John Connor

Not the most thrilling title but just been thanked by King’s College London’s PHD research for taking part in this study.

1. 1] People living with MS who tend to interpret ambiguous situations in a negative fashion also reported…

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Our new report from#ECTRIMS2019 on another B cell therapy.

B-cell therapies, which include approved MS therapy Ocrevus (ocrelizumab, by Roche) and rituximab (used off-label) continue to be seen as promising strategies for the treatment of MS.

For Stephen L. Hauser, MD, an investigator in the ASCLEPIOS trials, these results represe…[Read more]

In the second time in two months one of my machines failed. The first was my powered wheelchair. This time it was my brand new anal catheter system  which I write about in this week’s column. I discovered that in just a few weeks it had become as indispensable as my wheelchair.
At least I get a column out of it – if something like this has ever…[Read more]

This a report based on The Multiple Sclerosis In America 2019 survey.

Turns out that: ‘Multiple sclerosis (MS), like many other autoimmune conditions, is much more common in women than in men. However, many men live with MS, and they tend to experience a more aggressive disease course compared to women. We wanted to dig into the results of…[Read more]

The UK MS Society has just launched this new advert to raise research funds to #StopMS. The link is embedded here. What do you think of the ad?

Until that is the Brexit crisis is resolved. – that was in March this year.

So in the UK at the moment we do have a disabled government even if we don’t have a Minister for the Disabled….

Any other countries with evidence of political turmoil being used as an excuse to ignore disabled people

My column this week is stuck in a time-loop. I even make a reference to Doctor Who – so a time-loop is entirely apposite.

Only published a few hours ago and a reader has already suggested D Mannose. I already take it!

Any other suggestions? At this point I’ll even give folk remedies a go.

I draw the line though at Cranberry juice though!!

A recent Australian study reports this. We have an article on our main page.
I concur. Recently I was prescribed a device to deal with it – Peristeen. It’s made a significant difference – though it can still be a struggle.
If you are suffering in silence know you can do something about it.
I thought I was reasonably clued up about MS. Shows…[Read more]

Yesterday I had by N’th MRI – I was claiming 20 but undoubtedly it’s not that high. It sure feels like it though.
I am so well practiced that I’m now relaxed about the whole shebang. So much so that I still go to sleep late the night before . Then when I’m ensconced in the beast I have a snooze despite the Metallica concert of noise.
The only…[Read more]

Our news department reports on this trial which specifically aims to see if changing our gut flora has any effect on MS.
I wondered about this a few years ago whilst watching a BBC documentary about the microbiome.
I now drink kefir daily – just in case.
Anybody else trying anything like this?
 
 
 

Have just spent four hours in the bathroom wrestling with my body.  Even though I’ve got a new device to help my day has basically disappeared.

I’ve got myriad work things to do and enough bureaucracy to be a civil servant in India!

Do you find that just dealing with your MS is turning into a full time job?

 
My nephew Tom recently raised sponsorship by chucking himself out of a plane for the  Multiple Sclerosis Trust. 
This isn’t the first time he’s put himself in harm’s way –  he used to be in the Navy and served  part of his tour in Afghanistan.
So he’s a seaman who’s been up in a plane and lived in dangerous and near desert conditions.
So the…[Read more]