@john-connor-2
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John Connor started the topic Nearly Felled by Lack of Exercise! in the forum Living With MS 14 hours, 44 minutes ago
Well, not general exercise – I started back to fitness classes at the beginning of December last year. So far a bit of bike work and standing frames.
A relapse in February 2018 stopped me walking.
Exercise diminished as I dealt with survival.
My world was limited to a few yards from my bed for months.
But there was one exercise that I n…[Read more]
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John Connor started the topic Memory Training Could Make Brains of MS Patients More Efficient, Study Suggests in the forum Treatments and Trials 1 day, 11 hours ago
Our news section just published this article.
It works through a method called the modified Story Memory Technique (mSMT).
As a service I wanted to know how you actually do it and the best I have discovered is the below:
Remembering a Simple List
© VeerPakhnyushchyy Vitaliy
Create a c… -
John Connor posted a new activity comment 1 day, 12 hours ago
Hi RJ
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed explains ‘Posting Items’ at the top of each Forum.
Cheers John -
John Connor posted an update 1 day, 12 hours ago
Hi Shakti
Before I launch into my welcoming spiel below your comment ‘the pain is constant from burning mouth’ worries me. Presume you’ve had a diagnosis about it? It sounds like Trigeminal Neuralgia which you can get special pain killing drugs for – normal one don’t work as it follows a completely different path. As you probably know all of…[Read more] -
John Connor started the topic It's All in the Mind [and er, the spine]! in the forum Living With MS 4 days, 4 hours ago
My column this week ‘The Mind-Body Interface‘ takes a spin around Brain Preservation. It was sparked by the post below ‘As MS research evolves, a new focus on brain preservation comes to light’.
My neurons must have fired!
Have you heard of brain preservation? If so is there anything practical you can do about it?
The cliche is tha…[Read more]
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John Connor replied to the topic BrainStorm Cell Therapeutics Wins 2020 ‘Buzz of BIO’ Award in the forum Treatments and Trials 4 days, 5 hours ago
Wowser!
Not heard of this but anything that even has a sniff of a chance of encouraging myelin growth has to be applauded.
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John Connor started the topic Veganury Diary in the forum Living With MS 5 days, 9 hours ago
Well aware that new converts can be bores.
I love meat, fish, cheese and eggs. Especially eggs.
Yes, veganism is better for the planet, your cardiovascular system , fatigue and if you haven’t got MS any severe Iron Man/Woman OK let’s say Person endurance event.
Also think I’m losing weight even though I seem to have replaced meat with a nu…[Read more]
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John Connor replied to the topic MS Patients Largely Favor Blood Stem Cell Transplants But Lack Understanding, Survey Finds in the forum Treatments and Trials 6 days, 6 hours ago
My own Neurologist was shocked that I wasn’t worried about the chance of death . But then as a patient had recently died of exactly this at the time of my consultation things were quite raw for him.
It’s no panacea if you qualify – 64% seem to benefit! It’s not the miracle cure the media love to hype.
I was too old when I was diagnosed with MS…[Read more]
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John Connor posted a new activity comment 6 days, 7 hours ago
Hi Marcy,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed explains ‘Posting Items’ at the top of each Forum.
As a new patient and member presume you’ve already delved into our ‘Newly Diagnosed’ section. Wrote a column ‘An Open Letter to a Newly Diagnosed Patient’ based on corresp… -
John Connor started the topic Being Bilingual May Help to Delay Cognitive Decline in MS, Study Suggests in the forum Treatments and Trials 1 week ago
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John Connor started the topic It’s Only a Matter of Time in the forum Living With MS 1 week, 1 day ago
Plug for my latest column which is all about the time zapping nature of MS.
Where putting on clothes can take hours!
I’ve given up on shoes – think that would be a whole day!!! Doesn’t help that MS has also given me Lymphedema !!!!
What does MS eat up your day with?
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John Connor posted a new activity comment 1 week, 1 day ago
Hi Alison,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed explains ‘Posting Items’ at the top of each Forum.
Cheers John
PS Think u may well be on to something with the Fibromyalgia/MS link. -
John Connor posted a new activity comment 1 week, 1 day ago
Hi Susan,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed explains ‘Posting Items’ at the top of each Forum.
Cheers John
PS Whereaboots r u in Canada? One of the few countries I’ve really toured? -
John Connor posted a new activity comment 1 week, 4 days ago
Hi Jo,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed explains ‘Posting Items’ at the top of each Forum.
Cheers John -
John Connor posted a new activity comment 1 week, 4 days ago
Hi Tenny,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed explains ‘Posting Items’ at the top of each Forum.
The Newly Diagnosed Forum is really worth checking out . I’m also a Patient Columnist in these here parts and a few months ago one was generated from interactions there:… -
John Connor posted a new activity comment 1 week, 4 days ago
Hi Jack,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed explains ‘Posting Items’ at the top of each Forum.
Cheers John
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John Connor replied to the topic As MS research evolves, a new focus on brain preservation comes to light in the forum Living With MS 1 week, 5 days ago
There’s a lot to unpick here.
Have read a lot of contrary evidence. So much in fact that have had to leap to what is hopefully solid net sources to try and piece it together.
First ‘Brain Training’ games etc is looking more like a way of flogging Apps that is meaningless. If you get fun out of them fair enough but that is probably it!
Then…[Read more]
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John Connor started the topic CBD Heresy in the forum Alternative Treatments 1 week, 6 days ago
I see that my fellow Moderator Ed Tobias has just asked what CBD product might help his spasticity.
Don’t know how long I’ve been taking CBD products but it’s certainly been at least six months.
Spasticity in my right arm has been getting worse in this period – I’m pretty sure that CBD products have done nothing to alleviate it. The only thing…[Read more]
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John Connor posted a new activity comment 2 weeks ago
Hi Richard,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed explains ‘Posting Items’ at the top of each Forum.
Cheers John
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John Connor started the topic Vegan – Good Times in the forum Living With MS 2 weeks, 1 day ago
Well, this was a turn for the good.
Just before Christmas I decided to try veganism.
This weeks column was about what that meant Xmas was like.
And this very week our news section published an article about research showing that a plant based diet helps lower fatigue.
It might be psychosomatic but have felt that I’ve had more…[Read more]
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Good for you, John, for getting back into it. I’m far less disabled that you and I try to exercise every other day. I’m fortunate to have a great exercise room in the condo community where I live. Here’s my usual routine:
I’ve recently worked back up to 20 minutes on the recumbent bike.
3 sets of 10 reps on several upper body weight machines.
3…[Read more]