John Connor

My  column this week is all about how MS Nurses have come up with practical solutions to deal with the travails of living with this disease. Have MS Nurses helped you?

OK anyone else on here having to deal with UTI’s constantly? I’ve written innumerable columns about it –  the last only three weeks ago.  I’m sure another one has just started. I’ve been dealing with this ever since I started to self-catheterize seven years ago. I use lashing of antibiotic gel and even for a while sterile gloves – nothing helps. A…[Read more]

I’m a comedy producer with MS. I have to self-catheterize.  So I maybe the only person in the comedy industry who really does take the piss out of himself!

‘Today the National Institute for Health and Care Excellence (NICE – the main UK regulatory body  for licensing drugs for the NHS) has ‘published draft guidance for prescribing cannabis-based medicines. It’s refused to recommend cannabis for pain and spasticity in MS, and won’t recommend Sativex for wider use on the NHS. 

I’ve written below th…[Read more]

A charity for people with Tourette’s syndrome has asked a comedian to apologise for his award-winning joke made at the Edinburgh Fringe festival.
Tourettes Action said it was “so disappointed” by Swedish comedian Olaf Falafel’s gag, which won Dave’s “Funniest Joke of The Fringe” prize.
It said the fact the public voted for the joke showed “how we…[Read more]

OK to us English types ‘bog’ is slang for toilet. It originally referred to an open cesspit. I wasn’t about to forgo a punny title just because the majority of the Forum members are  American. So I haven’t!

In my column this week ‘Up Peristeen, or How to Beat the Blockade‘ I discuss MS and bowel problems. I raised this as a discussion a few…[Read more]

OK to us English types ‘bog’ is slang for toilet. It originally referred to an open cesspit. I wasn’t about to forgo a punny title just because the majority of the Forum members are  American. So I haven’t!

In my column this week ‘Up Peristeen, or How to Beat the Blockade‘ I discuss MS and bowel problems. I raised this as a discussion a few…[Read more]

Well, this is good news!

‘The UK Multiple Sclerosis (MS) Register, based at Swansea University, has been awarded just over £1m investment from UK charity, the MS Society‘.

I’ve actually been a member of this since it’s started – it’s an in depth survey of what it’s like to live with MS. The Register sends out a prompting email every six months…[Read more]

‘NICE also recommended against prescribing Sativex as a treatment for spasticity (muscle stiffness) in people with  MS for reasons related to its cost-effectiveness’.
The above is an extract from one of our news pieces.  Living in the UK I’m not exactly sad about this as NICE seem to be pushing for more research on medicinal cannabis.

I reme…[Read more]