10 MS Support Organizations You Should Know About

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by Marta Ribeiro |

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Living with a complex disease like multiple sclerosis (MS) can be very difficult. You’ll probably feel very overwhelmed as soon as you’re diagnosed. What exactly is MS? Where can you find support?

There are several organizations that focus their efforts on supporting those who live or know someone who lives with MS. We’ve put together this list to help you learn more about some of these organizations:

1. National Multiple Sclerosis Society (NMSS)

This non-profit organization was formed by passionate volunteers who wanted to change the lives of multiple sclerosis patients and ultimately contribute to a world free from MS. With a network of chapters throughout the 50 states, the National Multiple Sclerosis Society helps the MS community by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.

Learn more here.

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2. Multiple Sclerosis Association of America (MSAA)

The national, non-profit organization Multiple Sclerosis Association of America was founded in 1970 with the mission of being a “leading resource for the entire MS community, [and] improving lives today through vital services and support.” The organization provides support and services to MS patients and their loved ones through programs such as a Helpline with trained specialists, award-winning educational videos and publications, safety and mobility equipment distribution, cooling accessories for heat-sensitive individuals, and a lending library.

Learn more here.

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3. Multiple Sclerosis Foundation (MSF)

Founded in 1986, the Multiple Sclerosis Foundation is a service-based non-profit organization based in Fort Lauderdale, Florida that works through a comprehensive approach to help MS patients improve their health and well-being. The organization offers programs and support particularly focused on helping patients maintain independence and stay safe in their homes. Simultaneously, the MSF is also focused on increasing public awareness and promoting understanding of multiple sclerosis through its educational programs.

Learn more here.

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4. Accelerated Cure Project (ACP)

This patient-founded national non-profit organization has a main mission to help find a cure for multiple sclerosis. To do so, ACP’s efforts focus on supporting research to accelerate scientific advances, improve diagnosis, optimize treatment and ultimately cure MS. According to the ACP, “ACP believes that research is the only way to greatly improve the outlook for people with MS. The organization promotes scientific collaboration and accelerates research by rapidly and cost-effectively providing researchers with data and biospecimens they need to explore novel research ideas that can lead to better care for people with MS.”

Learn more here.

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5. Myelin Repair Foundation

The Myelin Repair Foundation was created in 2004 with a specific purpose of demonstrating myelin repair for MS, which the organization considers “a new and comprehensive model for medical research and drug development that significantly shortens the time to market for new medicines for all diseases.” Since its inception, the Myelin Repair Foundation has funded basic research in the field, which led to the identification of more than 100 novel potential myelin repair treatment targets and the discovery of multiple new research tools. It has also raised approximately $60 million to support its myelin repair research program.

Learn more here.

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6. Multiple Sclerosis International Federation

The Multiple Sclerosis International Federation is not exactly an organization, but it is a unique global network of organizations focused on fighting multiple sclerosis. The federation’s members include 47 organizations worldwide and it has established partnerships with several others. By bringing together the work from different organizations, the MS International Federation aims to strengthen the individual efforts (particularly in countries where there is little support), campaign for MS awareness, provide information, support international research, and improve the lives of MS patients in more than 105 countries.

Learn more here.

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7. American Autoimmune Related Diseases Association

While not focused solely on multiple sclerosis, the American Autoimmune Related Diseases Association can help MS patients as it works to eradicate all autoimmune diseases and alleviate their socioeconomic impact. The national non-profit health agency is dedicated to raising national attention to autoimmune diseases while fostering and accelerating collaborations in the fields of education, public awareness, research, and patient services in an effective, ethical and efficient manner.

Learn more here.

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8. National Organization for Rare Disorders (NORD)

Suffering from a rare disease for which there is no cure can be lonely at times, but the National Organization for Rare Disorders (NORD) works to unify the voices of patients, their families and caregivers, so that no one has to fight alone. “For more than 30 years, we have been providing services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments. We are here to support every member of the rare disease community with programs and services focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases,” explain the organization.

Learn more here.

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9. American Disability Association

Similar to the AAPD, the American Disability Association (ADA) also aims to meet the information needs of all Americans with disabilities, as well as promote awareness of disability culture by building bridges of understanding among all people, and enhance the community’s collective quality of life and access to freedom. The organization works by identifying problems and strengths in individual communities, interconnecting communities, encouraging free sharing of information and resources, and establish partnerships.

Learn more here.

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10. Disabled Peoples’ International (DPI)

Disabled Peoples International (DPI) describes itself as “a human rights organization committed to the protection of the rights of people with disabilities and the promotion of their full and equal participation in society.” The organization was created in 1981 and it works by representing disabled people in more than 130 countries through active membership of national organizations.

Learn more here.

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Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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