Biography

Name

Susan T

Nickname

susan-t

Year of Birth

1961

Gender

Female

Location

USA

Relationship

Patient

Short Bio

I’ve been living with MS for 15 years now. I’m wheelchair bound but can transfer to toilet with a walker. My right arm is weak and rigid and hand closes up with fatigue.
I’ve been on copaxone, novantrone, Tysabri, tecidera (?) plegidy and Ocrevus. Nothing stopped progression except maybe the on oral medication. But I have the JC virus. And O kills my immune system so I’m on nothing. Thinking of IV nutrition.  But it costs a lot. I’m 59 years old. MS maybe since childhood. Falls, sprained ankle (R) more than once. Called clumsy and always skinned knees!!

How did you find us?

MS News Website

How long have you or the person that you are caring for had MS?

15 years

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