I wonder how people manage all the information out there about @HSCT. I consider myself willing to accept quite a bit of risk to improve my life/health, but the idea of trying to actually navigate doing the procedure is overwhelming! I suppose that I am really risk-averse, but it’s because I don’t have the background to understand what could go wrong and how likely it is, and I certainly don’t have the ability to determine which facilities are staffed appropriately, what are the qualifications of same, etc. Etc. I feel a little desperate and I know that many others do, too. How do you do it?
Diagnosed in 1999, I’ve discovered to be patient & wait until I feel better before attempting anything new. Otherwise, its overwhelming & ruins rest of day.
Ask often for help. Tell providers you need help & where to go to ask.
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I wonder how people manage all the information out there about @HSCT. I consider myself willing to accept quite a bit of risk to improve my life/health, but the idea of trying to actually navigate doing the procedure is overwhelming! I suppose that I am really risk-averse, but it’s because I don’t have the background to understand what could go wrong and how likely it is, and I certainly don’t have the ability to determine which facilities are staffed appropriately, what are the qualifications of same, etc. Etc. I feel a little desperate and I know that many others do, too. How do you do it?
I with you Lisa I have the same concerns and I do consider myself pretty desperate as well. I’ve been diagnosed with primary progressive MS in 2006.
I am in the same boat,very hard for me to understand
Diagnosed in 1999, I’ve discovered to be patient & wait until I feel better before attempting anything new. Otherwise, its overwhelming & ruins rest of day.
Ask often for help. Tell providers you need help & where to go to ask.