July 19, 2021 Columns by Ed Tobias MS News That Caught My Eye Last Week: Orelabrutinib, MS Stress, Selma Blair Biogen Strikes Deal for Orelabrutinib, Now in Phase 2 Trial BTK inhibitors, such as orelabrutinib, are designed to selectively block the activity of an enzyme important for the activation of B-cells and microglia. Some of those cells drive the abnormal immune responses that attack the central nervous systems of…
July 13, 2021 News by Mary Chapman Selma Blair to Open Summit for Young Adults With Chronic, Rare Diseases Selma Blair, the TV and film actor who is also a multiple sclerosis (MS) advocate, will headline next month’s second International Virtual Summit for young adults with chronic and rare disorders. Hosted by Health Advocacy Summit (HAS), the Aug. 7-8 event will focus on empowerment, resources, and connection. The event is…
June 24, 2020 Columns by Stephanie Towler Actress Selma Blair’s Response to MS Motivates Me Over the years, I have observed how others deal with multiple sclerosis and its symptoms. This disorder is not one-size-fits-all, and it doesn’t discriminate. Recently, I came across a video of ABC News interviewing actress Selma Blair about her multiple sclerosis diagnosis and management. Although the interview happened over…
September 13, 2019 Columns by Ed Tobias Stem Cell Program That Treated Selma Blair Closes Its Doors Richard Burt, MD, the chief of Northwestern Medicine’s immunotherapy for autoimmune diseases division, is taking a sabbatical, and the stem cell program he has headed for many years, which treated a number of people with MS, is shutting down. Burt headed a Phase 3 clinical trial…
March 13, 2019 News by Mary Chapman On the Heels of New MS Prevalence Study, the National MS Society Marks MS Awareness Week with Patient Stories Spurred on by a recent multiple sclerosis (MS) prevalence study, which revealed that the number of MS patients in the U.S. is double (nearly one million) what had been previously thought, the National Multiple Sclerosis Society is marking MS Awareness Week by sharing stories of those affected…
March 12, 2019 Columns by Teresa Wright-Johnson Visibly Me, Visible MS Multiple Sclerosis Awareness Month has arrived, lasting throughout the month of March. All things orange and popular hashtags flood social media sites. Awareness months like this have great value, though some may disagree. Awareness months become vessels to engage and encourage individuals and communities to get involved.
March 1, 2019 Columns by Ed Tobias Bravo to Selma Blair and Her Cane for Appearing at the Oscars Over the past few months, I’ve had a few things to say about actress Selma Blair and the very public way in which she’s been handling her MS diagnosis. When Blair went public with her MS last October, she did it on Instagram, writing, “I am…
January 22, 2019 Columns by Ed Tobias Selma Blair Is Posting About Her MS Again — Is This Good or Bad? Last October actress Selma Blair revealed that she’d been diagnosed with multiple sclerosis (MS). She did it by posting the announcement on her Instagram account. Back then she wrote, “I have MS and I am ok.” She described her symptoms in some detail, but her overall viewpoint was generally…
October 30, 2018 Columns by Ed Tobias Thinking About Selma Blair and Her MS By now you may have heard that actress Selma Blair has revealed that she has multiple sclerosis (MS). That took a lot of guts. Those of us who share her diagnosis might learn a few things from what she’s shared and how she’s shared it. Blair may be…
