April 11, 2017 Columns by Patricia Silva, PhD Importance of Elevators for Universal Housing You might think that the Fair Housing ActĀ required multifamily buildings to have elevators, but no, it doesn’t. A multifamily dwelling of four units that does not have an elevator is not required to have one. However, the ground floor units must be fully…
April 10, 2017 Columns by Debi Wilson A Game of Spin the Bottle, Then Mono, EBV and MS A popular theory of what contributes to developing multiple sclerosis is a disease called mononucleosis (also known as glandular fever), which can be caused by Epstein-Barr virus (EBV). It is thought that the virus weakens our defenses in the blood-brain barrier, allowing white blood…
April 6, 2017 Columns by Tamara Sellman The MS Alphabet: CAT, Clonus, Chemotherapy and More ‘C’ Words (Editor’s note: Tamara Sellman continues her occasional series on the MS alphabet with the first in a three-part series of terms starting with the letter “C.”) When it comes to multiple sclerosis, mastering an understanding of the disease means you need to mind your Ps and Qs, dot your…
March 31, 2017 Columns by Jamie Hughes A Word, If You Please Thirteen years ago, a neurologist sat on the edge of my hospital bed and told me, āYou have MS. Itās not the end of the world. Thereās more on the internet than I could ever tell you about, so I suggest you do some research. Good night.ā Since…
March 31, 2017 Columns by Ed Tobias Scooters: Don’t Let Pride Block Your Path to Independence To scoot or not to scoot? Is is better to drag your legs around for as long as you can, or to give in and get yourself a set of electric wheels? That decision prompted the following vent on a multiple sclerosis Facebook group recently: “I’m just…
March 29, 2017 Columns by Cathy Chester Integrative Medicine for MS: an Interview with Dr. Bowling When you live with multiple sclerosis you search for ways to manage your disease. You turn to doctors who inevitably prescribe one of the many FDA-approved medications, but sometimes thatās not enough. To complete the picture of seeking better health, you need to also look outside…
March 28, 2017 Columns by Ed Tobias My MS Is Getting to Be a Pain, Literally For most of the 36 years since I was diagnosed with multiple sclerosis I’ve not been bothered by pain. Just lucky, I guess. Until last month. Suddenly, I’ve developed pain in both hips and I don’t know why. The pain is most intense when I first put my feet on…
March 27, 2017 Columns by Tamara Sellman Why It’s Important to Observe Your Diagnosis Anniversary On March 27, 2013, my primary care physician called me about MRI results from the day before. He and the radiologist concurred; they had foundĀ evidence of brain lesions consistent withĀ multiple sclerosis. Following protocol, heĀ sentĀ me to the best specialist in SeattleĀ to confirm diagnosis. His was aĀ preliminary diagnosis. In the…
March 27, 2017 Columns by Debi Wilson Serenity Now: Relaxation Techniques for MS, Part Two My last column “Serenity Now: Relaxation Techniques for MS, Part One” offered some quick and easy suggestions on how to relax in times of stress. This columnĀ is a continuationĀ of that series. Movement, massage and applied pressure to the correct areas have many benefits. Massaging certain areas of…
March 21, 2017 Columns by Teresa Wright-Johnson My Fight Song for Multiple Sclerosis Most of us have heard Rachel Platten’s Fight Song. It became an anthem for many people who struggle with illness and adversity. Fight Song has become one of my favorite odes. As a writer, I love to listen to the words of song lyrics. The music is…
March 20, 2017 Columns by Debi Wilson Serenity Now: Relaxation Techniques for MS, Part One Relaxation and serenity are both attainable with the correct calming techniques. When overwhelmed by stress, the skills that have been gained and practiced become second nature to be summoned as needed. The combination of stress and multiple sclerosis can wreak havoc in the body. It can lead to a…
March 17, 2017 Columns by Jamie Hughes MS Awareness Month: Which Ribbon Are We Again? March is Multiple Sclerosis Awareness Month.Ā That means we need to make the most of these four weeks to raise some money for research, and raise awareness about the disease and the 2.5 million people in the world currently living with it. Whatās the best way…
March 15, 2017 Columns by Tamara Sellman MS and the Fear of Missing Out A couple of weeks ago I had a curious encounter with the friend of a friend. I live in a small town. In some ways we’re all at least neighbors. Huddled in a small group at the local grocery store, we were chatting about our experiences with the…
March 15, 2017 Columns by Cathy Chester More and More Studies Linking Multiple Sclerosis to the Gut Microbiome The past few months have not been fun. We lost my father-in-law, put our beloved cat down, and moved from our home to a townhouse that is too small and poorly built. With a low inventory of rental properties in our area, and…
March 13, 2017 Columns by Debi Wilson An MS Exacerbation ā Did I Just Blow a Fuse? When describing a multiple sclerosis exacerbation (also called a relapse, attack, or flare-up), comparing it to a home’s circuit panel is a good analogy to use. When a fuse blows on the circuit board the power is interrupted. During an MS attack, the myelin sheath that covers nerve axons…
March 10, 2017 Columns by Ed Tobias MS Advocates Hope Better Data Will Mean Better Care The practice of collecting data about how we MS patients go about living our lives, and then using that data to improve our patient care, seems to be gathering steam. In the European Union a projectĀ called Real World Evidence Data, or RWE, is working outside of the…
March 8, 2017 Columns by Tamara Sellman The MS Alphabet: Basal Ganglia, BDNF, Babinsky and More ‘B’ Words When it comes to multiple sclerosis, mastering your own understanding of the disease means you need to mind your Ps and Qs, dot your Is, cross your Ts, and recite your ABCs. There is so much to know about this complex disease. But the more you know as…
March 3, 2017 Columns by Jamie Hughes Play On: What Baseball Has Taught Me About MS When people ask me what I love, I usually respond, āGod, my family, and St. Louis Cardinals baseball ā¦ in that order.ā Other than the Razorbacks, Arkansas (my home state) doesnāt have much in the way of athletic bragging rights. Both when I was a kid and now,…
March 3, 2017 Columns by Ed Tobias Improving ‘Workability’ for MS Patients: A European Point of View You probably talk about multiple sclerosis (MS) symptoms, drugs and therapies when you meet with your neurologist, but I’ll bet that most people don’t talk very much about working. Being able to work, and continuing to hold down a job, is important. I see concerns about this all…
March 2, 2017 Columns by Laura Kolaczkowski Which Improvements in Healthcare Would MS Advocates Like to See? I was in Washington, D.C. for a meeting, and had the opportunity to dine with some fellow multiple sclerosis advocates. I thought it might be of interest to get their take on the most pressing issues of 2017 for people living with MS. I wasnāt sure what to…
March 1, 2017 Columns by Tamara Sellman No MS Diet Miracles for Me, Thank You I’ve spent a lot of time latelyĀ around people following special diets. They’re either voluntarily cutting carbs, counting calories, following a diet plan, or fasting, but not because they have a medical condition. Mostly they dietĀ to feel better, lose some weight, or reset their metabolism. I wish them well, even as…
February 27, 2017 Columns by Debi Wilson Benefits of Music Therapy for MS Music therapy has long been known for its healing powers ā its useĀ dates back to WWI, where it was used to help with the physical and emotional healing of the wounded. Music can also be of help to those of us with multiple sclerosis. An article from the…
February 22, 2017 Columns by Tamara Sellman How to survive an MRI if you are claustrophobic Last updated April 26, 2023 A key test for identifying multiple sclerosis (MS) during diagnosis, or to confirm a relapse, is magnetic resonance imaging (MRI.) For those who’ve never had to undergo an MRI, the thought of having this test might be terrifying. Being encased in a magnetic…
February 22, 2017 Columns by Judy Lynn Travel Plans Actually Require Planning These Days, Thanks to MS In my younger years, I took great pride in my far-flung spontaneity, and unfairly judged those I perceived to be too thoughtful and prudent. Age, with its attendant wisdom and experience, moved me slightly inland. In 2003, MS arrived with a smart little bag full of practical necessities,…
February 21, 2017 Columns by Patricia Silva, PhD Exploring Methods to Manage MS-Related Fatigue FatigueĀ isĀ the bane of my existence. Clutter qualifies as my lifestyle. If I can’t see something it may as well beĀ lost. I spend about 50% of my day trying to find things I have put “someplace safe.” The other half I spend looking for something IĀ just had…
February 20, 2017 Columns by Debi Wilson Does your MS Fatigue and Energy Need a Boost? Does your MS fatigue and energy need a boost? I know mine does; having multiple sclerosis drains my battery very quickly. Add to that a terrible cold I had recently, and my fatigue has doubled, and my energy has left the building! While looking for a magic…
February 17, 2017 Columns by Jamie Hughes Conference Was a Reminder of Why We Must Continue to Create Own Stories Last week, I attended the Association of Writers & Writing Programs (AWP) conference in Washington, D.C. I had the opportunity to meet many fine folks who are hard at work creating everything from alphabet books for children to poetry protesting xenophobia. I attended panels on editing, writing…
February 16, 2017 Columns by Laura Kolaczkowski Sir Peter Mansfield, Pioneering MRI Physicist The MS world lost a very important person on Feb. 8. Britain’s Sir Peter Mansfield, Nobel Laureate, passed awayĀ at the age of 83. For most of us, his name means little, but his work revolutionized the way multiple sclerosis is diagnosed, and the way progression of the disease…
February 15, 2017 Columns by Cathy Chester Stress and MS: Webinar from IOMSN Helps Manage Daily Stress When you live with multiple sclerosis, stress is unavoidable. Your first experience with the stress of MS is when youāre diagnosed. As you move forward, you begin experiencing not only ānormalā stress, but also the stress of living with a chronic illness. Ā Stress…
February 15, 2017 Columns by Judy Lynn MS Support Groups: Pot Brownies, Shoes, Bladders ā and Inspiration What do pot brownies, shoe shopping and bladder control have in common?Ā These are just a few of the varied MS self-help support group discussion topics in which I have enjoyed participating. I have been an attendee and group leader of twoĀ National MS Society self-help groups. I also…