MS Support: 11 Organizations You Should Know

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by Patricia Silva PhD |

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1. National Multiple Sclerosis Society (NMSS)

This non-profit organization was formed by passionate volunteers who wanted to change the scenario for patients with multiple sclerosis (MS) and ultimately contribute to a world free from MS. With a network of chapters throughout the 50 US states, the National Multiple Sclerosis Society helps the MS community by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.

Know more here.

2. Multiple Sclerosis Association of America (MSAA)

The national, non-profit organization Multiple Sclerosis Association of America was founded in 1970 with the mission of being a “leading resource for the entire MS community, [and] improving lives today through vital services and support,” as stated by the MSAA. The organization provides support and services to MS patients and their loved ones through programs such as a Helpline with trained specialists, award-winning educational videos and publications, safety and mobility equipment distribution, cooling accessories for heat-sensitive individuals, and a lending library.

Know more here.

3. Multiple Sclerosis Foundation (MSF)

Founded in 1986, the Multiple Sclerosis Foundation is a service-based and non-profit organization based in Fort Lauderdale, Florida and which works through a comprehensive approach to help MS patients improve their health and well-being. The organization offers programs and support particularly focused on helping patients be self-sufficient and safe in their homes. Simultaneously, the MSF is also focused on increasing public awareness and promote understanding about multiple sclerosis through its educational programs.

Know more here.

4. Accelerated Cure Project (ACP)

This patient-founded national non-profit organization has a main mission to help find a cure for multiple sclerosis. To do so, ACP’s efforts focus on supporting research to accelerate scientific advances, improve diagnosis, optimize treatment and ultimately cure MS. “ACP believes that research is the only way to greatly improve the outlook for people with MS. The organization promotes scientific collaboration and accelerates research by rapidly and cost-effectively providing researchers with data and biospecimens they need to explore novel research ideas that can lead to better care for people with MS,” as stated by the ACP.

Know more here.

5. Myelin Repair Foundation

The Myelin Repair Foundation was created in 2004 with a specific purpose of demonstrating myelin repair for MS, which the organization considers “a new and comprehensive model for medical research and drug development that significantly shortens the time to market for new medicines for all diseases.” Since its foundation, the Myelin Repair Foundation funded basic research in the field, which led to the identification of more than 100 novel potential myelin repair treatment targets and the discovery of multiple new research tools, while it has raised about $60 million to support its myelin repair research program.

Know more here.

6. Multiple Sclerosis International Federation

The Multiple Sclerosis International Federation is not exactly an organization, but it is a unique global network of organizations focused on fighting multiple sclerosis. The federation has 47 worldwide organizations as members and has established partnerships with several others. By bringing together the work from the different organizations, the MS International Federations aims to strengthen the individual efforts (particularly in countries where there is little support), campaign for MS awareness, provide information, support international research, and improve the lives of MS patients in over 105 countries.

Know more here.

7. American Autoimmune Related Diseases Association

While not focused solely on multiple sclerosis, the American Autoimmune Related Diseases Association can help MS patients since it works to eradicate all autoimmune diseases and alleviate its socioeconomic impact. The national non-profit health agency is dedicated to raising national attention to autoimmune diseases while fostering and accelerating collaborations in the fields of education, public awareness, research, and patient services in an effective, ethical and efficient manner.

Know more here.

8. National Organization for Rare Disorders (NORD)

Suffering from a rare disease for which there is no cure may be lonely sometimes, but the National Organization for Rare Disorders (NORD) works to unify the voices of individuals with these conditions and their families and caregivers, so that no one has to fight alone. “For more than 30 years, we have been providing services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments. We are here to support every member of the rare disease community with programs and services focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases,” explain the organization.

Know more here.

9. American Association of People with Disabilities

Losing the ability to walk is one of the problems associated with multiple sclerosis and the American Association of People with Disabilities (AAPD) can help patients cope with this problem.  The AAPD works for a paradigmatic change and increased political and economic power for people with disabilities. “Disability is a natural part of the human experience that influences all of us. As a connector, AAPD is a bridge that joins the disability community with our friends, adversaries, family, businesses, schools, and the community at large, amplifying a powerful voice for change,” stated the AAPD.

Know more here.

10. American Disability Association

Similarly to the AAPD, the American Disability Association (ADA) also aims to meet the information needs of all Americans with disabilities, as well as promote awareness of disability culture by building bridges of understanding among all people, and enhance its collective quality of life and access to freedom. The organization works by identifying problems and strengths in individual communities, interconnecting communities, encouraging free sharing of information and resources, and establish partnerships.

Know more here.

11. Disabled Peoples’ International (DPI)

Disabled Peoples International (DPI) describes itself as “a human rights organization committed to the protection of the rights of people with disabilities and the promotion of their full and equal participation in society.” The organization was created in 1981 and it works by representing disabled people in more than 130 countries through active membership of national organizations.

Know more here.

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Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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