May 12, 2020 Columns by Jessie Ace Do You Speak Candidly with Your Partner About Your Diagnosis? I hate needles. Being told Iād need to do injections was the worst news ever, second only to my diagnosis of multiple sclerosis.Ā Sitting in the neurologistās office with my husband, Paul, was terrifying. I was 22 and newly diagnosed with…
March 27, 2020 News by Joana Carvalho, PhD Mix of Broad and Specific Language May Help in Talking About MS Using a mix ofĀ broad diagnostic terms and more disease-specific ones may help physicians and patients to better communicate symptoms of autoimmune disordersĀ like multiple sclerosis (MS) that are not always obvious or easy to explain, a study reported. The study, “Using autoimmune strategically: Diagnostic lumping, splitting,…
December 10, 2019 Columns by Jessie Ace 5 Things You Should Avoid Saying to Someone with a Chronic Illness After having multiple sclerosis for six years, Iāve decided there are five things “healthy” people might not understand about the disease, and it really drives me crazy.Ā So, I’ve compiled some common misconceptions and advice to help spread awareness among those who aren’t familiar…
September 4, 2019 News by Steve Bryson, PhD MS Relationships Improved by Togetherness and Communication, Study Suggests Relationships between multiple sclerosis patients and their intimate partners were enhanced when the couple worked together to make lifestyle changes, and to develop skills to improve communication, a study shows.Ā
February 28, 2019 Columns by Laura Kolaczkowski Breaking Down the Silos in the MS Community In the research world, references to breaking down silos abound, and weāre not talking about those found on the farm. These figurative silos are where information is contained and not shared outside of a particular area. Researchers work within their own organization, rarely sharing their work with others doing…
November 9, 2017 News by Marta Figueiredo, PhD Survey Helps Improve Communication Between Women with MS and Healthcare Providers A national survey in the U.S. revealed that 98% of women newly diagnosed with multiple sclerosis struggle to discuss important personal concerns with their healthcare team.
October 3, 2016 Columns by Teresa Wright-Johnson The Patient and Doctor Bond: A Necessary Requirement I have been under the care of physicians for as long as I can remember. Cardiologists, primary and several others. In the past few years, added to this list is a neurologist. I must say that I have been fortunate. I am ministered to by caring, esteemed, inspiring and…
September 30, 2016 News by Alice MelĆ£o, MSc Satisfaction with MS Therapy Influenced by Doctor-Patient Communication, Study Finds A study published in the BMC Neurology journal emphasizedĀ that clear and regularĀ communication between physicians and patients with multiple sclerosis (MS) is essential for patient satisfaction with a given treatment, which could result in therapy persistence. Uwe Zettl and colleagues conducted the study, āComparative evaluation of patientsā…
July 28, 2016 News by admin There’s a Lack of Communication by Multiple Sclerosis Healthcare Providers, Study Indicates New research from EnglandĀ indicates that healthcare providers do not communicate enough with their patients about the possible outcomes for their multiple sclerosis (MS). The study, “How Do People with Multiple Sclerosis Experience Prognostic Uncertainty and Prognosis Communication? A Qualitative Study,“ appeared in the journal PLoS One.
June 6, 2016 News by Patricia Silva, PhD #CMSC16 – Study Aims to Improve MS Care by Considering Patients’ Perspectives One of the highlights at the āComprehensive Care in MS and Symptom Managementā session of the Consortium of Multiple Sclerosis Centers (CMSC) 2016 Annual Meeting, was an attempt to address the exclusion of patients with multiple sclerosis (MS) from the design and delivery of healthcare aimed at this…
December 7, 2015 News by Patricia Silva, PhD Tips for Managing Multiple Sclerosis During the Holidays TheĀ holidays can be stressful on everyone, andĀ especially onĀ those with multiple sclerosis (MS). A health specialist is offering theseĀ eightĀ suggestionsĀ to MS patients and their families as a way to enjoy this season, and to keep it as free as possible of disease flares or symptom worsening. Increased demands on daily routines, travel,…