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  • Hi Tom thanks for getting back to me i’m just getting used to the forum. I was diagnosed not long ago with ppms  i’m 57 and as I look back I’ve had symptoms for about 20 yrs. but I just dealt with it. I didn’t think it was anything big just another thing ,and it would go away, I complained to my doctor but all I ever got was (use it or lose it).…[Read more]

  • I had my first infusion of ocrevus and now feel like i’m fighting the flu. I don’t know if I want to do the second half of the first treatment. Can anyone relate.

  • Chris posted a new activity comment 6 months, 2 weeks ago

    Hi Mr. Conner. My name is Eileen, Chris’s fiancé. He hasn’t started his treatment yet…Is there any OTC or prescribed med for his pain and is Ocrevus known for helping the pain symptoms also? Thanks do much!
      • Ocrevus hasn’t helped me with pain – unless the little I have has been lessened anyway.
        The only thing that works for me is liquid cannabis at night. Also top up with CBD during day (which maybe a placebo!).
      • Chris posted a new activity comment 6 months, 3 weeks ago

        Glad to here from someone who knows what i’m talking abuot a lot of people don’t.
        Thanks Ed.
        • Chris posted a new activity comment 6 months, 3 weeks ago

          Thank you Ed I was just diagnosed . And I’m trying to wrap my head around it. I’ve been complaining about left side weakness for years all I got from docters was use it or lose it. Finally I pushed the issue and they ordersd an MRI , now I know why i’m off balance all the time and I keep tripping on my own feet. I feel betrayed by the…

          [Read more]

          • Chris,

            You’re not alone in having a long wait before a diagnosis. But, that’s behind you now.

            The good new is that, out of 17 disease-modifying treatments approved for use in the US, Ocrevus is one of the two that seem to be the most effective at slowing, or even stopping, the disease. Some people on Ocrevus have even reported some improvement…[Read more]

        • Chris became a registered member 6 months, 3 weeks ago

          • Hi Chris,

            Thanks for joining us here in the MS forums and welcome. I know that an MS diagnosis can leave you with a lot of questions and concerns and I hope you’ll be able to find useful information here. Please don’t be shy about asking questions in our topic sections. Also, please holler to me or co-moderator John Connor if you need any help…[Read more]

            • Thank you Ed I was just diagnosed . And I’m trying to wrap my head around it. I’ve been complaining about left side weakness for years all I got from docters was use it or lose it. Finally I pushed the issue and they ordersd an MRI , now I know why i’m off balance all the time and I keep tripping on my own feet. I feel betrayed by the…

              [Read more]

              • Chris,

                You’re not alone in having a long wait before a diagnosis. But, that’s behind you now.

                The good new is that, out of 17 disease-modifying treatments approved for use in the US, Ocrevus is one of the two that seem to be the most effective at slowing, or even stopping, the disease. Some people on Ocrevus have even reported some improvement…[Read more]

          • Hi Chris,

            I’m the other moderator & just happen to be on Ocrevus – it’s the best DMT I’ve had.

            There’s been a lot of correspondence lately re newly diagnosed patients. Sure you have checked out that forum – wrote ‘An Open Letter to a Newly Diagnosed Patient’ there. I then turned it into a column [plug,
            moi?]…

            [Read more]

            • Hi Mr. Conner. My name is Eileen, Chris’s fiancé. He hasn’t started his treatment yet…Is there any OTC or prescribed med for his pain and is Ocrevus known for helping the pain symptoms also? Thanks do much!
                • Ocrevus hasn’t helped me with pain – unless the little I have has been lessened anyway.
                  The only thing that works for me is liquid cannabis at night. Also top up with CBD during day (which maybe a placebo!).
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