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  • Greetings!

    I’ll be 57 in 2 weeks.  I’ll have my first 1/2 dose infusion of Ocrevus on the 18th.  I’m RRMS but my disease is getting worse:  3 new lesions, 3 activated old lesions, more symptoms.  I’ve been on Abagio since 2016.  I have worsening symptoms over the last 6 months so the new lesions weren’t a surprise.

    I’ve had MS at least sinc…[Read more]

  • Lisa Petrilli posted a new activity comment 1 month, 3 weeks ago

    Thank you! It is very difficult. Some symptoms are difficult to distinguish the source. Pain is one. Uveitis is another. I take Plaquenil for the Lupus and will start Ocrevus next month after several years on Abagio. New lesions and reactivation of old ones, together with increased EDSS score, means ramping up to a more aggressive…

    [Read more]

  • Lisa Petrilli became a registered member 1 month, 3 weeks ago

    • Hi Lisa,
      Welcome – loads of info, research & experiences on here.
      You can also start topics – my fellow
      moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
      Cheers John
      PS Hope some of it helps – having Lupus as well can’t be easy. x
        • Thank you! It is very difficult. Some symptoms are difficult to distinguish the source. Pain is one. Uveitis is another. I take Plaquenil for the Lupus and will start Ocrevus next month after several years on Abagio. New lesions and reactivation of old ones, together with increased EDSS score, means ramping up to a more aggressive…

          [Read more]

      • Hi Lisa,

        Let me join John in welcoming you. I think you’ll find a large difference in efficacy between Ocrevus and Aubagio. Ocrevus is really designed to reduce the progression of MS, rather than just reduce exacerbations. I’ve read lots of good reports from people who are being treated with it. Good luck to you with that medication.
        Ed

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