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  • Lola Dean posted an update 1 month, 2 weeks ago

    Ed, I forgot to ask how they monitor you to catch PML before it wreaks its havoc? Also, I read about an antiviral ( something lambda) that can strengthen the BBB which would prevent migration of of the JCV into the brain. Do you know anything about that?

    • Lola,

      I had brain MRIs ever six month to look for a shadow that, apparently, is an early sign of PML infection. I also had regular blood tests (I think they were also twice a year) to monitor my JVC titer. The higher the titer the more concern there is about developing PML. When it rose to a certain level I changed meds from Tysabri to Aubagio.

      I don’t know anything about an anti-viral that would protect against a PML infection.

      Ed

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