MS Support: 11 Organizations You Should Know

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5. Myelin Repair Foundation

The Myelin Repair Foundation was created in 2004 with a specific purpose of demonstrating myelin repair for MS, which the organization considers “a new and comprehensive model for medical research and drug development that significantly shortens the time to market for new medicines for all diseases.” Since its foundation, the Myelin Repair Foundation funded basic research in the field, which led to the identification of more than 100 novel potential myelin repair treatment targets and the discovery of multiple new research tools, while it has raised about $60 million to support its myelin repair research program.

Know more here.

6. Multiple Sclerosis International Federation

The Multiple Sclerosis International Federation is not exactly an organization, but it is a unique global network of organizations focused on fighting multiple sclerosis. The federation has 47 worldwide organizations as members and has established partnerships with several others. By bringing together the work from the different organizations, the MS International Federations aims to strengthen the individual efforts (particularly in countries where there is little support), campaign for MS awareness, provide information, support international research, and improve the lives of MS patients in over 105 countries.

Know more here.

7. American Autoimmune Related Diseases Association

While not focused solely on multiple sclerosis, the American Autoimmune Related Diseases Association can help MS patients since it works to eradicate all autoimmune diseases and alleviate its socioeconomic impact. The national non-profit health agency is dedicated to raising national attention to autoimmune diseases while fostering and accelerating collaborations in the fields of education, public awareness, research, and patient services in an effective, ethical and efficient manner.

Know more here.

8. National Organization for Rare Disorders (NORD)

Suffering from a rare disease for which there is no cure may be lonely sometimes, but the National Organization for Rare Disorders (NORD) works to unify the voices of individuals with these conditions and their families and caregivers, so that no one has to fight alone. “For more than 30 years, we have been providing services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments. We are here to support every member of the rare disease community with programs and services focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases,” explain the organization.

Know more here.

Patrícia holds her PhD in Medical Microbiology and Infectious Diseases from the Leiden University Medical Center in Leiden, The Netherlands. She has studied Applied Biology at Universidade do Minho and was a postdoctoral research fellow at Instituto de Medicina Molecular in Lisbon, Portugal. Her work has been focused on molecular genetic traits of infectious agents such as viruses and parasites.
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Patrícia holds her PhD in Medical Microbiology and Infectious Diseases from the Leiden University Medical Center in Leiden, The Netherlands. She has studied Applied Biology at Universidade do Minho and was a postdoctoral research fellow at Instituto de Medicina Molecular in Lisbon, Portugal. Her work has been focused on molecular genetic traits of infectious agents such as viruses and parasites.
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