• Rita became a registered member 1 hour, 43 minutes ago

  • In last Friday’s column I wrote about changing my mind about accepting help….fewer “no thanks” and more “sure, I’d appreciate it.” Do you accept help? Please share your experience.

    It’s Not a Crime to Ask for Help When You Need It

  • Jennifer Lovelady became a registered member 6 hours, 6 minutes ago

  • chris became a registered member 6 hours, 7 minutes ago

  • Bridgette became a registered member 6 hours, 8 minutes ago

  • Hi Yvonne –

    Here’s a link to something I wrote about the shingles vaccine a few years ago. I hope it helps with your decision but it’s best to talk about this with your neuro. He or she, obviously, knows more about you medically than I do.

    Ed

    MS and the Shingles Vaccine: Can They Go Together?

  • Does anyone know if you can or should get a Shingles jab if you have MS?

    Thank you

    Yvonne

  • Kathleen became a registered member 1 day, 4 hours ago

    • Hi Kathleen,

      Welcome to the forums. John Connor and I are moderators and either one of us will be glad to help you navigate things.

      Ed

    • Maria Macias became a registered member 1 day, 11 hours ago

      • Hi Maria,

        Welcome to the forums. I hope you’ll find info that will be useful to you and your daughter. I also encourage you to post any questions in some of our forum topic discussions.

        Ed

      • James Hild became a registered member 3 days, 10 hours ago

        • Hi James,
          Welcome – loads of info, research & experiences on here.
          You can also start topics – my fellow moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
          As you’re new to MS sure you’ll first look at the ‘Newly Diagnosed Forum’. As one of the ‘Patient Columnists’ I wrote one sparked by a post ‘An Open Letter to a Newl…

          [Read more]

        • Hi James,

          It’s good to have you as a forums member. I hope find info that’s useful to your niece. I also encourage you post any questions you have in some of our forum “topics.”

          Ed

        • William T Brewster became a registered member 3 days, 10 hours ago

          • Hi William,
            Welcome – loads of info, research & experiences
            on here.
            You can also start topics – my fellow
            moderator Ed Tobias explains ‘Posting Items’ at
            the top of each Forum.
            Cheers John
            PS My own MS is v.aggressive. 12 years & now in wheelchair with one arm working [still typing!]. But managed circa 5 years of wheelchair tennis. My mott…

            [Read more]

          • Hi William,

            Thanks for joining us. I wouldn’t give up on physical fitness. I’ve lived with MS for over 40 years and I try to swim and walk in the pool as much as I can. Pre-COVID I also did upperbody workouts 2-3 times a week. And in my early 60s I got back on a horse for the first time since I was a kid. Hippatherapy, with an…

            [Read more]

        • Abigail Brake became a registered member 4 days, 4 hours ago

          • Hi Abigail,
            As u haven’t been diagnosed with MS yet pls do come in and look around.
            I’m just an MS patient so your complex medical history is too much for me. However a close non-blood relative of mine has recently just been diagnosed with fibromyalgia after years of trying. There r many symptoms in common with MS.
            Welcome.
            Cheers John
            • Hi Abigail,

              I’m glad you joined us here and I hope you’ll find some answers to your questions. I encourage you to look through our forum topics and post whatever questions and comments that you have there.

              Ed

            • Bermo became a registered member 4 days, 4 hours ago

              • Hi Bermo,
                Welcome – loads of info, research & experiences
                on here.
                You can also start topics – my fellow
                moderator Ed Tobias explains ‘Posting Items’ at
                the top of each Forum.
                Cheers John
                • Hi Bermo,

                  Thanks for joining us. I’m sorry for your difficulties but hope you’ll find useful information here.

                  Have you tried wearing any kind of equipment to help your foot drop…for example a ankle/foot brace or an electronic stimulator, such as the Bioness L300?

                  Ed

                • Yvonne became a registered member 4 days, 9 hours ago

                  • Hi Yvonne,
                    Welcome – loads of info, research & experiences
                    on here.
                    You can also start topics – my fellow
                    moderator Ed Tobias explains ‘Posting Items’ at
                    the top of each Forum.
                    Cheers John
                    • Hi Yvonne,

                      We’re glad you joined us and I hope you find some useful information here. You’ve had MS almost a long as me. I was diagnosed in 1980 but I was 32 years old, so a bit older.

                      I hope you’ll add your comments and questions to some of our topic discussions.

                      Ed

                    • Julie Phillips became a registered member 4 days, 9 hours ago

                      • Hi Julie,
                        Welcome – loads of info, research & experiences
                        on here.
                        You can also start topics – my fellow
                        moderator Ed Tobias explains ‘Posting Items’ at
                        the top of each Forum.
                        Cheers John
                        PS The last thing I can do is type with my right hand! So the lot has fallen on my wife – inc. being my main carer! We get in as much help as we can – o…

                        [Read more]

                      • Hi Julie,

                        Let me join John in welcoming you. I was diagnosed at age 32 back in 1980. Yes, MS is certainly a life-changer for everyone in the family but we learn to live with it as a new companion.

                        I don’t usually make a selfless plug, but I wrote a little book called “We’re Not Drunk, We Have MS.” It’s intended to help “newbies” navigate…

                        [Read more]

                    • Kathy became a registered member 4 days, 9 hours ago

                      • Hi Kathy,
                        Welcome – loads of info, research & experiences on here.
                        You can also start topics – my fellow moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
                        As you’re relatively new to MS sure you’ll first look at the ‘Newly Diagnosed Forum’. As one of the ‘Patient Columnists’ I wrote one sparked by a post ‘An Open Lette…

                        [Read more]

                      • Hi Kathy,

                        Thanks for joining us. I hope you’ll find information that will be useful to you and your husband. Please don’t hesitate to ask questions or make comments in some of our topic discussions.

                        Ed

                      • thomas pallan, MD became a registered member 5 days, 9 hours ago

                        • Hi Thomas
                          Welcome – loads of info, research & experiences
                          on here.
                          You can also start topics – my fellow
                          moderator Ed Tobias explains ‘Posting Items’ at
                          the top of each Forum.
                          Cheers John
                          • Hi Doc P,

                            We’re glad you joined us here and hope you’ll add your unique perspective to some of our topic discussions. I’ll be 73 next months and was DXed back in 1980. A lot has sure changed in the MS world over the past 4 decades!

                            Ed

                          • Ryan Alfonso became a registered member 5 days, 9 hours ago

                            • Hi Ryan,
                              Welcome – loads of info, research & experiences
                              on here.
                              You can also start topics – my fellow
                              moderator Ed Tobias explains ‘Posting Items’ at
                              the top of each Forum.
                              Cheers John
                              • Hi Ryan,

                                Thanks for joining us. I hope you’ll find info that will help you and your family. Please feel welcome to add your comments and questions to our topic discussions.

                                Ed

                              • Jenny Young became a registered member 5 days, 9 hours ago

                                • Hi Jenny
                                  Welcome – loads of info, research & experiences on here.
                                  You can also start topics – my fellow moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
                                  As you’re new to MS sure you’ll first look at the ‘Newly Diagnosed Forum’. As one of the ‘Patient Columnists’ I wrote one sparked by a post ‘An Open Letter to a Newl…

                                  [Read more]

                                • Hi Jenny,

                                  We’re glad you joined us here in the MS forums. A new MS diagnosis can be very scary and I’m sure you have lots of questions. I’ve been living with MS for over 40 years and I still have some. I hope you’ll share some of yours in some of our topic forums. John Connor or I will be glad to help if you have trouble navigating the…

                                  [Read more]

                              • Cari Chavez became a registered member 6 days, 9 hours ago

                                • Hi Cari,
                                  Welcome – loads of info, research & experiences
                                  on here.
                                  You can also start topics – my fellow
                                  moderator Ed Tobias explains ‘Posting Items’ at
                                  the top of each Forum.
                                  Cheers John
                                  • Hi Cari,

                                    Let me join John in welcoming you. I hope the forums will give you info that will help your fiancee, and yourself, to live with MS. Please jump in with questions and comments on our topic discussions.

                                    Ed

                                  • Load More

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