• Cathy started the topic Maybe…maybe not in the forum Newly Diagnosed 2 years ago

    Have been diagnosed with “possible” MS.  Have some brain lesions, but neuro won’t say it’s MS lesions, but won’t say it isn’t. Lumbar puncture was inconclusive. Spine MRI’s last done in 2017 and no lesions found.  I had Lyme in 2005 and still test positive for it with 5 bands being positive. My symptoms have progressed over the last 9 years. I w…[Read more]

  • I have been in the “poo mud” for a while now. Started 4 1/2 years ago. No warning from my butt which says, “get to bathroom now!”. Horrible bouts of diarrhea with unknown cause and now fecal incontinence with severe anal nerve pain. Sphincter muscles no longer function.  Ahhh… bottle of Immodium is a double edged sword. If I take one, then…[Read more]

  • Hi Jilleen,

    I get leg spasms too and only when laying down. I’m not even sure it’s a spasm, but it only happens in my left leg, from my ankle to my knee. It’s a weird feeling that makes me have to move my leg and stretch it. Five minutes later, it does it again.. very aggravating and can do this for hours. It’s impossible not to move it,…[Read more]

  • Cathy posted a new activity comment 3 years, 10 months ago

    Thank you Debi!

    • Cathy posted a new activity comment 3 years, 10 months ago

      Thanks Ed!

      • Cathy became a registered member 3 years, 10 months ago

        • Hi Cathy,

          Welcome to the MS forums. There a lot of us here who lead similar lives. I like to say that, rather than hiding from the storm it’s better to learn to dance in the rain. :-).


        • Hi Cathy, Welcome, we are glad that you are here! Please don’t hesitate to ask us any questions that you may have.

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