multiple sclerosis

A Game of Spin the Bottle, Then Mono, EBV and MS

A popular theory of what contributes to developing multiple sclerosis is a disease called mononucleosis (also known as glandular fever), which can be caused by Epstein-Barr virus (EBV). It is thought that the virus weakens our defenses in the blood-brain barrier, allowing white blood…

A Word, If You Please

Thirteen years ago, a neurologist sat on the edge of my hospital bed and told me, ā€œYou have MS. Itā€™s not the end of the world. Thereā€™s more on the internet than I could ever tell you about, so I suggest you do some research. Good night.ā€ Since…

My MS Is Getting to Be a Pain, Literally

For most of the 36 years since I was diagnosed with multiple sclerosis I’ve not been bothered by pain. Just lucky, I guess. Until last month. Suddenly, I’ve developed pain in both hips and I don’t know why. The pain is most intense when I first put my feet on…

Why It’s Important to Observe Your Diagnosis Anniversary

On March 27, 2013, my primary care physician called me about MRI results from the day before. He and the radiologist concurred; they had foundĀ evidence of brain lesions consistent withĀ multiple sclerosis. Following protocol, heĀ sentĀ me to the best specialist in SeattleĀ to confirm diagnosis. His was aĀ preliminary diagnosis. In the…

Serenity Now: Relaxation Techniques for MS, Part Two

My last column “Serenity Now: Relaxation Techniques for MS, Part One” offered some quick and easy suggestions on how to relax in times of stress. This columnĀ is a continuationĀ of that series. Movement, massage and applied pressure to the correct areas have many benefits. Massaging certain areas of…

My Fight Song for Multiple Sclerosis

Most of us have heard Rachel Platten’s Fight Song. It became an anthem for many people who struggle with illness and adversity. Fight Song has become one of my favorite odes. As a writer, I love to listen to the words of song lyrics. The music is…

Serenity Now: Relaxation Techniques for MS, Part One

Relaxation and serenity are both attainable with the correct calming techniques. When overwhelmed by stress, the skills that have been gained and practiced become second nature to be summoned as needed. The combination of stress and multiple sclerosis can wreak havoc in the body. It can lead to a…

MS Awareness Month: Which Ribbon Are We Again?

March is Multiple Sclerosis Awareness Month.Ā That means we need to make the most of these four weeks to raise some money for research, and raise awareness about the disease and the 2.5 million people in the world currently living with it. Whatā€™s the best way…

MS and the Fear of Missing Out

A couple of weeks ago I had a curious encounter with the friend of a friend. I live in a small town. In some ways we’re all at least neighbors. Huddled in a small group at the local grocery store, we were chatting about our experiences with the…

An MS Exacerbation ā€” Did I Just Blow a Fuse?

When describing a multiple sclerosis exacerbation (also called a relapse, attack, or flare-up), comparing it to a home’s circuit panel is a good analogy to use. When a fuse blows on the circuit board the power is interrupted. During an MS attack, the myelin sheath that covers nerve axons…

MS Advocates Hope Better Data Will Mean Better Care

The practice of collecting data about how we MS patients go about living our lives, and then using that data to improve our patient care, seems to be gathering steam. In the European Union a projectĀ called Real World Evidence Data, or RWE, is working outside of the…

Play On: What Baseball Has Taught Me About MS

When people ask me what I love, I usually respond, ā€œGod, my family, and St. Louis Cardinals baseball ā€¦ in that order.ā€ Other than the Razorbacks, Arkansas (my home state) doesnā€™t have much in the way of athletic bragging rights. Both when I was a kid and now,…

No MS Diet Miracles for Me, Thank You

I’ve spent a lot of time latelyĀ around people following special diets. They’re either voluntarily cutting carbs, counting calories, following a diet plan, or fasting, but not because they have a medical condition. Mostly they dietĀ to feel better, lose some weight, or reset their metabolism. I wish them well, even as…

Benefits of Music Therapy for MS

Music therapy has long been known for its healing powers ā€” its useĀ dates back to WWI, where it was used to help with the physical and emotional healing of the wounded. Music can also be of help to those of us with multiple sclerosis. An article from the…

How to survive an MRI if you are claustrophobic

Last updated April 26, 2023 A key test for identifying multiple sclerosis (MS) during diagnosis, or to confirm a relapse, is magnetic resonance imaging (MRI.) For those who’ve never had to undergo an MRI, the thought of having this test might be terrifying. Being encased in a magnetic…

Exploring Methods to Manage MS-Related Fatigue

FatigueĀ isĀ the bane of my existence. Clutter qualifies as my lifestyle. If I can’t see something it may as well beĀ lost. I spend about 50% of my day trying to find things I have put “someplace safe.” The other half I spend looking for something IĀ just had…

Does your MS Fatigue and Energy Need a Boost?

Does your MS fatigue and energy need a boost? I know mine does; having multiple sclerosis drains my battery very quickly. Add to that a terrible cold I had recently, and my fatigue has doubled, and my energy has left the building! While looking for a magic…

Sir Peter Mansfield, Pioneering MRI Physicist

The MS world lost a very important person on Feb. 8. Britain’s Sir Peter Mansfield, Nobel Laureate, passed awayĀ at the age of 83. For most of us, his name means little, but his work revolutionized the way multiple sclerosis is diagnosed, and the way progression of the disease…