@john-connor-2
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John Connor started the topic THC Prevents Lethal Symptoms Of Lung Disease Associated With Viruses in Mice in the forum Alternative Treatments 8 hours, 55 minutes ago
It’s a bit left field this one but if you’re a hippy mouse at least THC looks like it helps to protect you! Of course smoking is just a tad difficult – can you roll a reefer that thin? Well they’ve got small paws!
Presume they get injected. For us humans far better anyway for the lungs to use the liquid form. Makes a…[Read more]
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John Connor posted a new activity comment 10 hours, 34 minutes ago
Hi Veronica,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
Cheers John
PS I’m a Londoner so a closer hello than I’m used to here! -
John Connor posted a new activity comment 10 hours, 49 minutes ago
That’s terrible. Have to have them for 5 years as you know. Still having mine!
Mind you for the first couple of years had to hall my bottom to the local hospital and as I became worse this got increasingly difficult.. Reckon that a lot of tests just didn’t happen! Didn’t help that a lot of mine got lost in the system!
In the end was told…-
Yes. The company providing the home testing service, EMSI, did a lot of testing that wasn’t related to Lemtrada. People cancelled their tests because of COVID, taking away much of their business.
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John Connor started the topic Good News Possibly for Spascisty Sufferers in the forum Treatments and Trials 4 days, 5 hours ago
Our news section today reports on a new drug, Arbaclofen ER is an extended release formulation of arbaclofen, the R isomer of baclofen, that leverages our proprietary Osmodex® drug delivery system and is being studied for the treatment of spasticity resulting from multiple sclerosis.
The company are applying to the US Food and Drug Administration…[Read more] -
John Connor replied to the topic Treating MS with Hookworms? in the forum Alternative Treatments 5 days, 8 hours ago
I read about the roots of this ages ago. The incidence of MS was much lower in places in Africa where parasites were active. Of course, it’s also nearer the equator where there is less incidence of MS. Presumably because of the higher incidence of Vitamin D from sunlight.
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John Connor replied to the topic Spasticity treatment in the forum Parents and Caregivers 5 days, 8 hours ago
Hi Quynh-Loan
As, Ed, my fellow Moderator wrote you should really put this in the ‘Living with MS’ Forum.
But in the meantime I suffer hellish spacisty/neuropathic pain in my right arm. For this I now take Gabapentin & Baclofen. If it turns into a spasm I also have Diazepam – which kills the pain but also feels like getting stoned .
Writing of…[Read more] -
John Connor replied to the topic What a Day That Was in the forum MS Drugs 6 days, 9 hours ago
My latest column ‘A Morning With No Opera but Enough for a Small Choir!‘
deals with one hectic day of Social Services descending on me interspersed with a police drama outside.
I went for a convoluted headline relating to a Marx Brothers film – this time I’ve gone for a little know track from one of the the greatest albums ever ‘What a Day That…[Read more] -
John Connor started the topic Updating the Shifting MS-COVID-19 Treatment Equation in the forum Coronavirus COVID-19 Information 1 week ago
I wrote a piece below about shielding for MS patients last Friday. Please take a look at, @ed-tobias, a fellow columnists latest piece where he tries to bundle all the various threads together!
I’m sure you’ve got questions – it’s just there are no definitive answers.
Levity has never been my thing – to quote from one of my fave sitcoms of the…[Read more] -
John Connor started the topic MS Society UK Medical Advisers on Going Outside Whilst Shielding in the forum Coronavirus COVID-19 Information 1 week, 3 days ago
MS Society Medical Advisers release consensus statement on going outside while shielding
This relates obviously to my own country however I’m still extremely cautious.
I put myself into lockdown three weeks before my country did. I note we have the second worse death rate in Europe! Only beaten by Belgium.The only country to run a laissez faire…[Read more] -
John Connor posted a new activity comment 1 week, 3 days ago
Hi Kathy,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
Cheers John -
John Connor started the topic Can Exercise Help Cognition in MS Patients? in the forum Living With MS 1 week, 5 days ago
Our news section recently published ‘More Research Needed Into How Exercise, Rehab Aid Cognition in MS‘
The gist seems to be we don’t know yet.
But for those of us where exercise is becoming increasingly difficult I thought I’d throw in something from the study of dementia.
If you’re bi-lingual this may delay dementia for a few years
So it can’t…[Read more] -
John Connor posted a new activity comment 1 week, 5 days ago
Hi Connie,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
Cheers John -
John Connor posted a new activity comment 1 week, 5 days ago
Hi Roy,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
Cheers John -
John Connor started the topic All Quiet on the MS Front in the forum Living With MS 1 week, 6 days ago
This week my column deals with my recovery from my recent MS relapse and my consequent Trigeminal Neuralgia attacks via a whole series of film analogies. I started out in my professional life as a theater critic but obviously always had a hankering in this direction. Don’t worry my references may often be old, but they always tend to be…[Read more]
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John Connor replied to the topic Can Fruit Peel Amazingly Give Us Back Our Myelin? in the forum Treatments and Trials 2 weeks ago
He Ed & hello Collette
Practically every study I’ve flagged up or read about seems to be tested on mice! I’ve highlighted this recent study before questioning the validity of all mice research on us humans.
So as much as I agree with your valid skepticism – think my MS advancement has me mew grasping at straws. Despite the plastic ones being…[Read more] -
John Connor posted a new activity comment 2 weeks, 3 days ago
Hi Karen,
Welcome – loads of info, research & experiences on here.
Sure u will anyway – the ‘Newly Diagnosed’ Forum is full of advice/other patients writing about their experiences.
You can also start topics – my fellow
moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
Cheers John -
John Connor posted a new activity comment 2 weeks, 3 days ago
Hi Vajri,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
Cheers John -
John Connor posted a new activity comment 2 weeks, 3 days ago
Hi Lydia,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
Cheers John
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John Connor posted a new activity comment 2 weeks, 4 days ago
Hi Delores
I’m John, one of the Co-Moderators of this Forum.
Well done for checking. Also well done for getting out into the countryside. Apologies if it was from your back garden!
Best John
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John Connor replied to the topic Can Fruit Peel Amazingly Give Us Back Our Myelin? in the forum Treatments and Trials 2 weeks, 4 days ago
So, I’ve given it a go.
I take a myriad of supplements that might possibly help MS.
Some like Biotin have recently proved to be worthless. Still, it’s flogged as being ‘Support for Healthy Hair, Skin and Nails’ so at least I’m giving myself the chance at being lustrous!
I bought the below of British eBay for £20 – the below is from UK Amazon.£8 m…[Read more] - Load More
