Biography

Name

Margarete Timothy

Nickname

margarete-timothy

Year of Birth

1973

Gender

Female

Location

Ogden, Utah

Relationship

Patient

Short Bio

Many of these comments resonate for me. I hope to find answers myself and am seriously contemplating going into one of the research test.

At age 30 i was diagnosed by an ancient sports med specialist. Who told me it was r/r (remisive/recurring) MS. (Meaning it would hit me like waves gradually getting worse and worse over time…at which point i should check back in with a doc for further treatment.

Like clockwork everything he warned me of happened. 10 yrs pass.. And symptoms start to shift slightly and become more worrisome.. 5 more years pass at that level and then another shift.. Intense pain/severe weakness episodes start impacting me to crippling levels..

Each level, wave that hits.. i just learn to cope with it..

But this last shift sent me back to the hospital in July for a 4 hour long MRI to diagnose the level of impact MS has done on my body.

The results..

I am told its not MS I have Fibromyalgia.. (I dont understand it.. I was devestated.. I had to Google what it even was so i could understand what my body is doing..

The past year or two Ive been feeling another.. Shift..

My already damaged memory is getting worse.. Hearing.. Vision.. Balance.. Daily strength levels.. tremors are terrifying to me now, Im an artist, and i truly worry the thing that makes me, me, will be taken away..

..not to mention the extreme shift in pain recently..

After researching Parkinson’s, I believe that is where this last shift is heading..

Perhaps its all just one extreamly difficult to diagnose, often misdiagnosed disorder, perhaps we are focusing to closely on all the similarities & “symptoms” of all three MS, Fibromyalgia, Parkinson’s. Believing they are separate disorders, instead of the possibility of one main disorder, and we as individuals experience each wave..shift in different ways.

I hope this shed some light..

Oh and one more thing to share.. The contrast drug injected for the MRI felt like shards of mettle being yanked through my veins..  by the movement of the machine.. It was excruciatingly painful and exhausting.

I hope these shared thoughts and experiences with my own journey through this brings more answers to others.

 

How did you find us?

MS News Website

How long have you or the person that you are caring for had MS?

Complicated

Privacy Policy and Terms of Use

I agree