• John Connor posted a new activity comment 6 days, 13 hours ago

    Hi ZA,
    Welcome – as you’re new to MS sure you’ll first look at the
    ‘Newly Diagnosed Forum’. As one of the
    ‘Patient Columnists’ here I wrote one, a while back, sparked by the
    post ‘An Open Letter to a Newly Diagnosed
    Patient’. Mind u, it only relates to Relapsing Remitting MS (RRMS)
    https://mu…[Read more]

  • John Connor posted a new activity comment 6 days, 13 hours ago

    Hi Cynthia,
    Didn’t know you could move from primary progressive to secondary progressive. I’m now SPMS also. Is it the same? Before I was RRMS.
    Anyways, welcome – loads of info, research & experiences
    on here.
    You can also start topics – my fellow
    moderator Ed Tobias explains ‘Posting Items’ at
    the top of each Forum.
    Cheers John

  • Now that I’ve somewhat recently joined the Secondary Progressive (SPMS) crew, any medicines that could possibly help us get my full attention. There’s not a lot!
    New drug foralumab has miles of road testing before it would become available in any of our MS service stations. It does this: ‘Six months of treatment with foralumab nasal spray led t…[Read more]

  • John Connor posted a new activity comment 1 week, 1 day ago

    Hi S.M.,
    My world still turns upside down when I drive too aggressively in my powered wheelchair! Hey-ho.
    Anyways, welcome – loads of info, research & experiences
    on here.
    You can also start topics – my fellow
    moderator Ed Tobias explains ‘Posting Items’ at
    the top of each Forum.
    Cheers John

  • Yes. During corny films that somehow get me. Darn it!

  • I have a pretty eclectic background – so I’m willing to chat about anything, except American sports. That one is beyond me. Even by cheating via the net. Though tennis I can certainly manage.
    The point of this Forum is to get communication going between us. For many, MS can be an isolating experience. I’m still having to be extremely cauti…[Read more]

  • John Connor posted a new activity comment 2 weeks, 5 days ago

    Hi Anthony,
    Welcome – loads of info, research & experiences
    on here.
    You can also start topics – my fellow
    moderator Ed Tobias explains ‘Posting Items’ at
    the top of each Forum.
    Cheers John
    PS BTW how old is your daughter?

  • John Connor posted a new activity comment 2 weeks, 5 days ago

    Hi Deb,
    Welcome – loads of info, research & experiences
    on here.
    You can also start topics – my fellow
    moderator Ed Tobias explains ‘Posting Items’ at
    the top of each Forum.
    Cheers John

  • John Connor posted a new activity comment 2 weeks, 5 days ago

    Hi Dennis,
    Welcome – loads of info, research & experiences
    on here.
    You can also start topics – my fellow
    moderator Ed Tobias explains ‘Posting Items’ at
    the top of each Forum.
    Cheers John

  • Sorry for the Northern World bias. If you’re in the Southern hemisphere, tell us how your winter went. For the rest of you, let us know about your summer.

    Any news to report? Problems traveling as an MS patient? Did you stay at home and why?

    Me, I stayed in place. Now I’m limited to a hoist to get into bed, and it has been a hospital one at…[Read more]

  • John Connor posted a new activity comment 3 weeks, 5 days ago

    Hi Self,
    It seems that recent studies indicate that Fibromyalgia is probably an autoimmune disease. MS most definitely is. Many of us are also severely affected by fatigue.
    So there are some similarities.
    Anyhoo, welcome – loads of info, research & experiences
    on here.
    You can also start topics – my fellow
    moderator Ed Tobias explains ‘Po…[Read more]

  • John Connor posted a new activity comment 3 weeks, 6 days ago

    Hi Laura,
    Your not alone. There so many of us with MS that we don’t even count as a rare disease. Latest estimates for 2022 is there are million MS patients in the USA.
    Try joining the MS Society and seeking out your nearest chapter. Indeed, do it the other way around.
    Anyway welcome – as you’re new to MS sure you’ll first look at the
    ‘…[Read more]

  • John Connor posted a new activity comment 3 weeks, 6 days ago

    Hi Ricardo,
    Welcome – as you’re new to MS sure you’ll first look at the
    ‘Newly Diagnosed Forum’. As one of the
    ‘Patient Columnists’ here I wrote one, a while back, sparked by the
    post ‘An Open Letter to a Newly Diagnosed
    Patient’. Mind u, it only relates to Relapsing Remitting MS (RRMS)
    https://mu…[Read more]

  • John Connor replied to the topic Anxiety with MRI scans in the forum Living With MS 1 month ago

    Hi Patrick, my wife sufferes from claustrophobia. It’s got worse recently and she tried cognitive therapy which seemed to help.
    Me – I’d rather smoke a joint.
    I’m the worst person to ask – I’ve had 20-30 since my diagnosis in 2009. So used to them, I keep falling into a deep sleep – they can’t wake me up from.
    Cheers John

  • John Connor posted a new activity comment 1 month ago

    Hi Patrick,
    Congrats on already posting a topic.
    U’ve also rendered my welcoming spiel redundant!
    So just welcome it is then.
    The other moderator around these here parts is
    Ed Tobias.
    Cheers John

  • Hi Jilly,
    Thanx for replying.
    I’d find a day like that shattering.
    Still u do live in the most wonderful country I’ve ever visited.
    Re the lift – that’s nothing. My teenage son used to revel in pushing
    me into a corner – when travelling thru airports. It cheered him up.
    He did enjoy the preferential treatment of boarding first though.
    Cheers John

  • John Connor posted a new activity comment 1 month ago

    Hi Rita,
    No cure but loads of new Disease Modifying Therapies (DMT’s) but even if it does work, it only leaves you as you are with some recovery. Destroyed areas of the brain remain destroyed..
    Anyways, on that sombre, note welcome – loads of info, research & experiences on here.
    You can also start topics – my fellow
    moderator Ed Tobias exp…[Read more]

  • John Connor posted an update 1 month, 1 week ago

    @itasara Hi Ellen, We chatted briefly when u joined the MS Forum 2 years ago. Just diving into our member base to check out how things r going for you. Cheers John

  • John Connor posted a new activity comment 1 month, 1 week ago

    Hi Melody,
    Welcome – loads of info, research & experiences
    on here.
    You can also start topics – my fellow
    moderator Ed Tobias explains ‘Posting Items’ at
    the top of each Forum.
    Check out the Forum, ‘Treatments and Trials’, for the latest breakthroughs. Though a lot are on mice which rarely works on us humans. Also the Home page of our sites main…[Read more]

  • John Connor posted a new activity comment 1 month, 1 week ago

    Hi Gloria,
    Welcome – loads of info, research & experiences
    on here.
    You can also start topics – my fellow
    moderator Ed Tobias explains ‘Posting Items’ at
    the top of each Forum.
    Cheers John

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