John Connor

For any of us with mobility issues – which must be nearly all of us – putting on weight is a problem. Up to a few years ago I did wheelchair tennis so at least I was getting a good cardio-vascular workout – though you’re sitting down it’s probably more energetic than regular tennis! So I’ve put on weight – for a while it just got worse. How do you…[Read more]

I’ve been taking Modafinal to deal with MS brain-fog for several years now. I can’t recommend it enough – it really sharpens me up.  The only downside – it causes constipation. So I’m now the real life embodiment of Rodin’s ‘The Thinker’. See – Modafinil even helps me write jokes! Any drugs or supplements have their good & bad sides for you? Apt…[Read more]

‘Crippled’ by Guardian columnist Frances Ryan is a new book out this week. Have only read the review, suitably in The Guardian. It chronicles how disabled people have been demonized and made  to pay since the financial crash in the UK. My own MS suitably mirrors the West’s financial collapse – mine happened at exactly the same time. I’ve had to…[Read more]

OK bit of a cheek lifted this from the our Home page. In the UK to prove you have MS necessitates having a lumbar puncture. This can prove pretty horrendous – I had to have one recently to be prescribed ocrevus. Sounds like breath of fresh air – what do you think?

Am facing a significant expenditure to make myself  truly independent. For a cascade of reasons had to get all the adaptions on my new Wheelchair Accessible Vehicle before I had a motorized wheelchair. Now to use it as intended is another significant outlay for something called a Dock n Lock system. Am not whining – well I am a tad – but there’s…[Read more]

Sometimes there’s a positive from becoming disabled. In my case I’ve had to adapt my drive and door entrance so that my wheelchair can now just glide thru. Before it took serious manhandling for my increasingly frustrated – though now fitter – family.  Our American Fridge has decided to imitate Anchorage! So a new one is needed. And it can now…[Read more]

Ever pushed yourself so far it felt like a hangover? Sure no headache – but couldn’t get out of bed! At least on my own!! Spent a whole day having to recover – not just a few hours. Know not supposed to push that hard but as a former British Prime Minister Harold Macmillan once put it ‘Events, dear boy’ events’. His turned out to be the Suez…[Read more]

Anyone else drink Kefir to help their macrobiome?

I know it’s slightly old news but I’ve been doing it for years. Always been a bit of a science geek and figured if our guts could really affect the brain it might also have a relationship with MS.

Also because of constant Urinary Tract Infection am on long term dose of antibiotics which d…[Read more]