John Connor

For the first time in years I’ve started wearing Boxers

It’s a relief for my sore thighs. Babies don’t wear nappies. or in our case pads, for as long as I have. This is uncountably a short respite. I’ve also brought it on myself. by not fully trusting the anal catheter I got some two years ago.

Anybody else use one?

New survey in Norway shows that despite all the advances in drugs over the last few years – none have changed this rather pernicious effect of MS.

Pernicious, because when I was active I found this my worst symptom! I would literally stop like a robot that’s been powered down.

How about you?

This week I face up to and accept the inevitable. Secondary progressive MS.

It all feels bleak. Long ago I adopted the philosophy of  accepting what was – rather than what I wanted it to be. This didn’t stop me from trying to change things  however, but this looks pretty unchangeable!

Anyone got any thoughts, ideas, gone thru this t…[Read more]

Ah. this article about TG is a concise primer for a anyone that suffers from it.  It is estimated that 4–6% of people with MS experience trigeminal neuralgia. Hullo if u’re one of us,

It first hit me in July 2017 ‘The Mouth that Roared’. Then if really hit me ‘The Mouth That Roared and Roared’ July 1920 = oh, just realized on our third ann…[Read more]

This week’s column muses about work and ‘coming out’ about your MS.

I didn’t realise I’d actually done this. You can’t blame me there was a lot going on!

It was spurred on by a survey carried out by the UK MS Society that showed a third of MS patients kept their diagnosis secret.

So, what about you?