Flexion Assist Device, although staggering around like a drunken orangutan, frightening people, would be a better description for it. I do fall over a couple of times…[Read more]
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shorty replied to the topic Wow – Small Trial of Robotic Exoskeleton Helps Walking & Brain Function in the forum Treatments and Trials 1 year, 9 months ago
I’d be it it too John. It does sound like fun and if it also might be of some benefit why not?
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shorty replied to the topic Slipping Over the Event Horizon Into SPMS in the forum Living With MS 1 year, 10 months ago
Thanks John. I keep pretty well up to date with it but a lot of people do seem to struggle. Have a good one.
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shorty replied to the topic A tool for helping to choose a DMT in the forum MS Medications 1 year, 10 months ago
Sounds interesting Ed. Often medico’s will only recomend one of their favorites or they are not up with what treatments are available.
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shorty replied to the topic You’ve Got to Hide Your MS Away in the forum Living With MS 1 year, 10 months ago
It’s really unfortunate that so meny people feel they need to hide their MS. The more people who do speak up about it the more recogition it gets in the wider community and the more understanding is developed. Being thought to be drunk is not nice and causes problems. When i got a HFAD one of the bennefits of it was that people no longer assumed…[Read more]
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shorty replied to the topic Slipping Over the Event Horizon Into SPMS in the forum Living With MS 1 year, 10 months ago
It’s still a commendable enterprize John. Finding information about MS and its effects, treatments and consequences can be difficult for a lot of people.
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shorty replied to the topic Fatigue Prevalence Remains High in MS Patients in the forum Living With MS 1 year, 10 months ago
Same here John. I tried Modafinil but it does nothing for me. Have a good one.
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shorty replied to the topic 31 Days of MS: How I Live Drug-free with MS in the forum Alternative Treatments 1 year, 10 months ago
I have lived for 12 years wwwith PPMS, only because there are no DMT’s available for PPMS here in Australia, appart from Ocrevus which costs over $35,000/year here so it is out of reach. I also now have tonsular SCC, stage 4, and my last CT scan showed the metastatic tumors in my lungs have shrunk over the last 3 months. I am not on any treatment…[Read more]
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shorty posted an update 2 years, 2 months ago
G’day All,
I propose that we all lobby our elected representatives to have the year 2020 removed from the calendar completely. Also that this particular forum be used by all to vent their feelings as an act of joint catharsis by listing all the bad things that happened during the year here so that they can be all left behind when 2020 is removed…[Read more]
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shorty replied to the topic Santa Claus Is Still Comin’ to Town in the forum Living With MS 2 years, 2 months ago
G’day All,
Apparently Santa struggles a bit here in Australia because of the heat and his <span style=””>inappropriate</span> clothing. I’m sure these will be exacerbated by MS. The poor old bastard. There are, however, some good cooling vests available now though. I have found a way to add another convincing argument when dealing with sceptical…[Read more]
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shorty replied to the topic What mobility aid helps you to get around? in the forum Durable Medical Equipment 2 years, 3 months ago
G’day, I use a Hip Flexion Assist Device HFAD made by Becker Orthopedics. It is the best invention since canned beer. I did have to modify it because I have a lot of lower back pain but now it’s great. Also have a look at these for a scooter/wheel chair. They are made in New Zealand and are made to order so it takes about 6 months to get one so…[Read more]
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shorty replied to the topic Cooling Vests in the forum Durable Medical Equipment 2 years, 3 months ago
G’day, I am in Australia so summer is coming and looking forward to 40+ degree Celcius temps, NOT. The best cooling vest I have found is
https://www.polarproducts.com/polarshop/pc/Adjustable-Cooling-Pack-Vests-c535.htm
Phase change ones, frozen cooling packs that melt while using, are the most effective and water ice is more effective than…[Read more]
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shorty replied to the topic Help Design a Mobility Scooter for Those with Multiple Sclerosis in the forum Durable Medical Equipment 2 years, 3 months ago
G’day Alicia, There are very few examples of any technology that can’t be improved on, particularly when all the users have differing requirements. They haven’t made the perfect car yet….
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shorty became a registered member 2 years, 4 months ago
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Hi Shorty,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
Cheers John
PS About your problem with your Oncologist I’m no medical journo but it sounds the sort of story that would be of interest to whichever major paper c… -
Hi Shorty,
We’re glad you joined us here in the forums. Since I’m in the US I don’t know much about the health care system in Australia but I wonder if your MS doc or nurse might be able to have a chat with your oncologist to get him or her on the right track.
Good luck to you,
Ed
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